The Olmstead Decision Has Been Misinterpreted

BY JILL BARKER, DAVID HART AND TAMIE HOPP The Olmstead decision, which interprets the Americans with Disabilities Act, is so clear that persistent misinterpretation by federal agencies can only be described as purposeful. INTRODUCTION The 25th Anniversary of the American with Disabilities Act (ADA) on July 26, 2015 offers an opportunity to set the record straight about what the landmark Supreme Court decision, Olmstead v. L.C., 527 U.S. 581 (1999)1, actually says about the ADA’s […]

Parent Advocates: Champions of Change in Newborn Screening

GENETIC ALLIANCE BY BRIANA MITTLEMAN As Newborn Screening Awareness Month kicks off in September, it is important we reflect on the many advocates, communities, healthcare professionals, and state programs that work everyday to improve this public health program. Yet, in September, we honor one of the many champions of change in newborn screening: parents. Newborn screening reaches nearly all of the four million babies born in the United States, with thousands of babies receiving newborn […]

AAP UPDATES RECOMMENDATIONS ON OBESITY PREVENTION

FROM THE AMERICAN ACADEMY OF PEDIATRICS Parents and families are encouraged to model healthy behaviors for children, and pediatricians are in a good position to help families find ways to do this together. In updated recommendations, the American Academy of Pediatrics (AAP) offers practical steps families can take to help children maintain a healthy weight. The advice comes as part of an AAP clinical report published in the July 2015 issue of Pediatrics. The report, […]

TAKING CARE OF THEIR OWN

JOHNNY MAC SOLDIERS FUND BY CHRISTINE REDMAN-WALDEYER “There are 20,000 children of fallen soldiers who are out there and need help. This number will only increase over the next 10 years; there is a half a billion dollar need.” One of the first items on our bucket list for the summer included a family vacation to Mt. Vernon. My six-year-old became increasingly aware of our history this past year in kindergarten and expressed his desire […]

Where Can We Go? TRAVELING… FOR REAL!

BY MARY ANN RACCOSTA What I realized and experienced over the 16 years of having two special needs children, is that for my family to travel, we needed to be efficient researchers. I always envisioned traveling to different cities, parts of the country and even international places with my children. Yet, when my sons were born, along with them came an entirely complicated list of prerequisites for traveling. How fast can I make it to […]

Five Summer Activities For Children With Special Needs

BY NATASHA CORNIN Find inclusive or targeted activities welcoming of special needs kids, where we and our kids feel safe among others and create enriching experiences. Summer has arrived, and with it the challenges presented as we seek to maintain our special needs kids’ familiar routines while taking advantage of the seasonal activities available. Whether your child has a 10-month or 12-month program may impact your priorities as it relates to the quantity and cost […]

So Why Keep Screening?

BY H. BARRY WALDMAN DDS, MPH, PHD, STEVEN P. PERLMAN DDS, MSCD, DHL (HON, THADDEUS J. ARNOLD, MPH AND MISHA GAREY, DDS The repeated screenings do demonstrate that significant numbers of individuals are referred to dental practitioners and receive the needed relief from pain and suffering. DELAYED AND NO CARE “…On the patient side of the balance sheet, having a child with (disabilities) is costly and can directly impact a family’s stability… The general public’s […]

Do You Need to Name an Executor of Your Estate? Seven Questions and Answers to Help You Decide.

Estates vary regarding valuation and complexity. In its simplest definition, if you own assets, you have an estate. If you also have debts and/or a will, you may need someone to settle your estate when you die. “Most individuals understand the importance of creating a financial strategy or a life care plan1 for their family, especially when a family member has special needs” says Connor W. Kavanaugh, who is a Special Care Planner2 with MassMutual-Oregon3 […]

How We Made Our Vacation Work for Sammy and the Family

Is it truly vacation if we are constantly hovering over Sammy to make sure he doesn’t ruin something that doesn’t belong to us? Going away is supposed to be an exciting activity for most yet, at the same time, finding the right vacation spot can end up being a big stressor. My family and I know this from experience. We’ve always needed to find vacations that fit the needs of my brother, Sammy, who has […]

An Indoor And Inclusive Play-Away Room Can Be A Building Block For Happy Children

AN EP HOME IMPROVEMENT EXCLUSIVE BY CHARLES M SCHWAB ARCHITECT, AIA, UNIVERSAL DESIGNED AND SUSTAINABLE ARCHITECTURE “Play is the highest form of research,” noted Einstein. So let’s take a look at how your little Einstein’s, or Dr. Frankenstein’s, as the case may be, can play safely and creatively in an interior space within your home. Let’s design a Play-Away Room, designed specifically for inclusive play for your children and their playmates. Play is learning and […]