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Internships Ease Transition To Post-21 Life

BY RACHEL EZEKIEL-FISHBEIN Internships can pave the way for a more satisfying life with rich connections to community and meaningful experiences, and possibly employment. “Good morning. It’s nice to see you. I have a delivery for you. Would you like a newspaper?” asks Annie Kramer-Golinkoff, using head switches to access her Dynavox augmentative communication device. Annie maneuvers the hallways of JEVS’ Human Services’ administrative offices in downtown Philadelphia expertly with her power wheelchair, stopping at […]

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Don’t Give Up

In the beginning of my journey of accepting my daughter’s diagnosis of hemiplegic cerebral palsy, I had a very difficult time seeing all the things she was capable of doing. I spent my days focused on the can’ts, not the cans. It was hard on me because I claimed to be positive and encouraging on the outside, but on the inside, I was battling negative thoughts about her future. When she was very young, I […]

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Addressing Chronic Pain: A Five-Step Team Approach

BY GRACE L. FRANCIS AND VICTORIA MCMULLEN Living with someone who has chronic pain is difficult; living with someone who is in pain and also has challenging behavior and limited communication abilities can be downright miserable for all involved. Ron, age 35, has numerous educational and medical diagnoses, including mixed type cerebral palsy, spina bifida, intellectual disability, and autism. He also experiences many types of chronic pain related to conditions such as osteoarthritis, tempomandibular joint […]

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Australia first: cord blood research may unlock future treatments for cerebral palsy

Australia’s first clinical trial of stem cell infusion from cord blood as a possible treatment for cerebral palsy (CP) is commencing in Melbourne. The safety trial, led by the Murdoch Childrens Research Institute (MCRI), will recruit patients nationally and take place at The Royal Children’s Hospital. Expected to take two years, the study is being funded by the Cerebral Palsy Alliance Research Foundation and Cell Care, Australia’s largest private cord blood bank. It is the […]