by Allison Klein There are thousands of lobbyists in Washington, legions of well-connected pros who are hired by special interest groups to vigorously advocate for issues. Perhaps nobody in those ranks is more committed to their cause than Kayla McKeon, the first registered Capitol Hill lobbyist with Down syndrome. “I make personal connections, tell personal stories,” said McKeon, 30, who works for the District-based National Down Syndrome Society. “It’s hard for them to say no.” […]
More than a million women with epilepsy are of childbearing age in the United States. Each year, 20,000 babies are born to women living with epilepsy. The fetus, or unborn baby, is exposed to anti-seizure medications in one of every 50 pregnancies. What is the risk for seizures during pregnancy? The best care for women with epilepsy during pregnancy aims at achieving complete seizure control while decreasing the fetus’ exposure to the potential harmful effects […]
PEDIATRICIAN DR. DYAN HES HAS ADVICE FOR PREPARING TO SEND CHILDREN WITH CHRONIC CONDITIONS TO CAMP NEW YORK, NY – Many kids will head to camp for a summer of fun-filled activities. As parents check off the list of things kids will need to bring, it is important to have a separate checklist if your child suffers from a chronic condition such as asthma, diabetes, or allergies. Dr. Dyan Hes, Medical Director of Gramercy Pediatrics and […]
The Food and Drug Administration (FDA) has approved Epidiolex (cannabidiol oral solution; GW Pharmaceuticals) for the treatment of seizures associated with Lennox-Gastaut syndrome and Dravet syndrome in patients ≥2 years of age. This marks the first approved drug that contains an active ingredient derived from marijuana as well as the first treatment approved for patients with Dravet syndrome. The approval of Epidiolex was based on data from 3 randomized, double-blind, placebo-controlled trials (N=516) involving patients […]
HOUSTON, June 25, 2018 – Space Center Houston strives to ensure that the nonprofit is a an accessible and accepting destination. That essential work has been recognized by the International Board of Credentialing and Continuing Education Standards. The science and space exploration learning center is the first of its kind to be designated as a Certified Autism Center by the IBCCES. “Science, technology, engineering and mathematics education is for everyone,” said William T. Harris, the […]
