When siblings have intellectual and developmental disabilities

Doreen Arcus, Ph.D. She would have been 100 this year. Perhaps the most influential person with intellectual and developmental disabilities in modern America, Rosemary Kennedy changed the lives of millions. And she did it through her siblings. Born at a time when families were advised to institutionalize children with disabilities, Rosemary was instead an integral part of Kennedy family life until a prefrontal lobotomy left her incapacitated at age 23. She was particularly close to […]

Alabama’s Special Camp for Children & Adults

The impact that a Camp ASCCA experience can have on increasing confidence and the level of independence often remains long after the camp session has ended. BY GLENN ROSWAL AND DANA RICKMAN With more than 25 different activities from which to choose, Camp ASCCA is an exciting place to visit. Each activity area offers a unique experience and allows the camper to succeed on his or her own, as well as in an environment of […]

Training First Responders To Respond Bettter

“The SNAP Program makes a vital contribution to the armamentarium of best practices addressing the unique needs of special populations and their ability to thrive and participate in the community. It will become a time-honored component in the first responders’ toolkit.” – Rick Rader, MD, Medical Liaison, SNAP Program BY BRUCE GARNER Even under the best of circumstances, it is challenging to be a good parent, but when your child has special needs, it gets […]

Job Coach Helps Build Pride & Professionalism

BY LARRY LANDAUER The kitchen in the café at First American Financial Corporation where Elizabeth Martinez serves as job coach for Brian Hirayama, Daniel Martinez, and Alfonso Ponce—three young men with developmental disabilities—is a showcase for true integration of people with disabilities into the work force. Alongside co-workers without disabilities, these men perform their duties with pride and professionalism, helping the First American Café serve more than 1,000 people per day. The support, encouragement and […]

Improving Health Worldwide To The Most Underserved

People with intellectual disabilities face health care providers who don’t have the knowledge or willingness to treat them. Despite severe need and higher health risks, people with ID are often denied health services. BY KRISTIN HUGHES SROUR, MBA If you want to help straighten her bones, dig a hole in the ground, have your daughter stand in it and then pack it with soil. Do this every day for six hours. This was the advice […]

Toilet Training Children with Special Needs

SOURCE: Adapted from Guide to Toilet Training (American Academy of Pediatrics) The issue of when and how to begin toilet training can be particularly challenging for parents of children with special needs. While no parent wants to push an already challenged child to perform in ways that are impossible, the sense of accomplishment experienced when he does succeed in this important aspect of self-care can make an enormous difference in his level of self-esteem. Perhaps […]

Tips For Talking With Your Child With Special Needs About Tragedy

With recent tragedies in the news, many children, including those challenged with special needs, are exposed to trauma through the media and in conversations. The Episcopal Center for Children (ECC), a nonprofit school serving children with special needs ages 5-14 in the Washington, DC area, offers some advice on how to talk with your child about tragedy. “Children hear information from other children and from the activities around them. Your child will pick up information […]

New Jersey first state to enact ABLE in 2016

Trenton, NJ−Governor Chris Christie has signed ABLE legislation that will allow families the opportunity to set up tax-free 529A savings accounts for disability-related expenses. The bill received unanimous support in votes in both chambers. The legislation was sponsored by Senate President Stephen, Senator Dawn Addiego and Assemblymembers Pamela Lampitt, Louis Greenwald, Valerie Vainieri Huttle, Daniel Benson and Vincent Mazzeo. The New Jersey ABLE legislation follows upon enactment by the federal government of the Stephen Beck, Jr., […]

The Medically Underserved Population (MUP)

BY EMILY JOHNSON If you look at the pictures of my brother and me on my first day of kindergarten, and my first day of medical school, they look remarkably similar. Despite the 16 years separating the two, our hairstyles have only changed minimally. However, one of the biggest similarities of these two occasions was my personal naivety. In both cases, I was somewhat unprepared for the way my brother and others with intellectual disabilities […]

50% Of Children With Special Needs Are Bullied At School

B A C K – T O – S C H O O L  S U R V E Y Parents that were recently surveyed by AngelSense revealed the severity of the situation for children with special needs: 50% of parents reported that their special needs child has been bullied at least once on the way to school or at school, and almost 80% of parents of children with special needs, such as autism spectrum […]