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Practice Without Pressure

BY DEBORAH JASTREBSKI Practice Without Pressure™ greatly reduces and, most times, eliminates the need for sedation and restraint. The PWP model includes the individual, the family/caregiver, and the clinician, and introduces the PWP practice specialist into the paradigm. THE NEED You wake up one morning and your tooth hurts. Although it’s not your favorite thing you call your dentist, make an appointment and go get it fixed. You’re nervous but you tell the dentist that, […]

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My Name Is Jackson Fukuda And I Have Arginase Deficiency

I AM A 26-YEAR-OLD GRAPHIC DESIGNER… BY JACKSON FUKUDA This is my story with arginase deficiency. A decent amount of information was told to me by my parents. I felt that they would be the best ones to tell my story when I was diagnosed and how life was for me at a very young age. At a young age they started to notice a big difference between other children my age and myself. I […]

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Developmental Coordination Disorder

The “hidden” facet of autism spectrum disorder BY DR. SHELLEY MARGOW, OTD, OTR/L Clumsiness is an inevitable part of growing up, and all children bump into objects, drop things and sometimes fall in their journey to adolescence and adulthood. But there are some kids whose struggle to fully participate and learn new skills in daily activities at home, in the playground, and in the classroom is ceaseless. The cause is Developmental Coordination Disorder (DCD), a […]

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AMERICA’S TOOTHFAIRY – National Children’s Oral Health Foundation

BY JILL MALMGREN Did you know that pediatric dental disease is the most common, chronic disease among children in the U.S.? More common even than asthma or diabetes? More than 40 percent of children experience tooth decay by the time they reach kindergarten, and the decay rate for children with special needs is even higher. Because tooth decay affects millions of children, it is easy to believe cavities are inevitable and just a normal part […]

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How To Maintain Health While Living With Certain Health Conditions

BY MELISSA A. DISIPIO, MSA, FAAIDD Philadelphia Coordinated Health Care (PCHC) is the Southeastern Pennsylvania Health Care Quality Unit (HCQU) that provides indirect health care supports for people living with intellectual disabilities and/or autism for almost 30 years. Over its existence, PCHC has created several tools, resources and educational forms to help people understand how to care for the physical and behavioral healthcare needs of someone with special needs. PCHC created Health Promotion Activity Plans […]

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The New Generation Of Disability-Competent Dentists

BY DAVID FRAY DDS AND LARA E. RANEY The scarcity of dental providers is attributed to insufficient education in dental schools regarding treatment methods and unique needs of persons with developmental disabilities. Adults with special needs have long been one of the most under treated populations in dentistry. Many pediatric dentists are well equipped to treat children with special needs, but most general dentists are either untrained or unwilling to treat adults due to their […]

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Transitioning To Adult Neurologic Care: Where Do We Go From Here?

BY DAVID ERVIN, JOAN EARLE HAHN AND MIYA ASATO, MD For many individuals with IDD, epilepsy often begins in childhood and has a significant impact on children and families. As children with epilepsy and IDD reach adulthood, while principles have been developed by consensus to guide the child neurologist, no specialized guidelines have been created for the adult neurologist that speak to the unique transition of care needs necessary for successful transition from pediatric to […]

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Children With Disabilities Are Among The Largest Minority Population Without Adequate Oral Healthcare

BY H. BARRY WALDMAN, DDS, MPH, PHD, STEVEN P. PERLMAN, DDS, MSCD, DHL (HON), FACD AND ALLEN WONG, DDS, EDD Numbers The largest minority population in the United States without adequate dental care is individuals with disabilities.1 During the present decade, approximately 56.7 million residents (almost one-in-five members of the population) have some form of disability (including 39.9 million individuals with severe disabilities). Specifically, there are more than 3 million children through age 17 years […]

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Money! Money! Money!

AMERICAN ACADEMY OF DEVELOPMENTAL MEDICINE & DENTISTRY BY H. BARRY WALDMAN DDS, MPH, PHD, STEVEN P. PERLMAN DDS, MSCD, DHL (HON), AND MATTHEW COOKE, DDS, MD, MPH Increasing Need for Services vs. Limiting Taxation “As the principal of a public school, I don’t understand why the parents of general education students have not filed a class action lawsuit demanding that their children have equal access to public money. At our school, we spend about twice […]

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Sex Chromosome Variations

BY VIRGINIA ISAACS COVER, MSW, MBA Mark had always had challenges. As a toddler, he had speech and physical therapy through Early Intervention to address delays in meeting milestones. Although he managed to earn B’s and C’s in elementary school with the assistance of 504 accommodations, by Fifth grade he was falling behind, academically and socially. A developmental pediatrician diagnosed ADHD. Six months later, the school psychologist suggested an evaluation for autism spectrum disorder. Testing […]