Kritz, Fran Neurology Now: October/November 2017 – Volume 13 – Issue 5 – p 10–11 Many neurologic diseases, such as epilepsy, spinal muscular atrophy, muscular dystrophy, or Down syndrome, begin in childhood when patients are seen by pediatric neurologists. What happens when these patients age into adulthood? Do they stay with their pediatric specialist or switch to a neurologist who treats adults or both children and adults? The accepted wisdom is to transition to doctors […]
Category: Down Syndrome
National Down Syndrome Society Launches National Campaign Spotlighting Laws that Prevent Individuals with Down Syndrome from Seeking Careers
The National Down Syndrome Society (NDSS), a human rights organization for all individuals with Down syndrome, will soon bring together community leaders, self-advocates, parents and employers to launch their latest campaign – Law Syndrome. NDSS’ Law Syndrome campaign will help launch October as Down Syndrome Awareness Month and National Disability Employment Awareness Month. Law Syndrome directly addresses the challenges faced by people with Down syndrome who desire to fulfill career goals, get married and live […]
Enhancing Lives Of People With Down Syndrome
BY SARA HART WEIR, MS The National Down Syndrome Society (NDSS) is the leading human rights organization for individuals with Down syndrome. NDSS envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities. Down syndrome is the most commonly occurring chromosomal condition. One in every 691 babies in the United States is born with Down […]
Practice Without Pressure
Practice Without Pressure™ greatly reduces and, most times, eliminates the need for sedation and restraint. The PWP model includes the individual, the family/caregiver, and the clinican, and introduces the PWP practice specialist into the paradigm. BY DEBORAH JASTREBSKI THE NEED You wake up one morning and your tooth hurts. Although it’s not your favorite thing you call your dentist, make an appointment and go get it fixed. You’re nervous but you tell the dentist that, […]
A Holistic Guide For Families Who Have A Loved One With Special Needs
PUBLIC BENEFITS BY CALEB HARTY Many important benefits are outlined below, but not all. Also, effort has been made to point out important aspects of the programs, but outlining every detailed exception, rule, etc., is beyond the scope of this informational guide. For context, most of these programs are “means-tested,” which means they are usually not available until the child turns 18 because up until that point the parents’ assets and income are taken into […]