Scientists find new approach that shows promise for treating cystic fibrosis

NIH-funded discovery uses common antifungal drug to improve lungs’ ability to fight infection. Researchers say a widely-used antifungal drug may hold promise for treating people with cystic fibrosis, a life-threatening genetic disorder that causes serious damage to the lungs. In studies using human cells and animals models, the researchers found that the medication, called amphotericin, helps lung cells function in a way that could make it easier for patients to fight chronic bacterial lung infections […]

5 Reasons to Consider a Special Needs Trust

BY Dawn Doebler, MBA, CPA, CFP®, CDFA®, Senior Wealth Advisor Here are 5 common reasons for establishing a special needs trust that applies to your family member with a disability. In my last article, I outlined the benefits of ABLE accounts. For many families, ABLE accounts sufficiently meet their desire to provide assets for special needs family members. In higher net worth families, ABLE accounts are the first step in structuring a long-term financial plan […]

Mobility Devices for Young Children

What are Kiddie Canes, Pre-Canes, and Alternative Mobility Devices? The long cane used by some people with visual impairments has a white shaft, a black handle, and is red near the bottom. The long cane provides a traveler with information about the ground in front of him as he moves. There are several alternative types of mobility devices that children with visual impairments who are very young or who have additional disabilities can utilize. These […]

Becoming A Family Advisor: Are you a parent that wants to advocate for change?

As a parent you have much to offer, teach, and share. You bring unique experiences, perspectives, and expertise. Everyone benefits when families and providers work together to improve healthcare, education, and community life for children with special health and/or developmental needs. We hope to give you general information and guidance on what’s involved in becoming an effective family advisor, no matter what setting you choose. A family advisor is a parent or other family member who […]

Training First Responders To Respond Bettter

“The SNAP Program makes a vital contribution to the armamentarium of best practices addressing the unique needs of special populations and their ability to thrive and participate in the community. It will become a time-honored component in the first responders’ toolkit.” – Rick Rader, MD, Medical Liaison, SNAP Program BY BRUCE GARNER Even under the best of circumstances, it is challenging to be a good parent, but when your child has special needs, it gets […]

Youth Empowerment Groups Encourage Self-Advocacy

Groups for youth and young adults may provide opportunity for building a foundation of skills to address core concepts that enable youth to have meaningful participation in the process of planning for their own futures. BY ERIN SEIGH AND LAUREN AGORATUS, M.A. Students with disabilities need to learn how to advocate for themselves in order to foster independence when transitioning to adult life. Groups that encourage the voices of youth and young adults can help […]

NDNRC Releases Statement On Preserving ACA Protections

The National Disability Navigator Resource Collaborative (NDNRC) recently released a statement entitled “Preserve the Protections Provided by the Affordable Care Act.” PRESERVE THE PROTECTIONS PROVIDED BY THE AFFORDABLE CARE ACT The Affordable Care Act (ACA) brought about much-needed reforms for health insurance, addressed systemic discrimination, and expanded coverage to millions of Americans who had previously been uninsured. Many of the reforms established by the ACA were a great benefit for people with disabilities, including the […]

Navigating The Maze Of School Choice Options

BY WILLIAM BLACKWELL, ED.D. This article explores several key issues that parents of children with disabilities should consider and questions to ask when thinking about charter schools or voucher programs. Parents of children with disabilities have an endless series of decisions to make regarding their child’s education. These decisions include selecting a public school system that will be supportive of their child’s needs, identifying the appropriate services and supports that the school will provide, and […]

Including Young Children With Disabilities In Typical Early Childhood Settings

BY LAUREN AGORATUS, M.A. AND DENISE BOUYER-HARGROVE It is essential that families are aware their child with special needs has the right to receive care and education in the least restrictive environment along with their age-appropriate peers. Many families are unaware that their child with a disability or special need could be included in a typical child care or preschool program. Also, parents may not be aware that their child transitioning from early intervention to […]

10 Ways to Think about How #InclusionWorks

Celebrating NDEAM. National Disability Employment Awareness Month (NDEAM) takes place every October to celebrate the accomplishments of people with disabilities in the workplace. It’s also a time to reflect on ways that employers, workers, people with disabilities and others can build on that success and strengthen workplace inclusion. NDEAM began as a week-long observance in 1945; since then, it has evolved into a month-long celebration. This year’s theme is #InclusionWorks, which focuses on the key […]