Neglected for Too Long: Dental Care for People with Intellectual and Developmental Disabilities

National Council on Disability An independent federal agency making recommendations to the President and Congress to enhance the quality of life for all Americans with disabilities and their families. Neglected for Too Long: Dental Care for People with Intellectual and Developmental Disabilities Fall 2017 This policy brief is designed to provide insight concerning the lack of dental care many people with intellectual and developmental disabilities (I/DD)[1] continue to experience due to a shortage of properly […]

ADAPT Demands the FDA to Stop Shocking Disabled People into Submission

WHO: National ADAPT WHAT: ADAPT Demands the FDA to Stop Shocking Disabled People into Submission WHERE: In front of FDA Director Scott Gottlieb’s house, Pennsylvania Ave NW & L St NW, Washington DC 20037 WHEN: Friday, March 9, 2018, happening now DISABILITY RIGHTS GROUP DEMANDS THE FDA ISSUE LONG-DELAYED REGULATIONS 03/09/2018 – Washington, D.C. Members of the national disability rights group ADAPT are outside the home of FDA Director Scott Gottlieb demanding that he release the regulations that would […]

Forgetting Milestones and Learning to Measure Progress…a New Way of Thinking! #Friendships

By Mary Ellen Bogucki I believe friendship can be a difficult concept to maneuver for anyone, but in the special needs and Autism community there are times it may seem impossible. From the moment my daughter, Bree, was born, she had an instant friend in that of her sister, Kailey. Kailey was 2 ½ years older than Bree and was already a “little mother” in the body of a toddler. Kailey loved dolls, she loved […]

RRTCDD 2018 Health and Wellness Series Webinar

March 15th, 2018  (1pm-2pm CST) Partnering to Transform Healthcare with People with Intellectual and Developmental Disabilities (Tamar Heller, PhD and Sarah Ailey, PhD, RN, CDDN, APHN-BC) Register Disparities in treatment of people with intellectual disability in health care leads to increased morbidity and mortality and costs, and decreased quality of life. Proactive work for practical, implementable solutions is needed, as well as consensus and action plans on best practices and research and policy agendas. The Partnering […]

Statement on Sexual Violence and Abuse from The National Alliance for Direct Support Professionals

FOR IMMEDIATE RELEASE The National Alliance for Direct Support Professionals (NADSP) is a national non-profit organization whose mission is to elevate the status of direct support professionals by improving practice standards; promoting system reform; and advancing their knowledge, skills and values. NADSP understands that abuse, neglect, and exploitation are serious issues in systems of services and support for people with disabilities. Decades of research suggest an ongoing crisis; there is an alarmingly high rate of physical […]

Music Therapy and Autism: Does it Work? Yes! Here’s Why (and How)

by Patty Shukla  In my more than 20 years as a children’s educational music professional, I have found that one question gets asked over and over again. “Miss Patty, do autistic children love music as much as your other students do?” Yes. The fact is that nearly all children have an inherent love of learning about and making music. From singing to dancing to playing musical instruments, kids of every description and from every walk of […]

Back To The Basics

The food you eat can either be the safest and most powerful form of medicine or the slowest form of poison.” ~ ann Wigmore BY ADEOLA SONAIKE, PHD, MPH, CHES The Family Resource Network launched The Center on Nutrition and Disability, which aims to further assist families and professionals with fostering a healthy relationship with food for people with special health care needs, chronic conditions, and their caregivers. One of the biggest issues people face […]

The Resilient Caregiver

BY LAUREN AGORATUS, M.A. TAKING CARE OF YOURSELF WHILE CARING FOR ANOTHER Did you know that November of each year is National Family Caregivers Month by presidential proclamation? In part the proclamation reads: “Whereas, the primary source of community-based services and the cornerstone of our long-term care system are care recipients’ family members, friends and neighbors who help their loved ones maintain their independence and their quality of life; and…according to the National Alliance for […]

Meet Rachael Wrobel

by Colleen Berlingieri I first met Rachael at a bowling alley.  She is a support worker for people with disabilities and she was there with a client. At the time, I was looking for someone to work with my son and Rachael was highly recommended. Acquaintances told me that she was a safe driver, filled out paperwork on time and was very engaged with her clients. She sounded perfect, so I walked over to meet her. I waited […]

PCPID Releases 2017 Report

The President’s Committee for People with Intellectual Disabilities (PCPID) recently released its 2017 Report, “America’s Direct Support Workforce Crisis: Effects on People with Intellectual Disabilities, Families, Communities and the U.S. Economy.” The NADSP (The National Alliance for Direct Support Professionals) is proud to have assisted the University of Minnesota’s Research and Training Center on Community Living in preparing this report and especially proud to highlight the work from some of our certified direct support professionals […]