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Neglected for Too Long: Dental Care for People with Intellectual and Developmental Disabilities

National Council on Disability An independent federal agency making recommendations to the President and Congress to enhance the quality of life for all Americans with disabilities and their families. Neglected for Too Long: Dental Care for People with Intellectual and Developmental Disabilities Fall 2017 This policy brief is designed to provide insight concerning the lack of dental care many people with intellectual and developmental disabilities (I/DD)[1] continue to experience due to a shortage of properly […]

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“The Arc Tank” Competition Grants $200K to Winning Proposals

  Three Chosen from 100+ Submitted To Create New Ways to Improve the Lives of Persons with Disabilities Picture: (From left to right: Steven P. Rosenthal Founder of Changing Lives Fund, Center for Public Representation: Bob Fleischner, Cathy Costanzo, Emily Stephens, YMCA of the North Shore: Meegan O’Neil, Pathways to Inclusive Health Care: Dr. Carol Langer, Jo Ann Simons, CEO of Northeast Arc) (Boston) November 16, 2017. Northeast Arc announced the winners of the final round […]

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Camp Corral Has New Chief Development Officer

Camp Corral, a leading nonprofit advocate for military families, announced today that Lisa Brown has accepted the position as chief development officer. In this role, Brown will lead the organization’s fundraising efforts, with a primary goal to provide more military children with the opportunity of a lifetime. Since its inception in 2011, Camp Corral has provided a free week of summer camp to more than 17,000 children of wounded, injured, ill or fallen military veterans […]

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MDA Venture Philanthropy Grant To Support Development Of ALS Biomarkers

The Muscular Dystrophy Association is pleased to announce the award of an MDA Venture Philanthropy (MVP) grant totaling $233,200 to Scottsdale, Arizona-based Iron Horse Diagnostics to support development of a prognostic test for ALS. This prognostic Such a test could help improve and accelerate clinical trials and speed the development of life-saving drugs to people with ALS (amyotrophic lateral sclerosis). MVP is MDA’s drug development program, which is exclusively focused on funding the discovery and […]

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American Association On Health And Disability

Dedicated to better health for children and adults with disabilities through health promotion and wellness. SUBMISSIONS REQUESTED BY SPECIAL OLYMPICS INTERNATIONAL (SOI) From your colleagues at AAHD. Please feel free to circulate to your constituents and colleagues. Breast cancer is a major public health concern for all women, including women with disabilities. Women with disabilities are as likely to get breast cancer as women in the general population, yet, women with disabilities often face physical, cultural and attitudinal […]

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What Can Twitter Reveal About People with ADHD

Quote: “Understanding the components that some people have or don’t have, the range of coping mechanisms that people use – that all leads to a better understanding of the condition.” What can Twitter reveal about people with attention-deficit/hyperactivity disorder, or ADHD? Quite a bit about what life is like for someone with the condition, according to findings published by University of Pennsylvania researchers Sharath Chandra Guntuku and Lyle Ungar in the Journal of Attention Disorders. […]

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AAHD Frederick J. Krause Scholarship On Health And Disability (2017-2018)

The American Association on Health and Disability (www.aahd.us) is accepting applications for the Frederick J. Krause Scholarship for undergraduate (junior/senior status) and graduate students with disabilities who are majoring in a field related to disability and health. Please feel free to distribute to your colleagues. SCHOLARSHIP PROGRAM CRITERIA: The AAHD Frederick J. Krause Scholarship on Health and Disability is awarded annually to deserving students with a disability pursuing undergraduate/graduate studies (must be at least enrolled […]

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An Ordinary Day: Kids With Rare Genetic Conditions

Life can present challenges that seem insurmountable. Children are not exempt from this, but often through their innocence and willpower we can find inspiration and hope. An Ordinary Day features unforgettable photographs set against intimate conversations, documenting the lives of 27 children living with rare genetic conditions. The book invites us to connect with kids like Ethan, a nonverbal seven-year-old who learns to sign to communicate his needs, five-year-old Madison who has taken her first […]

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Rare Disease Caregiving Study

To study the impact of rare disease on unpaid friends and family members who provide care (known as “family caregivers”), the National Alliance for Caregiving and Global Genes, are launching a “first-of-its-kind” national snapshot of rare disease caregivers. This fall, the two groups plan to release a national survey aimed at collecting feedback from over 1,000 family caregivers of children and adults with rare diseases. The survey will be open from Wednesday, September 13 through […]

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October Is National Audiology Awareness Month

October is National Audiology Awareness Month and the American Academy of Audiology is urging the public to be conscious of hearing health. A recent study by the Lancet commission on dementia, cited nine risk factors for causing dementia and hearing loss was listed as one of the causes. The report also stated that dementia typically starts many years before it is recognized. Hearing impacts the brain and cognitive thinking. One of the factors in maintaining […]