Scientists find new approach that shows promise for treating cystic fibrosis

NIH-funded discovery uses common antifungal drug to improve lungs’ ability to fight infection. Researchers say a widely-used antifungal drug may hold promise for treating people with cystic fibrosis, a life-threatening genetic disorder that causes serious damage to the lungs. In studies using human cells and animals models, the researchers found that the medication, called amphotericin, helps lung cells function in a way that could make it easier for patients to fight chronic bacterial lung infections […]

Children’s brains reorganize after epilepsy surgery to retain visual perception

NIH-funded study shows that in children, the brain can compensate for missing regions of the visual cortex. Children can keep full visual perception — the ability to process and understand visual information — after brain surgery for severe epilepsy, according to a study funded by the National Eye Institute (NEI), part of the National Institutes of Health. While brain surgery can halt seizures, it carries significant risks, including an impairment in visual perception. However, a […]

Special Tree Adds Visagraph to Robust Vision Therapy Program for Brain Injury Rehabilitation

ROMULUS, Mich. – After three separate eye surgeries to repair detached retinas, resulting in 75 days total spent face-down to recover fully, Special Tree CEO Joseph Richert knows first-hand how powerful vision can be in everyday functioning. That’s one reason he is passionate about evaluating all patients with brain injury for vision challenges when they first come to Special Tree. Another is simply the good sense it makes to screen patients for impaired vision at […]

New Data on Autism Spectrum Disorder in 4-Year-Old Children

CDC scientists published a report on the prevalence and characteristics of autism spectrum disorder (ASD) among 4-year-old children. This report is based on information from the Early Autism and Developmental Disabilities Monitoring (ADDM) Network. Early ADDM is a subset of the broader ADDM Network, which has been doing ASD surveillance among 8-year-old children since 2000. In this report, published in the Morbidity and Mortality Weekly Report (MMWR) Surveillance Summaries, scientists analyzed information from the health […]

Looking for Answers to Epilepsy in a Blood Test

by Dr. Francis Collins Millions of people take medications each day for epilepsy, a diverse group of disorders characterized by seizures. But, for about a third of people with epilepsy, current drug treatments don’t work very well. What’s more, the medications are designed to treat symptoms of these disorders, basically by suppressing seizure activity. The medications don’t really change the underlying causes, which are wired deep within the brain. Gemma Carvill, a researcher at Northwestern […]

Data on Autism: Five Facts to Know

Many children are living with autism spectrum disorder (ASD), and they need services and support, now and as they grow into adolescence and adulthood. More can be done to ensure that children with ASD are evaluated as soon as possible after developmental concerns are recognized. Read on to learn more about CDC’s data on ASD. Findings from CDC’s Autism and Developmental Disabilities Monitoring (ADDM) Network help us understand more about the number of children with […]

Powerful Words: Challenged by a Moment

 Posted By Theresa Fitzpatrick The following post was written by Tim Shriver, co-founder of the Spread the Word campaign. In March of 2009, Tim and co-founder Soeren Palumbo, created this annual day of awareness that continues to be led by passionate young people, Special Olympics athletes and Best Buddies participants across the world. When I was in first grade, Loretta Claiborne came to visit my class. She showed us her gold medals from Special Olympics […]

Lima child ambassador for Down syndrome group

By Tara Jones – Jada Hood’s laughter echoes off the Lima Senior hallways as she holds her father’s hand walking from the upstairs preschool to her mother’s classroom. Hood has become a familiar face in the community, and now she has also become the face of an international campaign. Hood, 2, the daughter of James and Chrissy Hood who are both employees of Lima schools, was named one of the 33 ambassadors for Nothing […]

Rare Disease Day 2019!

Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals and anyone who has a genuine interest in rare diseases.

Colorado House OKs bill on medical marijuana use for autism

by Associated Press DENVER — The Colorado House has passed a bill allowing medical marijuana use to treat autism spectrum disorders. The bill had strong bipartisan support, passing 63-0 on Thursday. The Senate is expected to do the same, and Gov. Jared Polis has pledged to sign it. Autism spectrum disorders include autism, Asperger syndrome and other developmental disorders whose symptoms range from mild to severe. Current law allows medical marijuana use for cancer, glaucoma, HIV, PTSD, […]