Renovating Our Home and Our Lives for Cerebral Palsy

by Jamie Sumner To renovate a home is to renovate a life. Until we began to carve out our home to make it accessible to our son with cerebral palsy, I did not know I could plan his path to freedom or how I would feel once he took it. The fact is, Charlie has outgrown this life we have built. The cerebral palsy that felt first like an anchor holding him back, now seems simply […]

SPECIAL BIKES FOR EXTRA SPECIAL PEOPLE

by Colleen Berlingieri May is National Bike Month and there is an ever-expanding diversity of events in communities nationwide & around the world. From fashion shows to group rides, local groups are finding unique ways to celebrate their diverse bike cultures and community pride. BIKE TO WORK DAY This year Bike to Work day was Friday May 18th and according to the League of American Bicyclists, most of the largest U.S. cities will participate. And […]

SPECIAL NEEDS PARENTING: AWARENESS OF REALITY AND COMMITMENT

One of the most common things people say to me is, “I don’t know how you do it. I could never be a special needs parent. There is a reason Maya was given to you and not me.” Well, I have news for all of those people. I have no super powers or special training. I don’t believe special kids are given to special people. It’s random. Nothing in my life before February 9, 2016 […]

Autism in the 1990s

By Maxine Rosaler When the psychologist who was testing our son for developmental disabilities said that his problems were “neurological” and had not been caused by “bad parenting,” as my husband and I had been led to believe by the therapist we had been seeing, autism had not yet achieved its current penetration into the American mind. People were not yet excusing minor social errors by explaining, casually, “I’m a little autistic”; nor was everyone […]

The Traps and Gaps of Special Needs Parenting

by Colleen Berlingieri Recently, my husband had surgery for prostate cancer. Not to worry. All is well and the procedure was a success. However, the process was grueling. It was a long s-l-o-w recovery filled with pain, exhaustion and pills – and that was just me – he had a hard time too! During the long weeks of his recovery we watched a lot of TV. One afternoon a commercial for a cancer drug came on. […]