While everything in the world seems to be moving too fast, one term comes to mind: RESPITE

BY ADEOLA SONAIKE, PHD, MPH, CHES There are steps to assist you with selecting a local Respite provider that meets your family’s needs. Respite is your time as a caregiver for self-care, your time to respect yourself and your role as a caregiver. Respite, which originates from the Latin word ‘respectus’, literally means consideration, the act of looking back (or often) at oneself. It is also no coincidence that ‘respectus’ is the Latin origin for […]

Rare Disease Caregiving Study

To study the impact of rare disease on unpaid friends and family members who provide care (known as “family caregivers”), the National Alliance for Caregiving and Global Genes, are launching a “first-of-its-kind” national snapshot of rare disease caregivers. This fall, the two groups plan to release a national survey aimed at collecting feedback from over 1,000 family caregivers of children and adults with rare diseases. The survey will be open from Wednesday, September 13 through […]

“Invisible work” toll among family and unpaid caregivers

SOURCE: National Institutes of Health; BY Carol Torgan, Ph.D. At a Glance Unpaid caregivers who helped with the health care of older adults experienced emotional, physical, and financial difficulties, as well as lower work productivity. The findings provide a better understanding of the unmet needs and challenges of this often invisible workforce, which plays a key role in the health care system. Family and other unpaid caregivers perform many activities on a regular basis as […]