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Breaking Barriers

BY GRACE NAH AND BRITTNEY NORRIS Recently Tobii Dynavox, a leader in assistive technology for communication, expanded their mission for improving the quality of life for even more people through a new device called Indi™. This first-ever direct-to-consumer speech tablet provides a communication solution for individuals of all ages with speech and language disabilities, including those with autism, Down syndrome, cerebral palsy, Rett syndrome and Intellectual disabilities. “We truly believe that everyone deserves and should […]

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A Trip to Disneyland

Not long ago, we let Sophie play hooky from seventh grade for two days, and took her to Disneyland. I considered it an educational trip – every time we go, it seems, Sophie gets a little smarter. Some evidence: When Sophie was just shy of 5, she made her first real foray into potty training after the promise of Snow White panties in exchange for dry pull-ups. At 7, she showed compassion and maturity by […]

Australian model and designer Madeline Stuart, who has Down syndrome, acknowledges attendees after presenting creations from her label 21 Reasons Why By Madeline Stuart during New York Fashion Week in Manhattan, New York, U.S., February 12, 2017. REUTERS/Andrew Kelly

Model with Down syndrome launches design label at New York Fashion Week

Source: Reuters – By Patricia Reaney | NEW YORK Less than two years after making her runway debut, Madeline Stuart, a model with Down syndrome, launched her own fashion label on Sunday at New York Fashion Week with a collection of sporty leggings, crop tops and skirts. The Australian-born model challenged fashion industry norms with her first catwalk appearance in 2015 and is credited with changing perceptions about people with Down syndrome. She hopes to […]

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Why I’m Buying Brain Hats for Both My Daughters- Including the One with Down Syndrome

I will admit that I was kind of meh on the whole pussy hat thing, but as soon as a post about the brain hat popped up on Facebook I was all over Etsy, looking for someone to make me three. One for me, one for my daughter, Annabelle, and one for my other daughter, Sophie. Not long after, I heard that there was heated discussion on some other feeds about how these hats are […]

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Alzheimer’s Disease In Down Syndrome

By Norberto Alvarez, MD Overview Alzheimer disease (AD) is the most common form of dementia. AD is a progressive degenerative disease of the brain, strongly associated with advanced age. However, it should not be considered a part of the normal aging process. AD is characterized by a relentless progression of symptoms associated with defined neuropathologic changes. Individuals with Down syndrome (DS), or trisomy 21, develop a clinical syndrome of dementia with clinical and neuropathologic characteristics […]

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A mom’s quest to make son with Down syndrome a model goes viral

The Atlanta Journal-Constitution By Tyler Estep (October 25, 2016) Asher Nash is 15 months old and lives in Buford with his parents and older sister. He has bright blue eyes and light brown hair and loves to wear bowties. Asher Nash also has Down syndrome — and a mother who wants to share his beauty with the world. “I want the world to see just how amazing he is,” Meagan Richter Nash said Thursday, “and just how […]

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Down Syndrome And Alzheimer’s Research—Find Ways To Connect

Many, but not all, people with Down syndrome develop Alzheimer’s disease when they get older. There are several ongoing research studies and clinical trials exploring the link between Down syndrome and Alzheimer’s disease. For Down Syndrome Awareness Month, learn more about research opportunities for people with Down syndrome by: Joining DS-Connect®, a voluntary, confidential, online registry from the Eunice Kennedy Shriver National Institute of Child Health and Human Development. You, your legally authorized representative, or your […]

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Odds and Evens Playing Nicely Together

ANCORA IMPARO BY RICK RADER, MD ■ EDITOR-IN-CHIEF Unified Sports provides people with and without ID (intellectual disabilities) the opportunity to play on the same sports team, creating a space for friendships, physical activity and fun. The classic image of the young girl with Down syndrome running with determination across the finish line to the cheers of her families, friends and coaches has always done what it is intended to do—let you know of the […]

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Parents & Teachers Can Combat Bullying Together

BY KAREN KABAKI-SISTO, M.S. CCC-SLP Along with academic achievement, a goal of the educational experience is to learn how to have successful social relationships both inside and outside of the classroom that continue through adulthood. However, physically seating a student into a classroom –mainstream or self-contained –does not automatically ensure social acceptance. Problems with learning and communication can cause a child with special needs to be misunderstood, left out, teased, and/or bullied, leading to behavioral […]

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Tips For Talking With Your Child With Special Needs About Tragedy

With recent tragedies in the news, many children, including those challenged with special needs, are exposed to trauma through the media and in conversations. The Episcopal Center for Children (ECC), a nonprofit school serving children with special needs ages 5-14 in the Washington, DC area, offers some advice on how to talk with your child about tragedy. “Children hear information from other children and from the activities around them. Your child will pick up information […]