Living with Spina Bifida: Young Adults

The transition from adolescence to adulthood can be a time of growth and success, as well as difficulty. For people with spina bifida, it is especially important to begin planning for transitions in childhood so they are able to lead independent lives as adults. Young adults affected by spina bifida can face challenges, such as: Learning to take care of their own health needs. Working. Going to school. Volunteering. Finding and using transportation. Living outside […]

Study helps clinicians and families anticipate surgeries for individuals with spina bifida

In a study appearing in PediatricsExternal, CDC scientists and other researchers describe the lifetime occurrence of common surgeries and four key health outcomes in individuals with spina bifida. This information can help clinicians and parents know what surgeries and common health issues may be experienced by individuals with spina bifida as they age. In this study, researchers found that Individuals will all types of spina bifida commonly underwent brain and spine surgeries. More than five […]

Living with Spina Bifida: School-Aged Children

Starting school brings children into regular contact with the larger world. Friendships become important and physical, social, and mental skills develop rapidly during this time. Children who feel good about themselves are more able to resist negative peer pressure and make better choices. This is an important time for children to become more responsible and independent. This is also a good time to start exploring potential lifetime interests such as hobbies, music, or sports. Developing […]

Living with Spina Bifida: Toddlers and Preschoolers

Life with a toddler or preschooler is both fun and challenging. These young children experience huge mental, social, and emotional changes. They have a lot of energy and enthusiasm for exploring and learning about their world and becoming independent. Developing independence can be especially challenging for children with spina bifida. Parents should start helping their child develop independence early in childhood. Cdc-mediaLow Resolution Video Encouraging Independence For toddlers and preschoolers with spina bifida, there are […]

Living with Spina Bifida: Infants

Having a new baby is an exciting and challenging time. New parents often feel many different emotions―such as love, joy, happiness, worry, and exhaustion. The same is true for parents who have a child affected by spina bifida. However, in addition to adjusting to life with a new baby, parents of a child with spina bifida also need to learn as much as possible about the condition to prepare for the needs of their child. […]

Spina bifida – Types, Diagnosis, Treatments, Causes and Prevention

Spina bifida is a condition that affects the spine and is usually apparent at birth. It is a type of neural tube defect (NTD). Spina bifida can happen anywhere along the spine if the neural tube does not close all the way. When the neural tube doesn’t close all the way, the backbone that protects the spinal cord doesn’t form and close as it should. This often results in damage to the spinal cord and […]

Amber Tatro, Whose Suit Gave Rights to Disabled Students, Dies at 42

By Sam Roberts Aug. 14, 2018   In 1979, just a few months before Amber Tatro turned 4, her family notified the Irving, Tex., school district that she would be ready for classes that fall. Born with spina bifida, a congenital defect that causes partial paralysis and impaired speech, she was unable to urinate on her own. She required catheterization every few hours to prevent kidney damage, a process that took only several minutes but […]

Alabama’s Special Camp for Children & Adults

The impact that a Camp ASCCA experience can have on increasing confidence and the level of independence often remains long after the camp session has ended. BY GLENN ROSWAL AND DANA RICKMAN With more than 25 different activities from which to choose, Camp ASCCA is an exciting place to visit. Each activity area offers a unique experience and allows the camper to succeed on his or her own, as well as in an environment of […]

An Endless List Of Role Models

BY H. Barry Waldman, DDS, MPH, PhD & Steven P. Perlman, DDS, MScD, DHL (Hon) These heroes are living proof of the saying, “It is better to try and fail, than to fail to try.” Hope is the feeling that what is wanted can be had or that events will turn out for the best.1 Aspiration is a strong desire, longing or ambition.1 Hope and aspirations are the twin pillars which maintain the drive of […]