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Does My Disability Mean I’m Not “Normal?”

LIVING WITH A DISABILITY BY JERRY LEVINSON Often, the words that a person uses in talking with, or about you, affect not only your perception of the individual speaking them, but also your perception of yourself – your “self esteem.” Anyone who knows me will tell you that I have a couple of screws loose,

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A GPS for Families of People with Special Needs – Part II

BY LAUREN AGORATUS INTRODUCTION I wrote this manual to help other families of individuals with special needs and the professionals who work with them. My daughter now has five life-threatening conditions, and autism just to keep things interesting. We have been through everything from early intervention to currently going through transition to adult care. I

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An Overview Of The Individuals With Disabilities Education Act

Every child deserves a home filled with love, a stomach filled with food — and a fulfilling and enriching education. Legislation is helping with education. The Individuals with Disabilities Education Act ensures that all children with special needs have access to a “free appropriate public education” and they have the necessary tools to meet their

Special

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New Top Rated Resource on Disability.gov: “Quick Links & Important Phone Numbers”

Visit the links below to get information about Social Security benefits, home health care, rental assistance, help finding a job and much more. At the bottom of this page you’ll also find a list of frequently requested government telephone numbers. (Note: When you visit the links below, you’ll be directed to websites outside of Disability.gov.) Contact

Parenting

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The Education Of Grace And Her Classmates

BY MICHELLE BOUDREAU On September 1, 2016 Grace will walk into James Memorial High School in Madison, WI with her best friends, Luke and Nicole, and enjoy all the perks that come along with being a senior in high school.” ~ Grace’s mother Shannon As the summer is coming to a close and we move

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Choosing The Best Therapist For Your Child

BY AMANDA JENSEN-DOSS, PH.D. The world of child and adolescent mental health is unfamiliar and often bewildering. Deciding whether your child would benefit from therapy and then finding the best treatment can be a difficult undertaking because it is hard to know who to trust with your child’s wellbeing and whether the treatment prescribed will

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Go Play, Despite The Risks!

BY BRIANNA JOHNSON-KING “I am a big believer in physical activity for wellness in general, and certainly for strength,” says Megan Henry, Director of Athletics at Columbus School for Girls in Bexley, Ohio. “Those years before puberty are critical times for kids to build bone mass—to develop and grow.” The early years of your kid’s

Rick Rader MD

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Fluid Dynamics

ANCORA IMPARO BY RICK RADER, MD ■ EDITOR-IN-CHIEF Poop and pee are hardly strangers to Direct Support Professionals. The DSPs have to return the situation to its pre-event status and do it with dignity, respect, grace and reverence to the individual. It’s been a hot summer in the South, and virtually every part of the

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You Don’t Know Jack

ANCORA IMPARO BY RICK RADER, MD ■ EDITOR-IN-CHIEF Dr. Jack Dillenberg, the founding Dean of an innovative incubated dental school in Mesa, Arizona, insisted his students had to have demonstrated a commitment to community service and an appreciation for collaborative approaches to comprehensive dental healthcare. “You don’t know Jack” is a popular expression that infers

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Rational Coefficients

ANCORA IMPARO BY RICK RADER, MD ■ EDITOR-IN-CHIEF For most Exceptional Parents who have tried to play by the numbers in their attempt to secure the greatest opportunities for their children to succeed, the irrationality of “special needs algebra” continues to challenge them. The Scottish comedian Billy Connolly nailed it when he said, “I don’t

ep Special Needs Connect

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The Education Of Grace And Her Classmates

BY MICHELLE BOUDREAU On September 1, 2016 Grace will walk into James Memorial High School in Madison, WI with her best friends, Luke and Nicole, and enjoy all the perks that come along with being a senior in high school.” ~ Grace’s mother Shannon As the summer is coming to a close and we move

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Ask the Experts – Concussion

EDUCATION ON ALL ASPECTS OF A CONCUSSION September 15 – October 15, 2015 Ask the Experts is a free online forum wherein respected experts participate in a question- and-answer discussions regarding a specific topic. If you have a question or comment regarding concussions, please use the comment section below. Our featured experts will respond accordingly. MEET

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Autism Speaks names Angela Timashenka Geiger as President and CEO

SOURCE: Autism Speaks New York, N.Y. (January 14, 2016) – Autism Speaks, the world’s leading autism science and advocacy organization, today announced that Angela Timashenka Geiger has been named president and CEO of the organization. The appointment came after a unanimous vote by the Autism Speaks Board of Directors and is effective February 2016. “We

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The Education Of Grace And Her Classmates

BY MICHELLE BOUDREAU On September 1, 2016 Grace will walk into James Memorial High School in Madison, WI with her best friends, Luke and Nicole, and enjoy all the perks that come along with being a senior in high school.” ~ Grace’s mother Shannon As the summer is coming to a close and we move

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ep Special Needs Connect “Search & Respond”

ep Special Needs Connect’s Search & Respond enables you to reach out and interact with other families and caregivers who are just like you and can help you, using their own knowledge and experience. As with the people in the following situations, you will be able to post your questions on the site, so it

Healthcare

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Novel, Campus-Based Center Designed to Enhance Well-Being and Performance of Undergraduates with Disabilities

BY ROBERT W. BOHLANDER, PH.D., BCN AND EDWARD SCHICATANO, PH.D. Transitioning from high school to college is a daunting task for any emerging young adult. For a student with a disability, it can be more so. Although the undergraduate experience is often portrayed as not being “the real world,” and thus relatively “stress-free”, college life

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Severe Birth Defects Not As Lethal As Docs Once Said: Study

by Lindsey Tanner Parents of newborns with rare genetic conditions used to hear the grim words that the severe birth defects were “incompatible with life.” Support groups and social media showing the exceptions have changed the landscape. So has mounting research suggesting that not all such babies are doomed to die. The latest study focuses

Wellness

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The Physical Part of Education

HE FITNESS PRIORITY BY KRISTIN MCNEALUS, PT, DPT In 1990, the Individuals with Disabilities Education Act (IDEA) was passed, requiring that all people with disabilities, of school age, have access to Physical Education in a normal school environment. Does your child participate in physical education consistently? Do you know what your child is doing in

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All About Probiotics

HEALTHY CHOICES, HEALTHY LIFESTYLES BY BARBARA B. MINTZ, MS, RD Doctors commonly prescribe taking probiotics to “repopulate” the digestive tract with healthful bacteria. Bottom line, the good bacteria help “crowd out” bad bacteria. We usually think of bacteria as something that causes diseases. But did you know that your body is full of bacteria, both

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Healing “The Most Unkindest Cut Of All”

BY H. BARRY WALDMAN DDS, MPH, PHD, RICK RADER, MD, STEVEN P. PERLMAN DDS, MSCD, DHL (HON) If you have tears, prepare to shed them now… Look! In this place ran Cassius’ dagger through: See what a rent the envious Casca made: Through this the well-beloved Brutus stabb’d… Judge O you gods, how dearly Caesar

Education

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Performance & Your Child’s IEP

BY JUDITH CANTY GRAVES AND CARSON GRAVES An IEP is your child’s roadmap to an appropriate education. No map can help you, however, if you don’t know your starting point. That is why the IEP must contain objectively measured assessments of your child’s abilities before it can be an effective educational roadmap. There are two

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ep 2015 Teachers of the Year

BY VANESSA B. IRA, EDITOR EP MAGAZINE Three outstanding Teachers of the Year are being honored in this edition of EP (Exceptional Parent) magazine, our Annual Schools & Camps Issue. These are teachers whose work requires extraordinary patience, sometimes in the midst of constant emotional outbursts. Teachers who must focus always on what a student can do – and not on

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Parents See Adult Children Take Wing in L’Arche

BY BETHANY KEENER • PHOTOS PROVIDED BY L’ARCHE With 18 communities consisting of one or more homes in the United States, L’Arche provides support for daily living and a community of belonging where people with and without intellectual disabilities share their lives together. When Donna and Manny Ganzarain were told their fouryear-old son Mark was

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Money

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Introduction of ABLE Accounts in Some States this Summer

An ABLE account is designed to ease financial strains faced by individuals with disabilities by making tax-free savings accounts available to cover qualified expenses such as education, housing, and transportation. This summer, certain states will begin introducing ABLE accounts, providing special needs individuals and their families another resource through which to save and invest for

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An Opportunity for a Living Wage for Individuals on the Autism Spectrum? Electronics Recycling & Refurbishing

BY ERNST VANBERGEIJK, PH.D., M.S.W. Without specific job training, individuals on the autism spectrum face rather bleak employment prospects. At best, the employment rate is 45 percent for this population. Anecdotal reports find that only about 10 percent of  individuals on the autism spectrum find employment. Often, employment is part-time, minimum wage work which does

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HIPAA Privacy Rules Revealed

Just between you and me, what you don’t know could hurt you Imagine you have a nineteen-year-old daughter away at college about three hundred miles from your home. Her roommate calls to say there’s something terribly wrong. She tells you that your daughter is speaking incoherently and behaving unusually, and you hear it for yourself

Mobility

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ACCESSIBLE TRAVEL GUIDE & RESOURCES 2016

BY IDA KEIPER AND JESEMINE JONES; ILLUSTRATIONS BY BREE RUBIN When you travel and explore the world with your children, you have the opportunity to share their experiences and enthusiasm. On the other hand, children also benefit from traveling. For travel is full of teachable moments and, for children with special needs, the experiences are

Mobility Ventures Recognized by National Automobile Dealers Association

Mobility Ventures Recognized by National Automobile Dealers Association Oct 28, 2014 Mobility Ventures Proudly Joins NADA’s Long History of Commitment to Quality and Ethics (SOUTH BEND, Ind.) – Mobility Ventures LLC, designer and manufacturer of the acclaimed MV-1, the only American vehicle purpose-built and designed from the ground up in support of people who use

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Assistive Technology Information And Funding

Independent Living Centers These centers provide information and referrals on how to get funding in your area. There are approximately 400 independent living centers around the country. For the name of the one nearest you, contact the National Council on Independent Living Centers by following the link or call voice or TTY, 713.520.0232. Most states have

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We Found A 100% Electric Wheelchair Van

BY DAVE FINNIGAN We love that it is the last vehicle he will ever need, that there are virtually no service or repair requirements on electric vehicles, and that there is no heavy power ramp or mechanical lift to haul around or repair. Our 46-year-old son, Davy, has been in a wheelchair all his life,

Military

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Tuition Help For Military Children

Like all parents, service members often need help to pay the high cost of college tuition. Fortunately, many scholarships, tuition assistance programs and benefits exist just for the children of service members. But finding the right programs could feel like being stuck in a rainforest without a guide. To keep you on the right path,

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Brain training induces lasting brain & mental health gains for veterans, civilians with brain injury

In the first study of its kind, veterans and civilians with traumatic brain injury showed improved cognitive performance and psychological and neural health following strategy-based cognitive training. The Department of Defense-funded study, published this week in Neuropsychological Rehabilitation, was conducted by an interdisciplinary team of cognitive neuroscientists, rehabilitation specialists, and neuroimaging experts from the Center

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TIPS FOR MILITARY SPECIAL NEEDS FAMILIES

TIPS FOR MILITARY SPECIAL NEEDS FAMILIES Disabled children of active duty military families who are enrolled in Tri Care’s Exceptional Family Member Program may be eligible for a Tri Care Waiver-equivalent program, the Extended Care Health Option/ECHO, which provides “financial assistance to beneficiaries with special needs for an integrated set of services and supplies.” This

President Message

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AAIDD and NADSP Issue a Joint Position Statement

“EP Magazine has supported the dedication and professionalism of the nation’s Direct Support Professionals and we are in full accord with this joint statement by the NADSP and AAIDD.” Joe Valenzano, CEO and Publisher; Rick Rader, MD, Editor in chief Direct Support Professionals (DSP) Workforce Statement Individuals with intellectual and developmental disabilities (IDD) have long sought lives

Editorial

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Fluid Dynamics

ANCORA IMPARO BY RICK RADER, MD ■ EDITOR-IN-CHIEF Poop and pee are hardly strangers to Direct Support Professionals. The DSPs have to return the situation to its pre-event status and do it with dignity, respect, grace and reverence to the individual. It’s been a hot summer in the South, and virtually every part of the

New Technology & Products

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FUN2GO TANDEM

The Fun2Go Tandem is a side-by-side, three-wheel tandem tricycle in which the users ride tandem and sit beside each other, designed for use by organizations, institutions, and individuals who want to provide social contact and movement for a person with a disability by cycling outdoors. One person steers, and both can pedal. Riders can easily

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Exceptional Parent Magazine - The Special Needs Resource
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