Category: Healthcare

UNITED CEREBRAL PALSY’S 2015 REPORT

Recent & Relevant 07/31/201507/31/2015 admin 0 Comments

Every year since 2006, United Cerebral Palsy (UCP) produces The Case for Inclusion, an annual ranking of how well State Medicaid programs serve Americans with intellectual and developmental disabilities (ID/DD) and their families. Individuals with ID/DD, including the young and the aging, want and deserve the same opportunities and quality of life as all Americans. Medicaid impacts so many—children and adults with disabilities, the elderly and families living in poverty. It is the critical safety […]

Letters: Disabled & Denied Organ Transplant

Recent & Relevant 07/31/2015 admin 0 Comments

CHRISSY RIVERA Philly Daily News Posted: Wednesday, July 29, 2015, 12:16 AM TODAY, I WILL NOT need to stop at the cemetery to visit the grave of my little girl. Nor will I have to escort her to dialysis appointments, emotionally draining visits to the ER, or endure any long hospital stays. It was not long ago, however, when I feared those excursions would become a routine and I was terrified I’d eventually be spending […]

CONVAID REUNITES WITH CURE SMA FOR NORTHERN CALIFORNIA WALK-N-ROLL TO CURE SMA EVENT

Recent & Relevant 07/31/2015 admin 0 Comments

Torrance, CA (July 30, 2015) – Convaid Products, Inc., a Torrance-based manufacturer of custom-made, compact lightweight adaptive-assisted wheelchairs today announced that it has reunited with Cure SMA for a second time this summer in support of the organization’s Northern California Walk-n-Roll to Cure SMA event to be held Saturday, August 22, 2015, at Golden Gate Park in San Francisco. In June, Convaid was a Gold Sponsor of the 2015 Annual SMA Conference – the largest […]

Prenatal Testing: Understanding What’s New And How To Get Support And Information Prenatal Testing

Down Syndrome, Healthcare, Uncategorized 07/30/201507/30/2015 admin 0 Comments

BY STEVEN M. EIDELMAN, STEPHANIE MEREDITH AND ROBERT A. SAUL, MD Over the past few years, new non-invasive prenatal screening tests (NIPS) for genetic conditions have been introduced and heavily marketed with the promise of being safer and more accurate — meaning that more families are learning during pregnancy that their child might have a health issue or disability. But, what’s the real impact on families? Are pregnant women getting counseling beforehand so they understand […]

Patient Centered Research Starts Early

Healthcare 07/28/201507/27/2015 admin 0 Comments

BY ALEXANDRA WHITE, MATT SMITH AND ERIKA LUTINS IMPACTS ON JOUBERT SYNDROME AND OTHER RELATED DISORDERS When scientists conduct clinical research, the traditional method is for the researcher to be the main contributor in the creation of the idea, the study, and the final publication of results. Patients and caregivers are typically only involved at the final stages: dissemination of results and the implementation of practice and policy changes. With this method, important stakeholders are […]