Training First Responders To Respond Bettter

“The SNAP Program makes a vital contribution to the armamentarium of best practices addressing the unique needs of special populations and their ability to thrive and participate in the community. It will become a time-honored component in the first responders’ toolkit.” – Rick Rader, MD, Medical Liaison, SNAP Program BY BRUCE GARNER Even under the best of circumstances, it is challenging to be a good parent, but when your child has special needs, it gets […]

Transitions: Moving from pediatric care to adult care can be tricky. Here are eight questions to ask your doctor to facilitate the process.

Kritz, Fran Neurology Now: October/November 2017 – Volume 13 – Issue 5 – p 10–11 Many neurologic diseases, such as epilepsy, spinal muscular atrophy, muscular dystrophy, or Down syndrome, begin in childhood when patients are seen by pediatric neurologists. What happens when these patients age into adulthood? Do they stay with their pediatric specialist or switch to a neurologist who treats adults or both children and adults? The accepted wisdom is to transition to doctors […]

Don’t Ask Taxpayers to Support Children with Disabilities

AMERICAN ACADEMY OF DEVELOPMENTAL MEDICINE & DENTISTRY BY H. BARRY WALDMAN DDS, MPH, PHD, STEVEN P. PERLMAN DDS, MSCD, DHL (HON) AND MATTHEW COOKE, DDS, MD, MPH “Don’t ask taxpayers to support disabled children: When I was 10 years old, I chose to be child-free because I knew that I would not make a good parent, and at 38 I’m still content with my choice… Parenthood is a choice, not a divine right, and all […]

GW Pharmaceuticals Announces Positive Results from Phase 3 Cannabidiol Trial

GW Pharmaceuticals has announced positive results from the first of two Phase 3 studies of Epidiolex® (cannabidiol or CBD) in the treatment of Dravet syndrome. Median seizure reduction was 39% with Epidiolex versus only 13% with placebo, a scientifically significant finding. In addition, the side-effect profile was acceptable for an anti-epileptic drug and secondary endpoints were supportive of a robust treatment effect. “This is a very important day for the epilepsy community and families struggling […]

Marijuana-Based Drug Found to Reduce Epileptic Seizures

SOURCE THE NEW YORK TIMES By ANDREW POLLACK An experimental drug derived from marijuana has succeeded in reducing epileptic seizures in its first major clinical trial, the product’s developer announced on Monday, a finding that could lend credence to the medical marijuana movement. The developer, GW Pharmaceuticals, said the drug, Epidiolex, achieved the main goal of the trial, reducing convulsive seizures when compared with a placebo in patients with Dravet syndrome, a rare form of […]

Mind-controlled prosthetic arm moves individual ‘fingers’

Physicians and biomedical engineers from Johns Hopkins report what they believe is the first successful effort to wiggle fingers individually and independently of each other using a mind-controlled artificial “arm” to control the movement. The proof-of-concept feat, described online in the Journal of Neural Engineering, represents a potential advance in technologies to restore refined hand function to those who have lost arms to injury or disease, the researchers say. The young man on whom the […]

New Guideline for Treatment of Prolonged Seizures in Children and Adults

CHICAGO, February 9, 2016 – Status epilepticus – continuous or rapid sequential seizure activity for 30 minutes or more – is a medical emergency with a high mortality rate in both children and adults. Prompt and effective treatment is key; therefore the American Epilepsy Society (AES) has released a new guideline to help physicians, hospitals, and health systems treat patients effectively. The guideline is published in the January/February issue of Epilepsy Currents, the AES journal. […]

New Jersey first state to enact ABLE in 2016

Trenton, NJ−Governor Chris Christie has signed ABLE legislation that will allow families the opportunity to set up tax-free 529A savings accounts for disability-related expenses. The bill received unanimous support in votes in both chambers. The legislation was sponsored by Senate President Stephen, Senator Dawn Addiego and Assemblymembers Pamela Lampitt, Louis Greenwald, Valerie Vainieri Huttle, Daniel Benson and Vincent Mazzeo. The New Jersey ABLE legislation follows upon enactment by the federal government of the Stephen Beck, Jr., […]

Prevention, Evaluation, And Management Of Low Bone Density – PART 1

BY PHILIP MAY MD  Prevention, Evaluation, and Management of Low Bone Mineral Density (BMD) Encountered in Adults with Developmental and Intellectual DisabilitiesClinical experience and published reports have shown that low BMD is especially common in adults with developmental disabilities, such as intellectual disability, epilepsy, autism, and cerebral palsy. Abstract For various reasons, high frequency of low bone mineral density (BMD) and increased risk for fracture are often encountered in adults with “medically complex developmental disabilities” […]

How To Organize International Group Travel For Students With Disabilities

BY ERNST VANBERGEIJK, Ph.D., M.S.W  Most non-disabled adults take for granted the ability to travel overseas for business or pleasure. However, for many teens and young adults with disabilities, the ability to travel independently without their parents is a dream. At best, they may have gone on a holiday with their families. They have never traveled to a foreign country with their friends. The benefits of traveling internationally for students with disabilities are numerous. Not […]