GW Pharmaceuticals Announces Positive Results from Phase 3 Cannabidiol Trial

GW Pharmaceuticals has announced positive results from the first of two Phase 3 studies of Epidiolex® (cannabidiol or CBD) in the treatment of Dravet syndrome. Median seizure reduction was 39% with Epidiolex versus only 13% with placebo, a scientifically significant finding. In addition, the side-effect profile was acceptable for an anti-epileptic drug and secondary endpoints were supportive of a robust treatment effect. “This is a very important day for the epilepsy community and families struggling […]

Marijuana-Based Drug Found to Reduce Epileptic Seizures

SOURCE THE NEW YORK TIMES By ANDREW POLLACK An experimental drug derived from marijuana has succeeded in reducing epileptic seizures in its first major clinical trial, the product’s developer announced on Monday, a finding that could lend credence to the medical marijuana movement. The developer, GW Pharmaceuticals, said the drug, Epidiolex, achieved the main goal of the trial, reducing convulsive seizures when compared with a placebo in patients with Dravet syndrome, a rare form of […]

Mind-controlled prosthetic arm moves individual ‘fingers’

Physicians and biomedical engineers from Johns Hopkins report what they believe is the first successful effort to wiggle fingers individually and independently of each other using a mind-controlled artificial “arm” to control the movement. The proof-of-concept feat, described online in the Journal of Neural Engineering, represents a potential advance in technologies to restore refined hand function to those who have lost arms to injury or disease, the researchers say. The young man on whom the […]

New Guideline for Treatment of Prolonged Seizures in Children and Adults

CHICAGO, February 9, 2016 – Status epilepticus – continuous or rapid sequential seizure activity for 30 minutes or more – is a medical emergency with a high mortality rate in both children and adults. Prompt and effective treatment is key; therefore the American Epilepsy Society (AES) has released a new guideline to help physicians, hospitals, and health systems treat patients effectively. The guideline is published in the January/February issue of Epilepsy Currents, the AES journal. […]

New Jersey first state to enact ABLE in 2016

Trenton, NJ−Governor Chris Christie has signed ABLE legislation that will allow families the opportunity to set up tax-free 529A savings accounts for disability-related expenses. The bill received unanimous support in votes in both chambers. The legislation was sponsored by Senate President Stephen, Senator Dawn Addiego and Assemblymembers Pamela Lampitt, Louis Greenwald, Valerie Vainieri Huttle, Daniel Benson and Vincent Mazzeo. The New Jersey ABLE legislation follows upon enactment by the federal government of the Stephen Beck, Jr., […]

Prevention, Evaluation, And Management Of Low Bone Density – PART 1

BY PHILIP MAY MD  Prevention, Evaluation, and Management of Low Bone Mineral Density (BMD) Encountered in Adults with Developmental and Intellectual DisabilitiesClinical experience and published reports have shown that low BMD is especially common in adults with developmental disabilities, such as intellectual disability, epilepsy, autism, and cerebral palsy. Abstract For various reasons, high frequency of low bone mineral density (BMD) and increased risk for fracture are often encountered in adults with “medically complex developmental disabilities” […]

How To Organize International Group Travel For Students With Disabilities

BY ERNST VANBERGEIJK, Ph.D., M.S.W  Most non-disabled adults take for granted the ability to travel overseas for business or pleasure. However, for many teens and young adults with disabilities, the ability to travel independently without their parents is a dream. At best, they may have gone on a holiday with their families. They have never traveled to a foreign country with their friends. The benefits of traveling internationally for students with disabilities are numerous. Not […]

Alternatives To Out-Of-Home Placement For Families

BY LAUREN AGORATUS, M.A. Families and individuals need to visualize what they want as goals to see if the program is a good “fit” and if they can picture the person in that environment. The American Academy of Pediatrics (AAP) just published “Out of Home Placements for Children and Adolescents with Disabilities.” This document provides compassionate but incomplete guidance on a difficult decision for families, and presents out-of-home placement as a last resort. Some placements […]

Going Solo

BY KIMBERLEE RUTAN MCCAFFERTY To the casual onlooker it was not a remarkable scene. A middle-aged mom trudging through the rain, huge beach bag slung precariously over her shoulder while clutching the hands of a ‘tween and a younger son, heading for the relative paradise of a movie theater overhang. If anyone had cared to look they would have viewed a grim determination in her eyes, a desire to reach her destination etched into the […]