Who would we be without our sisters and brothers?

by Lynne Pearson When Leila was four years old she must have decided that one younger brother simply was not enough and so she confidently asked me to provide her with a set of twin siblings, a boy and a girl. I smiled at my young daughter in the knowledge that Nick and I were hoping to have a third child and said,  “I’ll see what I can do.”. A few short weeks later I […]

Disability Stigma and Your Patients

For people with disabilities, stigma can be a major barrier to participation. Stigmatizing attitudes about disabilities can also affect relationships between patients and providers. However, health care providers can be allies with their patients and help reduce the impact of stigma. What Is Disability Stigma? The word stigma comes from the Greek word for “mark.” Generally, stigma is a negative set of beliefs about people with specific characteristics. For example, ethnic or sexual minorities, or people […]

Building Supportive, Person-Centered Communities For Adults With Autism

According to the Centers for Disease Control and Prevention (CDC), 500,000 teens with autism will age into adulthood over the next decade and housing will become one of the greatest concerns for them, their parents and other caregivers. Right now, an estimated 80,000 adults with autism in the United States are on waiting lists for publicly-funded residential placements and services. The waiting periods can run up to 15 years and the number of those waiting […]

Mom, Get Out of My Life…

by Colleen Berlingieri I was in a bookstore the other day when I saw the title of a book that almost made me snort latte out of my nose.  It was called Get Out of My Life, but First Could You Drive Me and Cheryl To The Mall?   by Dr. Anthony E. Wolf PhD. This title is a perfect description of my current reality with my son. Skills vs. Swagger Geordi has a developmental disability.  He […]

Starting ’em Young

Young Athletes engages families by highlighting the power of play. Young Athletes includes a series of structured physical activities, songs and games to teach basic motor development skills for children with and without intellectual disabilities, ages 2 to 7 years old. BY REBECCA RALSTON In a small community near Phitsanulok, Thailand, a young boy named Kongpob Yangkam lives with his grandparents and 17-year-old sister. Kong, as his family lovingly calls him, has intellectual disabilities and […]

Neglected for Too Long: Dental Care for People with Intellectual and Developmental Disabilities

National Council on Disability An independent federal agency making recommendations to the President and Congress to enhance the quality of life for all Americans with disabilities and their families. Neglected for Too Long: Dental Care for People with Intellectual and Developmental Disabilities Fall 2017 This policy brief is designed to provide insight concerning the lack of dental care many people with intellectual and developmental disabilities (I/DD)[1] continue to experience due to a shortage of properly […]

ADAPT Demands the FDA to Stop Shocking Disabled People into Submission

WHO: National ADAPT WHAT: ADAPT Demands the FDA to Stop Shocking Disabled People into Submission WHERE: In front of FDA Director Scott Gottlieb’s house, Pennsylvania Ave NW & L St NW, Washington DC 20037 WHEN: Friday, March 9, 2018, happening now DISABILITY RIGHTS GROUP DEMANDS THE FDA ISSUE LONG-DELAYED REGULATIONS 03/09/2018 – Washington, D.C. Members of the national disability rights group ADAPT are outside the home of FDA Director Scott Gottlieb demanding that he release the regulations that would […]

Forgetting Milestones and Learning to Measure Progress…a New Way of Thinking! #Friendships

By Mary Ellen Bogucki I believe friendship can be a difficult concept to maneuver for anyone, but in the special needs and Autism community there are times it may seem impossible. From the moment my daughter, Bree, was born, she had an instant friend in that of her sister, Kailey. Kailey was 2 ½ years older than Bree and was already a “little mother” in the body of a toddler. Kailey loved dolls, she loved […]

RRTCDD 2018 Health and Wellness Series Webinar

March 15th, 2018  (1pm-2pm CST) Partnering to Transform Healthcare with People with Intellectual and Developmental Disabilities (Tamar Heller, PhD and Sarah Ailey, PhD, RN, CDDN, APHN-BC) Register Disparities in treatment of people with intellectual disability in health care leads to increased morbidity and mortality and costs, and decreased quality of life. Proactive work for practical, implementable solutions is needed, as well as consensus and action plans on best practices and research and policy agendas. The Partnering […]

Statement on Sexual Violence and Abuse from The National Alliance for Direct Support Professionals

  FOR IMMEDIATE RELEASE The National Alliance for Direct Support Professionals (NADSP) is a national non-profit organization whose mission is to elevate the status of direct support professionals by improving practice standards; promoting system reform; and advancing their knowledge, skills and values. NADSP understands that abuse, neglect, and exploitation are serious issues in systems of services and support for people with disabilities. Decades of research suggest an ongoing crisis; there is an alarmingly high rate of […]