BY ALEXANDRA WHITE, MATT SMITH AND ERIKA LUTINS IMPACTS ON JOUBERT SYNDROME AND OTHER RELATED DISORDERS When scientists conduct clinical research, the traditional method is for the researcher to be the main contributor in the creation of the idea, the study, and the final publication of results. Patients and caregivers are typically only involved at the final stages: dissemination of results and the implementation of practice and policy changes. With this method, important stakeholders are […]
This online program is designed to promote health and wellness for people with physical disabilities and their caregivers. Daniel was paralyzed as a teenager and, a decade later, he required a prolonged hospitalization for a medical complication. He was on bedrest for the majority of his hospital stay, and once he was stable for discharge, Daniel felt weak and realized he had put on weight. Due to quadriplegia, Daniel uses a powered wheelchair for his […]
Children born with ADNP-related autism syndrome suffer from a heart-breaking combination of ambiguous developmental problems injurious to both their physical health and cognitive functioning. For parents, the mystery surrounding their infants’ suffering can be even more agonizing than the syndrome itself, which has no known cure. Recent research from Tel Aviv University and the University of Antwerp is easing some of that agony. Activity-dependent neuroprotective protein (ADNP), discovered by TAU’s Prof. Illana Gozes 15 years […]
BY: Matthew P. Janicki and Seth M. Keller Abstract As the number of older adults with intellectual disability increases and they present with suspected or identified dementia and are referred to health and social care practitioners, the rationale grows for standardization in clinical practice relative to screening and assessment, diagnosis, and social care approaches for providing in-community supports. The availability of national guidelines prescribing what to do and how to do it during preliminary and […]
HEALTHY CHOICES, HEALTHY LIFESTYLES BY BARBARA B. MINTZ, MS, RD Snacks do not have to be unhealthy. In fact, they are a very important part of a healthy diet. Summer is vacation time and we are busy enjoying the warmer weather with friends and family. Some people like to stay very busy on their time off, others like to slow things down. Either way, the rhythm of our lives changes and sometimes that keeps us […]
