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Enhancing Lives Of People With Down Syndrome

BY SARA HART WEIR, MS The National Down Syndrome Society (NDSS) is the leading human rights organization for individuals with Down syndrome. NDSS envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities. Down syndrome is the most commonly occurring chromosomal condition. One in every 691 babies in the United States is born with Down […]

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Practice Without Pressure

BY DEBORAH JASTREBSKI Practice Without Pressure™ greatly reduces and, most times, eliminates the need for sedation and restraint. The PWP model includes the individual, the family/caregiver, and the clinician, and introduces the PWP practice specialist into the paradigm. THE NEED You wake up one morning and your tooth hurts. Although it’s not your favorite thing you call your dentist, make an appointment and go get it fixed. You’re nervous but you tell the dentist that, […]

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On Catching the Number 7 Bus Home

ANCORA IMPARO BY RICK RADER, MD ■ EDITOR-IN-CHIEF The tale of Gertie and Gail serves to emphasize the fundamental tenet of caring for and about individuals with dementia, and that is to “live in their world.” Following family tradition, England’s Prince Charles, the Duke of Wales, served in the Royal Navy. He served on an array of ships including guided missile destroyers, frigates, mine hunters and aircraft carriers. Young English schoolboys looked up to him […]

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My Name Is Jackson Fukuda And I Have Arginase Deficiency

I AM A 26-YEAR-OLD GRAPHIC DESIGNER… BY JACKSON FUKUDA This is my story with arginase deficiency. A decent amount of information was told to me by my parents. I felt that they would be the best ones to tell my story when I was diagnosed and how life was for me at a very young age. At a young age they started to notice a big difference between other children my age and myself. I […]

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Developmental Coordination Disorder

The “hidden” facet of autism spectrum disorder BY DR. SHELLEY MARGOW, OTD, OTR/L Clumsiness is an inevitable part of growing up, and all children bump into objects, drop things and sometimes fall in their journey to adolescence and adulthood. But there are some kids whose struggle to fully participate and learn new skills in daily activities at home, in the playground, and in the classroom is ceaseless. The cause is Developmental Coordination Disorder (DCD), a […]

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Holistic Guide For Families Who Have A Loved One With Special Needs

PUBLIC BENEFITS BY CALEB HARTY Many important benefits are outlined below, but not all. Also, effort has been made to point out important aspects of the programs, but outlining every detailed exception, rule, etc., is beyond the scope of this informational guide. For context, most of these programs are “means-tested,” which means they are usually not available until the child turns 18 because up until that point the parents’ assets and income are taken into […]

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AMERICA’S TOOTHFAIRY – National Children’s Oral Health Foundation

BY JILL MALMGREN Did you know that pediatric dental disease is the most common, chronic disease among children in the U.S.? More common even than asthma or diabetes? More than 40 percent of children experience tooth decay by the time they reach kindergarten, and the decay rate for children with special needs is even higher. Because tooth decay affects millions of children, it is easy to believe cavities are inevitable and just a normal part […]

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Archaeological Dig Uncovers The Remains Of Disabled-institutionalus (Report dated: 2050)

AMERICAN ACADEMY OF DEVELOPMENTAL MEDICINE & DENTISTRY BY H. BARRY WALDMAN DDS, MPH, PHD, STEVEN P. PERLMAN DDS, MSCD, DHL (HON) AND RICK RADER, MD More than 35 years have passed since the investigative reporter Geraldo Rivera’s documentary on Willowbrook State School in New York City revealed the gruesome and neglected conditions in which individuals with intellectual and physical disabilities lived. Only recently has an archeological dig at the site located the remains of one […]

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Where Do We Go from Here? Making Informed Decisions About Special Education Dispute Resolution

This article will focus on due process hearings, which are the most costly form of dispute resolution in terms of time, financial resources, and impact on relationships between parents and school personnel. BY WILLIAM BLACKWELL, ED.D. Planning special education services is a collaborative process involving parents, children, and school personnel. While the majority of individualized education programs (IEPs) are developed collaboratively, there are situations in which disagreements arise that are not easily resolved. Parents are […]

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Transitioning From Pre-School To Elementary School, And Beyond: Students With Special Education Services

BY DIANE WISCARSON, WISCARSON LAW As a parent of a child with special needs, you may be particularly anxious about sending your child to elementary school. After all, you want to make sure that your incoming kindergartner gets the full benefit of a public school education, and has a positive experience in the process. Prior to your differently-abled child reaching kindergarten age, they will have likely been getting services through your local Education Service District […]