Forgetting Milestones and Learning to Measure Progress… a New Way of Thinking! #StandUpforInclusion-SantoDomingo

By Mary Ellen Bogucki PART ONE A few months ago, I wrote about the “Inclusion Revolution” and the Special Olympics 50th Anniversary celebration. While we were at the 50th celebration, my daughter Bree had the great honor of meeting Cándida Montilla de Medina, the First Lady of the Dominican Republic. We also had the privilege of hearing the First Lady, who is a psychologist, speak and describe all of the positive work she is doing […]

The Endless Fight for Help: Yesterday and Today

by Maxine Rosaler When I was looking for schools for my son twenty years ago, private special education schools were the only schools equipped to give autistic children anywhere near the kind of help they needed. The competition for these schools was very stiff: it was not usual to find out that there were fifty applicants for every spot. And if a parent was lucky enough to have her child accepted at one of these […]

On Time for Myself

by Carey Handley Several years ago, when I was in counseling for depression, my therapist asked when the last time was I went away with the girls for the weekend. My very clever response was to look at her blankly and say, “Uh…never. It’s never crossed my mind.” She returned the blank look and, speaking with disbelief, told me it was about time I did exactly that. Later that night, as I was contemplating why […]

The Surprise of Cervical Spinal Stenosis

by Lisa Blumberg On Friday March 23, 2018, when Janice, the pet therapy lady, came with a languid dog whose name evades me, I could still take some steps if I leaned my full weight on my walker. My internist had just told me that my MRI indicated that the progressive weakness in my extremities was being caused by upper spinal cord compression from cervical stenosis. This totally surprised me. I was having pain now […]

What Do You See?

 by Carey Handley What do you see when you look at my daughter? I’ve sometimes wondered how other people see her. I wanted a daughter perhaps more than anything else in the world. So much so that I wished for her when I was at the Wishing Door in a mosque in Cairo, Egypt followed a few days later by a wish tucked into a crevice in the Western Wall in Israel. My wish was […]

Careers for Helping Individuals with Disabilities

Some healthcare professionals enjoy the privilege of making a positive difference in the lives of emotionally, developmentally, mentally and physically disabled people. In academic settings, for example, special needs teachers nurture a supportive environment that enhances the educational experience of disabled learners. Entry-level disability specialists may find employment in administrative positions or at special needs schools, rehabilitation centers or mental health facilities. Read on to learn about 4 rewarding professions that involve working with disabled […]

Forgetting Milestones and Learning to Measure Progress…a New Way of Thinking! #TravelingWithAutism

By Mary Ellen Bogucki For a long time we didn’t travel or take vacations. From a very young age, my daughter, Bree hated car rides. The minute the car started moving, she would cry. It took us years before we learned she had Autism and sensory issues. Her vestibular sense was affected and movement was a problem for her. The biggest mistake we made was when we decided to stop at a waterpark on our […]

On Being Normal

by Carey Handley Last week, for the second time in my daughter’s 24 years, she asked me why she couldn’t be Normal. Having been through this conversation half her life ago, I was able to reach into what’s left of my memory and recollect what it was I had told her the first time. My daughter was 12 the first time this particular subject came up and I had been completely unprepared for this discussion. […]

But today I cry

by Tulika Prasad Those who know me think, as a mom of a child with autism, I’m generally positive in my outlook. I would like to believe that is true. However, in me hides a realist–not to be confused with a pessimist. The realist me rears its head every now and then and I kick it back in, hoping it will stay there defeated and quiet. But some days it bounces back with so much […]

Forgetting Milestones and Learning to Measure Progress…a New Way of Thinking! #FindingtheRightTherapy

  By Mary Ellen Bogucki I have found that the most important thing I could ever do for my daughter, Bree, was find her the right therapy. Before Bree was born I had never heard of sensory processing disorder. I knew of Autism, but my knowledge was very limited and sadly most of it came from what I saw in the movie “Rainman”. For the first five years of Bree’s life we were repeatedly told […]