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Attention Caregivers: SSDI Benefits For Dependents With Special Needs May Not Last Forever!

Caregivers of dependents with special needs who receive Social Security Disability Income (SSDI) benefits must fully understand the nature, scope and duration of these benefits to effectively plan for the financial future of their dependent. When SSDI benefits are payable based on a parent’s working record to their adult dependent with special needs, the Social Security Administration (SSA) considers this type of benefit as a “child’s” benefit. It is this form of eligibility that this […]

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MDA Venture Philanthropy Grant To Support Development Of ALS Biomarkers

The Muscular Dystrophy Association is pleased to announce the award of an MDA Venture Philanthropy (MVP) grant totaling $233,200 to Scottsdale, Arizona-based Iron Horse Diagnostics to support development of a prognostic test for ALS. This prognostic Such a test could help improve and accelerate clinical trials and speed the development of life-saving drugs to people with ALS (amyotrophic lateral sclerosis). MVP is MDA’s drug development program, which is exclusively focused on funding the discovery and […]

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Holiday Gift Guide

As the holiday season quickly approaches, caregivers and parents of children with special needs are considering what new toys, games and learning tools are appearing on the market and which of those might be a good fit for their child. To help families through their toy purchasing decisions, EP’s editors have compiled a selection of some new products as well as some classic choices, each of which offer fun ways to improve motor skills, balance, […]

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Transitions: Moving from pediatric care to adult care can be tricky. Here are eight questions to ask your doctor to facilitate the process.

American Academy of Neurology Kritz, Fran Neurology Now . 13(5):10–11, October/November 2017. Many neurologic diseases, such as epilepsy, spinal muscular atrophy, muscular dystrophy, or Down syndrome, begin in childhood when patients are seen by pediatric neurologists. What happens when these patients age into adulthood? Do they stay  “with their pediatric specialist or switch to a neurologist who treats adults or both children and adults? The accepted wisdom is to transition to doctors who treat adults, […]

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STUDY: The Family Dog Could Help Boost Physical Activity For Kids With Disabilities

BY MICHELLE KLAMPE Researchers designed an adapted physical activity, animal-assisted intervention where the family dog would serve as a partner with the child in physical activities designed to help improve overall physical activity, motor skills and quality of life. The family dog could serve as a partner and ally in efforts to help children with disabilities incorporate more physical activity into their daily lives, a new study from Oregon State University indicates. In a case […]

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Perceptions of Self

AMERICAN ACADEMY OF DEVELOPMENTAL MEDICINE & DENTISTRY BY H. BARRY WALDMAN DDS, MPH, PHD, STEVEN P. PERLMAN DDS, MSCD, DHL (HON) AND MATTHEW COOKE, DDS, MD, MPH “Prior to the twentieth century, social attitudes reflected the view that persons with disabilities were unhealthy, defective and deviant. For centuries, society as a whole treated these people as objects of fear and pity. The prevailing attitude was that such individuals were incapable of participating in or contributing […]

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Myiles’ Story-Merosin Deficient Congenital Muscular Dystrophy

Myiles is 4 year’s old, he was born on September 7th 2012 5lbs 13ounces he was beautiful.When he was 15 months old he was diagnosed with Merosin Deficient Congenital Muscular Dystrophy est: 100 patients have been diagnosed in the U.S AND 1,000 patients have been diagnosed in the U.K. He had a rough start from birth, he had water in his lungs, he was not breathing on his own, he spent 13 day’s In the […]

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Building Healthy & Inclusive Communities

Throughout Healthy Communities, Special Olympics seeks to collaborate with mission-aligned organizations that often traditionally miss the population that Special Olympics serves. Special Olympics has set a goal of having 100 locations recognized as Healthy Communities by 2020. When Kenny Canon’s pain resulted in a trip to the emergency room, his mother began to worry. “He had toothaches, was in a lot of pain and said he was dizzy,” said Kenny’s mother, Shirley. “He told me […]

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How A Child Developmental Passport Can Help Families

BY DEEPA SRINIVASAVARADAN Developmental Passports can be used by parents to track the health, wellness, and development of their child. These are available in both English and Spanish for families. A STATE EXAMPLE The Child Developmental Passport in NJ was developed in collaboration with the State Ambassador of the Center for Disease Control’s (CDC’s) Learn the Signs, Act Early Program and the Help Me Grow and Early Childhood Comprehensive Systems Initiative of the NJ Department […]

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Special Education And Early Intervention Resources For Families And Professionals

BY LAUREN AGORATUS, M.A. The U.S. Department of Education, Office of Special Education Programs (OSEP), funds a Technical Assistance and Dissemination Network with resources for all stakeholders with an interest in special education and early intervention, including parents, self-advocates, educators, early interventionists, school districts, state Departments of Education, other service providers, researchers, policymakers, and legislators. WHICH TYPES OF RESOURCES ARE AVAILABLE? There are many different kinds of resources available to families and professionals. These include […]