Tag: epilepsy

Talking Finances with Your Child’s Pediatrician

eParent Connect, Featured Topics 11/19/2016 admin 0 Comments

GENETIC ALLIANCE BY BY CLAIRE MENA As the leaves begin to fall, we find ourselves picking out pumpkins, searching for creative costumes, and baking holiday-inspired treats with our little ones. While the temperature declines daily and the holidays lurk right around the corner, there is more than festivities that we should prepare for; we should financially prepare for our children’s healthcare. In a time when a family-centered relationship with your physician is becoming increasingly present, […]

Good Planning Protects Benefits And Creates Assets

Featured Topics, Money 11/18/201612/01/2016 admin 0 Comments

BY ROB WRUBEL CFP®, AIF® A winning team needs to be established. thIs means finding a financial planner, a lawyer and an accountant each of whom understands the unique challenges and planning opportunities available to families like ours. A friend walked in to my office one day. He carried a leather briefcase. He put his heavy brown case on my desk then paused with his fingers over the brass clasps. He smiled and looked at […]

Disability Groups Claim Crucial Medical Equipment is “Under Attack”: Urge Congress to Pass Corrective Bill

Multiple Sclerosis, Wellness 10/18/2016 admin 0 Comments

LIVING WITH A DISABILITY BY JERRY LEVINSON Rep. Zeldin says Congress must now act again to ensure that a more permanent fix is granted. Congressman Lee Zeldin (R, NY-1) is spearheading an effort to protect people with disabilities by ensuring they have access to essential medical equipment, such as specialized power wheelchairs, seating systems, and other adaptive equipment (collectively called Complex Rehabilitation Technology or CRT). To this end, he has introduced legislation (H.R. 3229) that […]

Don’t Ask Taxpayers to Support Children with Disabilities

Epilepsy, Featured Topics, Wellness 10/16/201610/15/2016 admin 1 Comment

AMERICAN ACADEMY OF DEVELOPMENTAL MEDICINE & DENTISTRY BY H. BARRY WALDMAN DDS, MPH, PHD, STEVEN P. PERLMAN DDS, MSCD, DHL (HON) AND MATTHEW COOKE, DDS, MD, MPH “Don’t ask taxpayers to support disabled children: When I was 10 years old, I chose to be child-free because I knew that I would not make a good parent, and at 38 I’m still content with my choice… Parenthood is a choice, not a divine right, and all […]

Breathing Into Transition

Featured Topics, Healthcare 10/07/2016 admin 0 Comments

GENETIC ALLIANCE • EMPLOYMENT & TRANSITION ANNUAL ISSUE • BY SARAH ROTH CAREGIVERS WHOSE KIDS ARE TRANSITIONING INTO ADULTHOOD EXPRESS HIGH LEVELS OF STRESS. ONE EFFECTIVE TOOL FOR REDUCING STRESS IS THE CULTIVATION OF A MINDFULNESS PRACTICE. Guiding your young adult from pediatric to adult care is no simple task. The healthcare system is fragmented and difficult to navigate. Care is enmeshed in the world beyond the clinic or hospital. And resources for ongoing social […]