On Learning That My Brain is Shrinking

ANCORA IMPARO BY RICK RADER, MD ■ EDITOR-IN-CHIEF I was quick to process and accept the news that my marinated tofu was shrinking. Doing crossword puzzles, listening to Mahler and navigating cornfield mazes was not going to curtail the shrinkage. My boat was dirty. It was the weekend; I would clean it. The plan was a “no brainer,” and I was soon to learn that the expression “no brainer” was an accurate description. Apparently it […]

Transitions: Moving from pediatric care to adult care can be tricky. Here are eight questions to ask your doctor to facilitate the process.

Kritz, Fran Neurology Now: October/November 2017 – Volume 13 – Issue 5 – p 10–11 Many neurologic diseases, such as epilepsy, spinal muscular atrophy, muscular dystrophy, or Down syndrome, begin in childhood when patients are seen by pediatric neurologists. What happens when these patients age into adulthood? Do they stay with their pediatric specialist or switch to a neurologist who treats adults or both children and adults? The accepted wisdom is to transition to doctors […]

My Family’s Journey With Duchenne Muscular Dystrophy

BY BETTY VERTIN As we wait to see what will happen, I take each day as it comes and continue to fight to make sure my boys will have access to this drug – it is our only hope at this stage. I have three sweet boys with a rare genetic disease called Duchenne muscular dystrophy (DMD), a progressive condition that causes gradual muscle loss and weakness and eventually robs people of the ability to […]