The Muscular Dystrophy Association is pleased to announce the award of an MDA Venture Philanthropy (MVP) grant totaling $233,200 to Scottsdale, Arizona-based Iron Horse Diagnostics to support development of a prognostic test for ALS. This prognostic Such a test could help improve and accelerate clinical trials and speed the development of life-saving drugs to people with ALS (amyotrophic lateral sclerosis).  MVP is MDA’s drug development program, which is exclusively focused on funding the discovery and […]

Alabama’s Special Camp for Children & Adults

The impact that a Camp ASCCA experience can have on increasing confidence and the level of independence often remains long after the camp session has ended. BY GLENN ROSWAL AND DANA RICKMAN With more than 25 different activities from which to choose, Camp ASCCA is an exciting place to visit. Each activity area offers a unique experience and allows the camper to succeed on his or her own, as well as in an environment of […]

Training First Responders To Respond Bettter

“The SNAP Program makes a vital contribution to the armamentarium of best practices addressing the unique needs of special populations and their ability to thrive and participate in the community. It will become a time-honored component in the first responders’ toolkit.” – Rick Rader, MD, Medical Liaison, SNAP Program BY BRUCE GARNER Even under the best of circumstances, it is challenging to be a good parent, but when your child has special needs, it gets […]

Symptoms of Muscular Dystrophy in Young Children

By Vincent Iannelli, MD – Reviewed by a board-certified physician. Updated April 16, 2016 – Source verywell Muscular dystrophy (MD) is a group of so-called “X-linked” genetic disorders that causes progressive muscle weakness and degeneration of the skeletal muscles controlling movement. According to the National Institutes of Health, some forms of MD become apparent in infancy or early childhood while others don’t appear until middle age or later. Who Is at Risk for Muscular Dystrophy […]

New Jersey first state to enact ABLE in 2016

Trenton, NJ−Governor Chris Christie has signed ABLE legislation that will allow families the opportunity to set up tax-free 529A savings accounts for disability-related expenses. The bill received unanimous support in votes in both chambers. The legislation was sponsored by Senate President Stephen, Senator Dawn Addiego and Assemblymembers Pamela Lampitt, Louis Greenwald, Valerie Vainieri Huttle, Daniel Benson and Vincent Mazzeo. The New Jersey ABLE legislation follows upon enactment by the federal government of the Stephen Beck, Jr., […]

Around The World In A Wheelchair

by Lynda Edwards, Chattanooga Times Free Press/TNS | January 19, 2016 Cory Lee Woodard’s muscular dystrophy put him in a wheelchair at age 4, but it hasn’t kept him from swimming in Iceland’s Blue Lagoon or enjoying Malibu beaches. Now, at age 25, his highly successful travel blog, Curb Free with Cory Lee, has sent him around the world a few times and won him more than 12,000 Twitter followers, 4,500 Facebook fans and over […]

Nondiscrimination on the Basis of Disability in Air Travel; Consideration of Negotiated Rulemaking Process

Summary The Department of Transportation (“Department” or “DOT”) announces that it is exploring the feasibility of conducting a negotiated rulemaking (Reg Neg) concerning accommodations for air travelers with disabilities addressing inflight entertainment, supplemental medical oxygen, service animals, accessible lavatories on single-aisle aircraft, seating accommodations, and carrier reporting of disability service requests. The Department has hired a convener to speak with interested parties about the feasibility of conducting this Reg Neg. The Department anticipates that the […]

The Medically Underserved Population (MUP)

BY EMILY JOHNSON If you look at the pictures of my brother and me on my first day of kindergarten, and my first day of medical school, they look remarkably similar. Despite the 16 years separating the two, our hairstyles have only changed minimally. However, one of the biggest similarities of these two occasions was my personal naivety. In both cases, I was somewhat unprepared for the way my brother and others with intellectual disabilities […]

How To Organize International Group Travel For Students With Disabilities

BY ERNST VANBERGEIJK, Ph.D., M.S.W  Most non-disabled adults take for granted the ability to travel overseas for business or pleasure. However, for many teens and young adults with disabilities, the ability to travel independently without their parents is a dream. At best, they may have gone on a holiday with their families. They have never traveled to a foreign country with their friends. The benefits of traveling internationally for students with disabilities are numerous. Not […]