CP Research News

Cerebral Palsy Alliance is delighted to bring you this free bulletin of published research into cerebral palsy, as indexed in the NCBI PubMed (Medline) and Entrez (GenBank) databases. The latest issue of CP Research News, back issues and a subscription form are available on the CP Research News page. Please click on this link to the Research Foundation of Cerebral Palsy Alliance website to view the full abstracts of the latest issue. Kind regards, Professor Nadia Badawi AM Macquarie […]

Training First Responders To Respond Bettter

“The SNAP Program makes a vital contribution to the armamentarium of best practices addressing the unique needs of special populations and their ability to thrive and participate in the community. It will become a time-honored component in the first responders’ toolkit.” – Rick Rader, MD, Medical Liaison, SNAP Program BY BRUCE GARNER Even under the best of circumstances, it is challenging to be a good parent, but when your child has special needs, it gets […]

Practice Without Pressure

Practice Without Pressure™ greatly reduces and, most times, eliminates the need for sedation and restraint. The PWP model includes the individual, the family/caregiver, and the clinican, and introduces the PWP practice specialist into the paradigm. BY DEBORAH JASTREBSKI THE NEED You wake up one morning and your tooth hurts. Although it’s not your favorite thing you call your dentist, make an appointment and go get it fixed. You’re nervous but you tell the dentist that, […]

The Case of the 125-Pound, Drooling, Snoring, Gassy, Loud and Silly Girl

ANCORA IMPARO BY RICK RADER, MD ■ EDITOR-IN-CHIEF Most journal case presentations provide building blocks of information. After the initial description, they proceed with the results of diagnostic tests that were ordered. In 1792, British physician Dr. John Howard advised his colleagues, “The examination of a patient should be made by a medical gentleman of the hospital, with the patient before him, his notes to be corrected by himself… and if anything extraordinary or worthy […]

Cerebral Palsy – Pediatric Basics

By Vincent Iannelli, MD – Reviewed by a board-certified physician. Children with cerebral palsy have problems with muscle tone, affecting their ability to keep their balance, posture, and to walk and move. Unlike other medical conditions that can affect a child’s ability to move or walk, with cerebral palsy, the problem isn’t in the child’s muscles or nerves. Instead, damage to the child’s brain itself affects his ability to control his muscles. What Causes Cerebral […]

Toilet Training Children with Special Needs

SOURCE: Adapted from Guide to Toilet Training (American Academy of Pediatrics) The issue of when and how to begin toilet training can be particularly challenging for parents of children with special needs. While no parent wants to push an already challenged child to perform in ways that are impossible, the sense of accomplishment experienced when he does succeed in this important aspect of self-care can make an enormous difference in his level of self-esteem. Perhaps […]

From Our Family To Yours

For Exceptional Parent magazine’s 2016 Family, Community and the Holidays issue, the Chambers family—Dr. Hank, Jill, sean and Dr. reid—share their experiences, views and words of wisdom with other families touched by special needs. It is a privilege to be a part of this interview with the wonderful Chambers family for Exceptional Parent magazine’s latest Family & Community issue. I have known my friends, Hank Chambers, MD and Jill Chambers, for over 20 years and […]

Fitness for Children with Physical Disabilities

THE FITNESS PRIORITY BY KRISTIN MCNEALUS, DPT, MBA, ATP Exercise can also lower risk for complications associated specifically with spinal cord injury and spina bifida, such as the development of some forms of cancer, respiratory illness, and UTI. Are you an Exceptional Parent of a child with a spinal cord injury, spina bifida, or cerebral palsy? It is important to encourage your child to get a sufficient amount of exercise! Even if it is difficult, […]

Redefining the Role of People with Disabilities in Healthcare Research

Source My Life Without Limits by Karin Hitselberger What is the first thing that comes to your mind when you hear the word, “research?” Maybe you think of book reports and term papers, or maybe your mind goes to Hollywood depictions of people in white coats running testing laboratories. Perhaps, you think of something else entirely. Whatever your association with the word, research means many different things to many different people. It can sometimes be […]

Higher Learning

REPRINTED FROM EXCEPTIONAL PARENT MARCH, 2012 By Anastasia Somoza Several years after EP Magazine featured the Somozas as its cover story, Anastasia Somoza has graduated from Georgetown University and is now headed for the prestigious London School of Economics. But not before sharing a significant experience with others that just may make a big difference in their educational lives. My name is Anastasia Somoza and I am 28 years old and live in New York […]