Disability Stigma and Your Patients

For people with disabilities, stigma can be a major barrier to participation. Stigmatizing attitudes about disabilities can also affect relationships between patients and providers. However, health care providers can be allies with their patients and help reduce the impact of stigma. What Is Disability Stigma? The word stigma comes from the Greek word for “mark.” Generally, stigma is a negative set of beliefs about people with specific characteristics. For example, ethnic or sexual minorities, or people […]

Building Supportive, Person-Centered Communities For Adults With Autism

According to the Centers for Disease Control and Prevention (CDC), 500,000 teens with autism will age into adulthood over the next decade and housing will become one of the greatest concerns for them, their parents and other caregivers. Right now, an estimated 80,000 adults with autism in the United States are on waiting lists for publicly-funded residential placements and services. The waiting periods can run up to 15 years and the number of those waiting […]

Neglected for Too Long: Dental Care for People with Intellectual and Developmental Disabilities

National Council on Disability An independent federal agency making recommendations to the President and Congress to enhance the quality of life for all Americans with disabilities and their families. Neglected for Too Long: Dental Care for People with Intellectual and Developmental Disabilities Fall 2017 This policy brief is designed to provide insight concerning the lack of dental care many people with intellectual and developmental disabilities (I/DD)[1] continue to experience due to a shortage of properly […]

Back To The Basics

The food you eat can either be the safest and most powerful form of medicine or the slowest form of poison.” ~ ann Wigmore BY ADEOLA SONAIKE, PHD, MPH, CHES The Family Resource Network launched The Center on Nutrition and Disability, which aims to further assist families and professionals with fostering a healthy relationship with food for people with special health care needs, chronic conditions, and their caregivers. One of the biggest issues people face […]

The Resilient Caregiver

BY LAUREN AGORATUS, M.A. TAKING CARE OF YOURSELF WHILE CARING FOR ANOTHER Did you know that November of each year is National Family Caregivers Month by presidential proclamation? In part the proclamation reads: “Whereas, the primary source of community-based services and the cornerstone of our long-term care system are care recipients’ family members, friends and neighbors who help their loved ones maintain their independence and their quality of life; and…according to the National Alliance for […]

PCPID Releases 2017 Report

The President’s Committee for People with Intellectual Disabilities (PCPID) recently released its 2017 Report, “America’s Direct Support Workforce Crisis: Effects on People with Intellectual Disabilities, Families, Communities and the U.S. Economy.” The NADSP (The National Alliance for Direct Support Professionals) is proud to have assisted the University of Minnesota’s Research and Training Center on Community Living in preparing this report and especially proud to highlight the work from some of our certified direct support professionals […]

Never Forgotten

PUZZLES & CAMO BY SHELLY HUHTANEN Gram passed away Christmas morning. She was 101 years old. She was born in 1916, when people with disabilities were probably never discussed in public forums and the concept of inclusiveness wasn’t possible. I remember it like it was yesterday. Mark and I visited his Gram, Dorothy, in Montana because we didn’t know how much longer she would be with us. She was almost 100 years old, living alone […]

Parents Perspective: Caring For A Child With A Feeding Tube

BY JULIE & TONY BOMBACINO “IT TOOK US A LONG TIME TO GET HERE, BUT WE NOW SEE AJ’S FEEDING TUBE AS AN INTEGRAL TOOL IN KEEPING HIM AT HOME AND HEALTHY. ” Our son has, and gets all of his nutrition from, a feeding tube. Serving nutritious food that everyone will eat is hard enough for any family at mealtime, but caring for a child with a feeding tube presents a new set of […]

Diet & Nutrition: From Babies To Teens

BY JORDAN CAPIZOLA AND LILLIAN DUFFIELD The new year inspires many people to set goals for themselves, especially when it comes to diet and nutrition. People, especially parents, see it as an opportunity to reset their behaviors and develop healthier habits. Parents spend a great deal of time researching ideas and recipes for how to keep their families healthy, but sometimes researching information online can be daunting. It seems like every day there is new […]

Telehealth and Children with Disabilities

AMERICAN ACADEMY OF DEVELOPMENTAL MEDICINE & DENTISTRY BY H. BARRY WALDMAN DDS, MPH, PHD, LISA BARD LEVINE, MD, MBA, ANDREW G. SCHWARTZ, DDS, FACD, RICK RADER, MD, FAAIDD, DHL (HON) AND STEVEN P. PERLMAN DDS, MSCD, DHL (HON) “Persons with severe functional disabilities are the highest users of health care services. Care for the needs of this population represents a significant percentage of our national health care costs. A growing body of research has demonstrated […]