People with disabilities direct service providers what they need to know about COVID-19?

Direct Service Providers (DSPs) include personal care attendants, direct support professionals, paraprofessionals, therapists, and others. They provide a wide variety of home and community-based, health-related services that support people with disabilitiesexternal icon. Services provided may include personal care, activities of daily living, access to health services, and more. DSPs have close and consistent contact with people with disabilities and those providing healthcare support services in day and residential programs for people with disabilities. DSPs are […]

Often Overlooked In Pandemic Response Are People With Intellectual Disabilities

Peter Prater’s family wasn’t thinking about COVID-19 when the call came that he had been taken to the hospital with a fever. It was April, and the Tallahassee Developmental Center, where Prater lives, hadn’t yet had any COVID-19 diagnoses. Prater, 55, who has Down syndrome and diabetes, became the Florida center’s first known case, his family said. Within two weeks, more than half of the roughly 60 residents and a third of the staff had […]

Symptoms of Down Syndrome in Babies and Children

Approximately one in 700 babies is born with Down syndrome, making it the most common chromosomal condition in the United States. “People with Down syndrome have an extra copy of chromosome 21,” says Amy Houtrow, M.D., Ph.D., medical director of Children’s Hospital of Pittsburgh of UPMC’s Rehabilitation Institute and member of the American Academy of Pediatrics’ (AAP) Council on Children with Disabilities. This additional genetic material disrupts typical mental and physical development, and it may […]

School Decision-Making Tool for Parents, Caregivers, and Guardians

Many parents, caregivers, and guardians face new and difficult choices about how their child will return to school in the fall, such as deciding between in-person and virtual learning. This tool is designed to help parents, caregivers, and guardians weigh the risks and benefits of available educational options to help them make decisions about sending their child back to school. It is organized to provide parents and caregivers with: Information on COVID-19 and why safely […]

Since Schools Have Closed Parents of Special Needs Children ‘wearing many hats’

With 8-year-old triplets who go to school in Encinitas, each one on the autism spectrum, Jeff Ladman and his wife Tara felt “like the rug’s been pulled out from underneath” them when the novel coronavirus pandemic closed schools in mid-March and reduced therapy sessions to online only. Two of their sons, second-graders Keith and Holden, have class with special education and mainstream teachers at Flora Vista and are “high functioning,” Ladman said. The third, Jarrett, […]