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A Trip to Disneyland

Not long ago, we let Sophie play hooky from seventh grade for two days, and took her to Disneyland. I considered it an educational trip – every time we go, it seems, Sophie gets a little smarter. Some evidence: When Sophie was just shy of 5, she made her first real foray into potty training after the promise of Snow White panties in exchange for dry pull-ups. At 7, she showed compassion and maturity by […]

Australian model and designer Madeline Stuart, who has Down syndrome, acknowledges attendees after presenting creations from her label 21 Reasons Why By Madeline Stuart during New York Fashion Week in Manhattan, New York, U.S., February 12, 2017. REUTERS/Andrew Kelly

Model with Down syndrome launches design label at New York Fashion Week

Source: Reuters – By Patricia Reaney | NEW YORK Less than two years after making her runway debut, Madeline Stuart, a model with Down syndrome, launched her own fashion label on Sunday at New York Fashion Week with a collection of sporty leggings, crop tops and skirts. The Australian-born model challenged fashion industry norms with her first catwalk appearance in 2015 and is credited with changing perceptions about people with Down syndrome. She hopes to […]

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Why I’m Buying Brain Hats for Both My Daughters- Including the One with Down Syndrome

I will admit that I was kind of meh on the whole pussy hat thing, but as soon as a post about the brain hat popped up on Facebook I was all over Etsy, looking for someone to make me three. One for me, one for my daughter, Annabelle, and one for my other daughter, Sophie. Not long after, I heard that there was heated discussion on some other feeds about how these hats are […]

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Alzheimer’s Disease In Down Syndrome

By Norberto Alvarez, MD Overview Alzheimer disease (AD) is the most common form of dementia. AD is a progressive degenerative disease of the brain, strongly associated with advanced age. However, it should not be considered a part of the normal aging process. AD is characterized by a relentless progression of symptoms associated with defined neuropathologic changes. Individuals with Down syndrome (DS), or trisomy 21, develop a clinical syndrome of dementia with clinical and neuropathologic characteristics […]