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Down Syndrome And Alzheimer’s Research—Find Ways To Connect

Many, but not all, people with Down syndrome develop Alzheimer’s disease when they get older. There are several ongoing research studies and clinical trials exploring the link between Down syndrome and Alzheimer’s disease. For Down Syndrome Awareness Month, learn more about research opportunities for people with Down syndrome by: Joining DS-Connect®, a voluntary, confidential, online registry from the Eunice Kennedy Shriver National Institute of Child Health and Human Development. You, your legally authorized representative, or your […]

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Odds and Evens Playing Nicely Together

ANCORA IMPARO BY RICK RADER, MD ■ EDITOR-IN-CHIEF Unified Sports provides people with and without ID (intellectual disabilities) the opportunity to play on the same sports team, creating a space for friendships, physical activity and fun. The classic image of the young girl with Down syndrome running with determination across the finish line to the cheers of her families, friends and coaches has always done what it is intended to do—let you know of the […]

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Parents & Teachers Can Combat Bullying Together

BY KAREN KABAKI-SISTO, M.S. CCC-SLP Along with academic achievement, a goal of the educational experience is to learn how to have successful social relationships both inside and outside of the classroom that continue through adulthood. However, physically seating a student into a classroom –mainstream or self-contained –does not automatically ensure social acceptance. Problems with learning and communication can cause a child with special needs to be misunderstood, left out, teased, and/or bullied, leading to behavioral […]

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Tips For Talking With Your Child With Special Needs About Tragedy

With recent tragedies in the news, many children, including those challenged with special needs, are exposed to trauma through the media and in conversations. The Episcopal Center for Children (ECC), a nonprofit school serving children with special needs ages 5-14 in the Washington, DC area, offers some advice on how to talk with your child about tragedy. “Children hear information from other children and from the activities around them. Your child will pick up information […]

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Life with Down syndrome is still worth living

Down syndrome screening isn’t about public health. It’s about eliminating a group of people By Renate Lindeman June 16, 2015 Renate Lindeman is the spokesperson for Dutch parent group Downpride. She lives in the Netherlands. Upon delivering my first child 11 years ago, I heard the words “Down syndrome,” and my world collapsed. Visions of children sitting passively in a corner watching life go by, not participating, kept me awake those first nights as a […]

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Study Finds Having a Child with Down Syndrome a Positive Experience

Only younger siblings struggled in some cases, which researchers said wasn’t surprising. MONDAY, March 21, 2016 (HealthDay News) — Families of children with Down syndrome face challenges, but by and large their experiences are positive ones, a new study suggests. Researchers found that in 87 percent of families they surveyed, everyone — parents and siblings — said they loved their family member who had Down syndrome, and almost as many families said they felt pride […]

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Growth Charts for Children with Down Syndrome in the United States

A CDC-funded study in Pediatrics provides new growth charts for children with Down syndrome in the United States. Healthcare providers can use these new charts to monitor growth among children with Down syndrome and assess how well a child with Down syndrome is growing when compared to peers with Down syndrome. Read the abstract of the paper here. What did we already know? Children with Down syndrome have a different growth pattern compared to children […]

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New Jersey first state to enact ABLE in 2016

Trenton, NJ−Governor Chris Christie has signed ABLE legislation that will allow families the opportunity to set up tax-free 529A savings accounts for disability-related expenses. The bill received unanimous support in votes in both chambers. The legislation was sponsored by Senate President Stephen, Senator Dawn Addiego and Assemblymembers Pamela Lampitt, Louis Greenwald, Valerie Vainieri Huttle, Daniel Benson and Vincent Mazzeo. The New Jersey ABLE legislation follows upon enactment by the federal government of the Stephen Beck, Jr., […]

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Key Findings: Gastroschisis – a Serious Birth Defect – Continues to Increase

New CDC research shows that the occurrence of gastroschisis, a birth defect where a baby’s intestines stick outside of the body through a hole beside the belly button, continues to increase over time. Importantly, the causes for the continued increase in the number of babies born with gastroschisis are unknown, and public health research is urgently needed to uncover more clues. You can read the article at www.cdc.gov/mmwr or read more below for a summary […]

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Down’s Syndrome People Risk ‘Extinction’ At The Hands Of Science, Fear and Ignorance

SOURCE: The Telegraph By Tim Stanley Society doesn’t do enough to show women carrying a baby with Down’s that the life inside them is precious, intelligent and capable of so much A painting hangs in the Metropolitan Museum of Art, New York called The Adoration of the Christ Child. Created in the 16th century by a Flemish artist, what stands out in this sublime presentation of the Nativity is the detail of the characters standing […]