Popular

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How to Raise Funds for Children with Disabilities

NEW RESOURCE BY MELANIE DAVIS The Funding Guide for Children with Disabilities focuses on the author’s proven process for applying for support from the various funding sources that assist children. It also includes a directory of over 200 funding sources divided into three categories: National, State and Wish Funders. For (more…)

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A Family Guide to Children’s Mental Health Services

 THE STATEWIDE PARENT ADVOCACY NETWORK INTRODUCTION We are families of children with special health care needs, including mental health needs. We are not here to tell you what to do with your child, because you are the expert on (more…)

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I’m Just His Sister

SIBLING TIES BY PAIGE TALHELM What makes things perfect is when he and I can just sit around and watch TV or listen to music together. We don’t have to talk, or we don’t have to be working on his socialization skills. As the end of the school year approaches, (more…)

Special

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Engineering A Very Special Project

For 25 years, University of Tulsa (TU) engineering students have completed their senior project by working with children with special needs, designing and building every day products in a way that is easy for them to use. This year, students designed and built a small portable kitchen to offer a (more…)

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INDEPENDENT EDUCATIONAL EVALUATIONS: Will the Real Regs please Stand?

INDEPENDENT EDUCATIONAL EVALUATIONS BY STEVE C. IMBER, PH. D. The issue raised by OSERS Letter to Baus addresses a very important issue, namely whether the parent can include skills not addressed by the SDs evaluation within an Independent Educational Evaluation. On February 23, 2015 The Office of Special Education and (more…)

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Autism: A New Theory

BY JOHN J. CANNELL, MD It’s time to look at autism a new way – with a new theory. If the CDC’s worst-case scenario of a 12 percent yearly increase in the incidence of autism proves to be true, we will be in serious trouble in terms of caring (more…)

Parenting

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Songs Of Love Foundation

Give a song today, change a life forever™ The Songs of Love Foundation is a nonprofit organization dedicated to providing, free of charge, personalized songs for children and teens currently facing tough medical, physical or emotional challenges. My two kids got their personal songs after a couple of months they were born. (more…)

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Transition Begins The First Day Of School

BY RACHEL EZEKIEL-FISHBEIN • PHOTOS PROVIDED BY HMS SCHOOL In January, Amy and Phil Warmflash received the call that a space had opened up at the adult  residential facility they had selected with their 21-year-old daughter, Jordana (Jordie) a full five months before she was to graduate from HMS School for (more…)

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Parents See Adult Children Take Wing in L’Arche

BY BETHANY KEENER • PHOTOS PROVIDED BY L’ARCHE With 18 communities consisting of one or more homes in the United States, L’Arche provides support for daily living and a community of belonging where people with and without intellectual disabilities share their lives together. When Donna and Manny Ganzarain were told (more…)

Rick Rader MD

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Look At Us, We’re Walking

ANCORA IMPARO RICK RADER, MD ■ EDITOR-IN-CHIEF “Look at us, we’re walking! Look at us, we’re talking! We who’ve never walked or talked before…” “Look at us, we’re laughing. We’re happy and we’re laughing. Thank you from our hearts, forever more.” “There are so many other children, Who only speak with a silent prayer. For

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BMOC

ANCORA IMPARO RICK RADER, MD ■ EDITOR-IN-CHIEF Maybe we should revisit the significance of the iconic BMOC (Big Man on Campus) and decide that it should really mean, “Be Mindful Of Compassion.” The images are forever emblazoned in my memory. BMOC (Big Man on Campus). Lettermen. Varsity athletes. They were tall (more…)

rader

MEOW

By Rick Rader, MD Patti Wade knew we needed to understand dementia and how it manifests itself in our already vulnerable population. How we have to modify and address our own behaviors, the environment, stressors, accommodations and the way we communicate and react. Pablo Picasso, who knew a thing or two about (more…)

ep Special Needs Connect

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EP Special Needs Connect

It’s Finally Here! Social Collaboration for Exceptional Parents … for Exceptional People … for Exceptional Physicians … for Exceptional Patients ♦ Providing Information, Education & Connectivity ep Special Needs Connect (epSNC) fosters participation and interactivity (more…)

Ask the Expert

ep Ask the Expert is an online forum in which respected experts and other people like you within the special needs community, can create or participate in support groups and discussions regarding specific topics that interest you. Consult with people like you, and get expert guidance on a (more…)

Parents/Caregiver Bulletin Board

The goal here is to combine content, data and the conversation on the same page in a seemeless way to enable new kinds of connections and relationships that people can have. Comments are welcomed and encouraged on this site, but there are some instances in which comments will be deleted as (more…)

Special Needs Events

ep Special Needs Events  is a powerful gathering of events specifically geared to the special needs community, including educational, promotional, galas, fund-raisers, trade shows, exhibitions, plus unique networking opportunities. Events where our readers can explore the ever-evolving landscape of our community. Click on the calendar below to view (more…)

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ep Special Needs Connect “Search & Respond”

ep Special Needs Connect’s Search & Respond enables you to reach out and interact with other families and caregivers who are just like you and can help you, using their own knowledge and experience. As with the people in the following situations, you will be able to post (more…)

Healthcare

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Songs Of Love Foundation

Give a song today, change a life forever™ The Songs of Love Foundation is a nonprofit organization dedicated to providing, free of charge, personalized songs for children and teens currently facing tough medical, physical or emotional challenges. My two kids got their personal songs after a couple of months they were born. (more…)

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Genome Sequencing:Hopes And Challenges Of A New Technology

GENETIC ALLIANCE – BY REBECCA DOWNEY & SHARON ROMELCZYK Nearly every newborn baby born in the United States receives screening for certain treatable genetic conditions between 24 to 48 hours after birth. This routine process of newborn screening is a state run public health program that reaches nearly four (more…)

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Songs Of Love Foundation

Give a song today, change a life forever™ The Songs of Love Foundation is a nonprofit organization dedicated to providing, free of charge, personalized songs for children and teens currently facing tough medical, physical or emotional challenges. My two kids got their personal songs after a couple of months they were born. (more…)

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Providing Dental Care For Patients With Disabilities

BY CARRIE STETLER With a shortage of special needs facilities, Rutgers School of Dental Medicine clinic serves a vulnerable population. Dennis Fitzpatrick had 17 cavities by the time he arrived at the Rutgers School of Dental Medicine’s special care center seven years ago. Fitzpatrick, 27, who suffers from cerebral palsy, (more…)

Wellness

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Nutrition Labels: Fact or Fiction?

HEALTHY CHOICES, HEALTHY LIFESTYLES BY BARBARA B. MINTZ, MS, RD It is important to understand how easy it is to be persuaded by the food industry and how their labeling can affect our food behaviors. We are faced with having to make choices every day that will affect our health. (more…)

Education

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Transition Begins The First Day Of School

BY RACHEL EZEKIEL-FISHBEIN • PHOTOS PROVIDED BY HMS SCHOOL In January, Amy and Phil Warmflash received the call that a space had opened up at the adult  residential facility they had selected with their 21-year-old daughter, Jordana (Jordie) a full five months before she was to graduate from HMS School for (more…)

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ep 2015 Teachers of the Year

BY VANESSA B. IRA, EDITOR EP MAGAZINE Three outstanding Teachers of the Year are being honored in this edition of EP (Exceptional Parent) magazine, our Annual Schools & Camps Issue. These are teachers whose work requires extraordinary patience, sometimes in the midst of constant emotional outbursts. Teachers who must focus (more…)

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Everyone Can FLY

GENETIC ALLIANCE BY SHARON ROMELCZYK “Freedom.” When asked to describe the experience of paragliding in one word, Chris Santacroce chose “Freedom.” Mr. Santacroce is the founder of Project Airtime (www.projectairtime.org), a nonprofit organization located in Utah that provides adapted tandem paragliding rides to kids and adults with a (more…)

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Parents See Adult Children Take Wing in L’Arche

BY BETHANY KEENER • PHOTOS PROVIDED BY L’ARCHE With 18 communities consisting of one or more homes in the United States, L’Arche provides support for daily living and a community of belonging where people with and without intellectual disabilities share their lives together. When Donna and Manny Ganzarain were told (more…)

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Money

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An Opportunity for a Living Wage for Individuals on the Autism Spectrum? Electronics Recycling & Refurbishing

BY ERNST VANBERGEIJK, PH.D., M.S.W. Without specific job training, individuals on the autism spectrum face rather bleak employment prospects. At best, the employment rate is 45 percent for this population. Anecdotal reports find that only about 10 percent of  individuals on the autism spectrum find employment. Often, employment is part-time, minimum (more…)

Mobility

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Pressure Mapping For Wheelchair Users

BY DR. KIRSTEN DAVIN, OTD, OTR/L, ATP, SMS As a parent or caregiver of a child who utilizes a wheelchair, one understands the constant struggle of incorporating comfort, function and safety within a child’s seating system. The threat of skin breakdown or pressure related wounds is real and can create a life-threatening (more…)

Mobility Ventures Recognized by National Automobile Dealers Association

Mobility Ventures Recognized by National Automobile Dealers Association Oct 28, 2014 Mobility Ventures Proudly Joins NADA’s Long History of Commitment to Quality and Ethics (SOUTH BEND, Ind.) – Mobility Ventures LLC, designer and manufacturer of the acclaimed MV-1, the only American vehicle purpose-built and designed from the (more…)

Designing a Child-centered and Accessible Home

By Deborah Pierce, AIA, CAPS In the accessible home, disabilities become abilities because barriers cease to exist. This is the possibility of the accessible home. Photos by: Kathy Tarantola Every parent is exceptional! Our kids challenge us to expand our limits – to be more patient, more tactful, (more…)

Military

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Saying Our Goodbyes

PUZZLES & CAMO BY SHELLY HUHTANEN No one told me that one of the hardest things to do with a PCS move was saying goodbye to your child’s team. It has taken a small village to care for my son. Broden has a BCBA, ABA tutor, special education teacher and (more…)

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Brain training induces lasting brain & mental health gains for veterans, civilians with brain injury

In the first study of its kind, veterans and civilians with traumatic brain injury showed improved cognitive performance and psychological and neural health following strategy-based cognitive training. The Department of Defense-funded study, published this week in Neuropsychological Rehabilitation, was conducted by an interdisciplinary team of cognitive neuroscientists, rehabilitation specialists, and (more…)

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President Message

Editorial

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Look At Us, We’re Walking

ANCORA IMPARO RICK RADER, MD ■ EDITOR-IN-CHIEF “Look at us, we’re walking! Look at us, we’re talking! We who’ve never walked or talked before…” “Look at us, we’re laughing. We’re happy and we’re laughing. Thank you from our hearts, forever more.” “There are so many other children, Who only speak with a silent prayer. For

New Technology & Products

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SNAPTYPE APP FOR OCCUPATIONAL THERAPY

SnapType is an app designed for children with dysgraphia, poor grasping and fine motor skills who struggle with writing. Students can complete school worksheets with the help of an iPad or iPhone. With SnapType, students can take a picture of their worksheets, or import worksheets from anywhere on their device. (more…)

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