Increase in Developmental Disabilities Among Children in the United States

Pediatrics has published a new study that describes how often developmental disabilities were diagnosed among children in the United States, and trends over time. In this study, scientists from the Centers for Disease Control and Prevention (CDC) and the Health Resources and Services Administration (HRSA) found that 17% of children aged 3–17 years had a developmental disability, and importantly, that this percentage increased over the two time periods compared, 2009–2011 and 2015–2017; increases were also […]

At NCD’s recommendation, all U.S. dental schools will train students to manage treatment of people with intellectual, developmental disabilities

As recommended by the National Council on Disability (NCD), all U.S. dental schools must now revamp their curricula and training programs to be inclusive of patients with intellectual and developmental disabilities (ID/DD). The Commission on Dental Accreditation (CODA) recently passed votes requiring dental schools to now train their students in managing treatment of patients with ID/DD. Previously, patients with ID/DD were largely unable to obtain dental care treatment because dental students were simply not required […]

Trump Extends Funding Money Follows the Person Program

The House passed H.R. 3253, the Empowering Beneficiaries, Ensuring Access and Strengthening Accountability Act.  This bill funds the Money Follows the Person program through Fiscal Year 2023.  It also extends the HCBS spousal impoverishment protections through March 31, 2024.  We are pushing the Senate to provide long-term funding for MFP by passing H.R. 3253 or the EMPOWER Care Act.  It is critical Congress act before funding for the program runs out in September 2019. EMPOWER […]

Scientists find new approach that shows promise for treating cystic fibrosis

NIH-funded discovery uses common antifungal drug to improve lungs’ ability to fight infection. Researchers say a widely-used antifungal drug may hold promise for treating people with cystic fibrosis, a life-threatening genetic disorder that causes serious damage to the lungs. In studies using human cells and animals models, the researchers found that the medication, called amphotericin, helps lung cells function in a way that could make it easier for patients to fight chronic bacterial lung infections […]

5 Reasons to Consider a Special Needs Trust

BY Dawn Doebler, MBA, CPA, CFP®, CDFA®, Senior Wealth Advisor Here are 5 common reasons for establishing a special needs trust that applies to your family member with a disability. In my last article, I outlined the benefits of ABLE accounts. For many families, ABLE accounts sufficiently meet their desire to provide assets for special needs family members. In higher net worth families, ABLE accounts are the first step in structuring a long-term financial plan […]

Mobility Devices for Young Children

What are Kiddie Canes, Pre-Canes, and Alternative Mobility Devices? The long cane used by some people with visual impairments has a white shaft, a black handle, and is red near the bottom. The long cane provides a traveler with information about the ground in front of him as he moves. There are several alternative types of mobility devices that children with visual impairments who are very young or who have additional disabilities can utilize. These […]

Becoming A Family Advisor: Are you a parent that wants to advocate for change?

As a parent you have much to offer, teach, and share. You bring unique experiences, perspectives, and expertise. Everyone benefits when families and providers work together to improve healthcare, education, and community life for children with special health and/or developmental needs. We hope to give you general information and guidance on what’s involved in becoming an effective family advisor, no matter what setting you choose. A family advisor is a parent or other family member who […]

Training First Responders To Respond Bettter

“The SNAP Program makes a vital contribution to the armamentarium of best practices addressing the unique needs of special populations and their ability to thrive and participate in the community. It will become a time-honored component in the first responders’ toolkit.” – Rick Rader, MD, Medical Liaison, SNAP Program BY BRUCE GARNER Even under the best of circumstances, it is challenging to be a good parent, but when your child has special needs, it gets […]

Youth Empowerment Groups Encourage Self-Advocacy

Groups for youth and young adults may provide opportunity for building a foundation of skills to address core concepts that enable youth to have meaningful participation in the process of planning for their own futures. BY ERIN SEIGH AND LAUREN AGORATUS, M.A. Students with disabilities need to learn how to advocate for themselves in order to foster independence when transitioning to adult life. Groups that encourage the voices of youth and young adults can help […]

NDNRC Releases Statement On Preserving ACA Protections

The National Disability Navigator Resource Collaborative (NDNRC) recently released a statement entitled “Preserve the Protections Provided by the Affordable Care Act.” PRESERVE THE PROTECTIONS PROVIDED BY THE AFFORDABLE CARE ACT The Affordable Care Act (ACA) brought about much-needed reforms for health insurance, addressed systemic discrimination, and expanded coverage to millions of Americans who had previously been uninsured. Many of the reforms established by the ACA were a great benefit for people with disabilities, including the […]