About Autism, A Little Boy, and Nobody’s Fault

by Tulika Prasad We were at an indoor water park a few weeks back and the pool we were in had a basketball hoop that a few other kids were playing at. My son was happy just watching the game and would keep jumping in , all excited . That’s when one of the kids asked him if he wanted to join them. He was kind and genuine. My son was incognizant. The kid waited […]

Autism Spectrum Disorder: Communication Problems in Children

What is autism spectrum disorder? Autism spectrum disorder (ASD) is a developmental disability that can cause significant social, communication, and behavioral challenges. The term “spectrum” refers to the wide range of symptoms, skills, and levels of impairment that people with ASD can have. ASD affects people in different ways and can range from mild to severe. People with ASD share some symptoms, such as difficulties with social interaction, but there are differences in when the […]

Forgetting Milestones and Learning to Measure Progress… a New Way of Thinking! #StandUpforInclusionNow!

By Mary Ellen Bogucki PART TWO Recently, while attending the Special Olympics World Tennis Invitational in Santo Domingo, I took notice of the theme on the back of many t-shirts–“Stand Up For Inclusion!” I realized how important the Inclusion Revolution movement truly is and I recognized the time is now to STAND UP for inclusion! I understood this because there was a video that went viral showing a 14-year old boy with cerebral palsy being […]

When a kid gave me hope for a better world for my son.

by Tulika Prasad We all know how difficult it is for a differently abled individual to navigate the world with its prejudices. There is much to be desired when it comes to acceptance and inclusions. It often makes me nervous thinking about what kind of a world will my son find himself in when he grows up and when I might not be around to be his eyes , ears, and voice. So, in the midst […]

Forgetting Milestones and Learning to Measure Progress…a New Way of Thinking! #TravelingWithAutism

By Mary Ellen Bogucki For a long time we didn’t travel or take vacations. From a very young age, my daughter, Bree hated car rides. The minute the car started moving, she would cry. It took us years before we learned she had Autism and sensory issues. Her vestibular sense was affected and movement was a problem for her. The biggest mistake we made was when we decided to stop at a waterpark on our […]

Forgetting Milestones and Learning to Measure Progress…a New Way of Thinking! #FindingtheRightTherapy

  By Mary Ellen Bogucki I have found that the most important thing I could ever do for my daughter, Bree, was find her the right therapy. Before Bree was born I had never heard of sensory processing disorder. I knew of Autism, but my knowledge was very limited and sadly most of it came from what I saw in the movie “Rainman”. For the first five years of Bree’s life we were repeatedly told […]

Hurricane Bean

by Brandy Pavia Today was the day. We’ve had this appointment with a leading Neurodevelopmental Pediatrician for over nine months, and now it’s here. These appointments are extremely hard to get, and the wait lists are ridiculously long, so I was anxious to get the ball rolling. I was even FIVE MINUTES EARLY, which, anyone that knows me knows that this NEVER happens. Ever. So yeah, I’m tooting my own horn for a minute. Ok…back […]

Forgetting Milestones and Learning to Measure Progress…a New Way of Thinking! – Fighting for Inclusion and Acceptance

By Mary Ellen Bogucki  As July came to a close, I witnessed the launch of the “Inclusion Revolution” with the Special Olympics 50th Anniversary Celebration. I wondered that with the celebration behind us, would the momentum continue and would society step up to the challenge? The challenge is defined in the “Inclusion Revolution” pledge. The pledge states: I pledge to look for the lonely, the isolated, the left out, the challenged and the bullied. I […]

This is Why I Will Forgive

by Tulika Prasad A few days back, while I was browsing the aisles of a store, my 9 yr old son brushed against another customer. I was hoping it would not be a big deal but she had something else in mind. I said sorry and explained that my son is autistic. She was not ready for that excuse and said that if that’s the case, I shouldn’t “let him loose” and that she has been […]

8 Autism myths that I wish I could dispel

by Tulika Prasad Autism is a complex diagnosis. It’s a spectrum so it makes it all the more difficult to put it within the boundaries of a set of characteristics. As they say, every autistic individual has very unique traits and since it’s not a physical disability , sometimes autism is simply considered to be the result of bad parenting or a set of behavior anomalies that a person might have and therefore ignored or […]