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8 New Epilepsy Genes Discoverered by Researchers

Quote: “A recent study by Michaud examining 200 children with epileptic encephalopathy – epilepsy combined with intellectual or overall developmental disability – and their parents could lead to the development of a more rational anti-epileptic treatment strategy.” Approximately 30 per cent of patients with epilepsy do not respond to anti-epileptic drugs. In these cases, all neurologists can do is attempt to find the right combination of medication through trial and error. A treatment that could […]

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Transitions: Moving from pediatric care to adult care can be tricky. Here are eight questions to ask your doctor to facilitate the process.

American Academy of Neurology Kritz, Fran Neurology Now . 13(5):10–11, October/November 2017. Many neurologic diseases, such as epilepsy, spinal muscular atrophy, muscular dystrophy, or Down syndrome, begin in childhood when patients are seen by pediatric neurologists. What happens when these patients age into adulthood? Do they stay  “with their pediatric specialist or switch to a neurologist who treats adults or both children and adults? The accepted wisdom is to transition to doctors who treat adults, […]

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Transitioning To Adult Neurologic Care: Where Do We Go From Here?

BY DAVID ERVIN, JOAN EARLE HAHN AND MIYA ASATO, MD For many individuals with IDD, epilepsy often begins in childhood and has a significant impact on children and families. As children with epilepsy and IDD reach adulthood, while principles have been developed by consensus to guide the child neurologist, no specialized guidelines have been created for the adult neurologist that speak to the unique transition of care needs necessary for successful transition from pediatric to […]

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Anyone Can Sleep in the Top Bunk!

BY LAURA WHITAKER In 2014, Extra Special People (ESP) officially became the proud owner of 70 acres of beautiful, empty land in northeast Georgia – and Camp Hooray, a place where accessibility will be a foundational feature rather than a rushed afterthought, was one step closer to becoming a reality. Worried? Anxious? Not even close. If Toni Boyd could have described her emotions on the day she dropped off her daughter Samantha at summer camp […]

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STUDY: The Family Dog Could Help Boost Physical Activity For Kids With Disabilities

BY MICHELLE KLAMPE Researchers designed an adapted physical activity, animal-assisted intervention where the family dog would serve as a partner with the child in physical activities designed to help improve overall physical activity, motor skills and quality of life. The family dog could serve as a partner and ally in efforts to help children with disabilities incorporate more physical activity into their daily lives, a new study from Oregon State University indicates. In a case […]

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Perceptions of Self

AMERICAN ACADEMY OF DEVELOPMENTAL MEDICINE & DENTISTRY BY H. BARRY WALDMAN DDS, MPH, PHD, STEVEN P. PERLMAN DDS, MSCD, DHL (HON) AND MATTHEW COOKE, DDS, MD, MPH “Prior to the twentieth century, social attitudes reflected the view that persons with disabilities were unhealthy, defective and deviant. For centuries, society as a whole treated these people as objects of fear and pity. The prevailing attitude was that such individuals were incapable of participating in or contributing […]

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Building Healthy & Inclusive Communities

Throughout Healthy Communities, Special Olympics seeks to collaborate with mission-aligned organizations that often traditionally miss the population that Special Olympics serves. Special Olympics has set a goal of having 100 locations recognized as Healthy Communities by 2020. When Kenny Canon’s pain resulted in a trip to the emergency room, his mother began to worry. “He had toothaches, was in a lot of pain and said he was dizzy,” said Kenny’s mother, Shirley. “He told me […]

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Special Education And Early Intervention Resources For Families And Professionals

BY LAUREN AGORATUS, M.A. The U.S. Department of Education, Office of Special Education Programs (OSEP), funds a Technical Assistance and Dissemination Network with resources for all stakeholders with an interest in special education and early intervention, including parents, self-advocates, educators, early interventionists, school districts, state Departments of Education, other service providers, researchers, policymakers, and legislators. WHICH TYPES OF RESOURCES ARE AVAILABLE? There are many different kinds of resources available to families and professionals. These include […]

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NDNRC Releases Statement On Preserving ACA Protections

The National Disability Navigator Resource Collaborative (NDNRC) recently released a statement entitled “Preserve the Protections Provided by the Affordable Care Act.” PRESERVE THE PROTECTIONS PROVIDED BY THE AFFORDABLE CARE ACT The Affordable Care Act (ACA) brought about much-needed reforms for health insurance, addressed systemic discrimination, and expanded coverage to millions of Americans who had previously been uninsured. Many of the reforms established by the ACA were a great benefit for people with disabilities, including the […]

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Navigating The Maze Of School Choice Options

BY WILLIAM BLACKWELL, ED.D. This article explores several key issues that parents of children with disabilities should consider and questions to ask when thinking about charter schools or voucher programs. Parents of children with disabilities have an endless series of decisions to make regarding their child’s education. These decisions include selecting a public school system that will be supportive of their child’s needs, identifying the appropriate services and supports that the school will provide, and […]