Youth Empowerment Groups Encourage Self-Advocacy

Groups for youth and young adults may provide opportunity for building a foundation of skills to address core concepts that enable youth to have meaningful participation in the process of planning for their own futures. BY ERIN SEIGH AND LAUREN AGORATUS, M.A. Students with disabilities need to learn how to advocate for themselves in order to foster independence when transitioning to adult life. Groups that encourage the voices of youth and young adults can help […]

NDNRC Releases Statement On Preserving ACA Protections

The National Disability Navigator Resource Collaborative (NDNRC) recently released a statement entitled “Preserve the Protections Provided by the Affordable Care Act.” PRESERVE THE PROTECTIONS PROVIDED BY THE AFFORDABLE CARE ACT The Affordable Care Act (ACA) brought about much-needed reforms for health insurance, addressed systemic discrimination, and expanded coverage to millions of Americans who had previously been uninsured. Many of the reforms established by the ACA were a great benefit for people with disabilities, including the […]

Navigating The Maze Of School Choice Options

BY WILLIAM BLACKWELL, ED.D. This article explores several key issues that parents of children with disabilities should consider and questions to ask when thinking about charter schools or voucher programs. Parents of children with disabilities have an endless series of decisions to make regarding their child’s education. These decisions include selecting a public school system that will be supportive of their child’s needs, identifying the appropriate services and supports that the school will provide, and […]

Including Young Children With Disabilities In Typical Early Childhood Settings

BY LAUREN AGORATUS, M.A. AND DENISE BOUYER-HARGROVE It is essential that families are aware their child with special needs has the right to receive care and education in the least restrictive environment along with their age-appropriate peers. Many families are unaware that their child with a disability or special need could be included in a typical child care or preschool program. Also, parents may not be aware that their child transitioning from early intervention to […]

10 Ways to Think about How #InclusionWorks

Celebrating NDEAM. National Disability Employment Awareness Month (NDEAM) takes place every October to celebrate the accomplishments of people with disabilities in the workplace. It’s also a time to reflect on ways that employers, workers, people with disabilities and others can build on that success and strengthen workplace inclusion. NDEAM began as a week-long observance in 1945; since then, it has evolved into a month-long celebration. This year’s theme is #InclusionWorks, which focuses on the key […]

Talking Finances with Your Child’s Pediatrician

GENETIC ALLIANCE BY BY CLAIRE MENA As the leaves begin to fall, we find ourselves picking out pumpkins, searching for creative costumes, and baking holiday-inspired treats with our little ones. While the temperature declines daily and the holidays lurk right around the corner, there is more than festivities that we should prepare for; we should financially prepare for our children’s healthcare. In a time when a family-centered relationship with your physician is becoming increasingly present, […]

Good Planning Protects Benefits And Creates Assets

BY ROB WRUBEL CFP®, AIF® A winning team needs to be established. thIs means finding a financial planner, a lawyer and an accountant each of whom understands the unique challenges and planning opportunities available to families like ours. A friend walked in to my office one day. He carried a leather briefcase. He put his heavy brown case on my desk then paused with his fingers over the brass clasps. He smiled and looked at […]

Disability Groups Claim Crucial Medical Equipment is “Under Attack”: Urge Congress to Pass Corrective Bill

LIVING WITH A DISABILITY BY JERRY LEVINSON Rep. Zeldin says Congress must now act again to ensure that a more permanent fix is granted. Congressman Lee Zeldin (R, NY-1) is spearheading an effort to protect people with disabilities by ensuring they have access to essential medical equipment, such as specialized power wheelchairs, seating systems, and other adaptive equipment (collectively called Complex Rehabilitation Technology or CRT). To this end, he has introduced legislation (H.R. 3229) that […]

Don’t Ask Taxpayers to Support Children with Disabilities

AMERICAN ACADEMY OF DEVELOPMENTAL MEDICINE & DENTISTRY BY H. BARRY WALDMAN DDS, MPH, PHD, STEVEN P. PERLMAN DDS, MSCD, DHL (HON) AND MATTHEW COOKE, DDS, MD, MPH “Don’t ask taxpayers to support disabled children: When I was 10 years old, I chose to be child-free because I knew that I would not make a good parent, and at 38 I’m still content with my choice… Parenthood is a choice, not a divine right, and all […]

Breathing Into Transition

GENETIC ALLIANCE • EMPLOYMENT & TRANSITION ANNUAL ISSUE • BY SARAH ROTH CAREGIVERS WHOSE KIDS ARE TRANSITIONING INTO ADULTHOOD EXPRESS HIGH LEVELS OF STRESS. ONE EFFECTIVE TOOL FOR REDUCING STRESS IS THE CULTIVATION OF A MINDFULNESS PRACTICE. Guiding your young adult from pediatric to adult care is no simple task. The healthcare system is fragmented and difficult to navigate. Care is enmeshed in the world beyond the clinic or hospital. And resources for ongoing social […]