Children with special needs can be an asset to society – our cafe proves it

BY Lucy Beattie When I was approached about working in a special needs school my first thoughts were, I’m not sure I could do that, I’m not sure I want to work with unresponsive children, in an environment full of medical needs and where children dribble as they eat, in a school at the top of the hill that most local residents don’t even realise is there. Having now worked in Three Ways school for […]

Endrew F. Supreme Court Case: Strengthening The Voices Of Families At IEP Meetings

Many parents have had an experience similar to the one faced by Endrew F.’s parents, in which their child’s IEP goals don’t vary each year and there is lack of progress. BY DIANA AUTIN, MARIA DOCHERTY AND LAUREN AGORATUS, M.A. The recent Supreme Court case, Endrew F. vs. Douglas County School District, has implications for parents participating in the IEP (Individualized Education Program) development for their child. The decision clarifies the rights of children with […]

11 Tips For Selecting A School For Your Child With Special Needs

People will throw names of schools out to you and all sorts of ideas. But it comes down to your child and his or her needs — not what worked for someone else. BY AMI NEIBERGER-MILLER, APR, MA Selecting a school for your child who is coping with special needs can be a daunting task for any parent or guardian. In this article, we talk with the staff at the Episcopal Center for Children (the […]

Calling All Innovators For The “CAREGIVERS SHARK TANK”

The National Caregivers Conference is inviting innovators, inventors, researchers and thought leaders to share their new ideas, products, technology’s, or therapeutic concepts that aim to transform the health and role of family caregivers. The National Caregivers Conference is returning to New Jersey since Superstorm Sandy forced its cancellation in October 2012. This annual conference is renowned for its National level speakers, workshops and exhibitors who address both individual and national issues facing the caregiver community. […]

Training First Responders To Respond Bettter

“The SNAP Program makes a vital contribution to the armamentarium of best practices addressing the unique needs of special populations and their ability to thrive and participate in the community. It will become a time-honored component in the first responders’ toolkit.” – Rick Rader, MD, Medical Liaison, SNAP Program BY BRUCE GARNER Even under the best of circumstances, it is challenging to be a good parent, but when your child has special needs, it gets […]

Transitions: Moving from pediatric care to adult care can be tricky. Here are eight questions to ask your doctor to facilitate the process.

Kritz, Fran Neurology Now: October/November 2017 – Volume 13 – Issue 5 – p 10–11 Many neurologic diseases, such as epilepsy, spinal muscular atrophy, muscular dystrophy, or Down syndrome, begin in childhood when patients are seen by pediatric neurologists. What happens when these patients age into adulthood? Do they stay with their pediatric specialist or switch to a neurologist who treats adults or both children and adults? The accepted wisdom is to transition to doctors […]

Don’t Ask Taxpayers to Support Children with Disabilities

AMERICAN ACADEMY OF DEVELOPMENTAL MEDICINE & DENTISTRY BY H. BARRY WALDMAN DDS, MPH, PHD, STEVEN P. PERLMAN DDS, MSCD, DHL (HON) AND MATTHEW COOKE, DDS, MD, MPH “Don’t ask taxpayers to support disabled children: When I was 10 years old, I chose to be child-free because I knew that I would not make a good parent, and at 38 I’m still content with my choice… Parenthood is a choice, not a divine right, and all […]

GW Pharmaceuticals Announces Positive Results from Phase 3 Cannabidiol Trial

GW Pharmaceuticals has announced positive results from the first of two Phase 3 studies of Epidiolex® (cannabidiol or CBD) in the treatment of Dravet syndrome. Median seizure reduction was 39% with Epidiolex versus only 13% with placebo, a scientifically significant finding. In addition, the side-effect profile was acceptable for an anti-epileptic drug and secondary endpoints were supportive of a robust treatment effect. “This is a very important day for the epilepsy community and families struggling […]

Marijuana-Based Drug Found to Reduce Epileptic Seizures

SOURCE THE NEW YORK TIMES By ANDREW POLLACK An experimental drug derived from marijuana has succeeded in reducing epileptic seizures in its first major clinical trial, the product’s developer announced on Monday, a finding that could lend credence to the medical marijuana movement. The developer, GW Pharmaceuticals, said the drug, Epidiolex, achieved the main goal of the trial, reducing convulsive seizures when compared with a placebo in patients with Dravet syndrome, a rare form of […]

Mind-controlled prosthetic arm moves individual ‘fingers’

Physicians and biomedical engineers from Johns Hopkins report what they believe is the first successful effort to wiggle fingers individually and independently of each other using a mind-controlled artificial “arm” to control the movement. The proof-of-concept feat, described online in the Journal of Neural Engineering, represents a potential advance in technologies to restore refined hand function to those who have lost arms to injury or disease, the researchers say. The young man on whom the […]