Genetic Manipulation for Individuals with Disabilities: Does CRISPR-Cas9 Provide a Magic Bullet?

AMERICAN ACADEMY OF DEVELOPMENTAL MEDICINE & DENTISTRY BY H. BARRY WALDMAN DDS, MPH, PHD, STEVEN P. PERLMAN DDS, MSCD, DHL (HON), RICK RADER, MD, FAAIDD, DHL (HON) AND MATTHEW COOKE, DDS, MD, MPH “In 1972, WABC-TV in New York sent rookie reporter Geraldo Rivera to Staten Island to infiltrate the Willowbrook State School. Robert Kennedy had visited the mental institution in 1966 and declared: ‘Willowbrook State School was not fit even for animals to live […]

Back To The Basics

The food you eat can either be the safest and most powerful form of medicine or the slowest form of poison.” ~ ann Wigmore BY ADEOLA SONAIKE, PHD, MPH, CHES The Family Resource Network launched The Center on Nutrition and Disability, which aims to further assist families and professionals with fostering a healthy relationship with food for people with special health care needs, chronic conditions, and their caregivers. One of the biggest issues people face […]

The Resilient Caregiver

BY LAUREN AGORATUS, M.A. TAKING CARE OF YOURSELF WHILE CARING FOR ANOTHER Did you know that November of each year is National Family Caregivers Month by presidential proclamation? In part the proclamation reads: “Whereas, the primary source of community-based services and the cornerstone of our long-term care system are care recipients’ family members, friends and neighbors who help their loved ones maintain their independence and their quality of life; and…according to the National Alliance for […]

Diet & Nutrition: From Babies To Teens

BY JORDAN CAPIZOLA AND LILLIAN DUFFIELD The new year inspires many people to set goals for themselves, especially when it comes to diet and nutrition. People, especially parents, see it as an opportunity to reset their behaviors and develop healthier habits. Parents spend a great deal of time researching ideas and recipes for how to keep their families healthy, but sometimes researching information online can be daunting. It seems like every day there is new […]

Telehealth and Children with Disabilities

AMERICAN ACADEMY OF DEVELOPMENTAL MEDICINE & DENTISTRY BY H. BARRY WALDMAN DDS, MPH, PHD, LISA BARD LEVINE, MD, MBA, ANDREW G. SCHWARTZ, DDS, FACD, RICK RADER, MD, FAAIDD, DHL (HON) AND STEVEN P. PERLMAN DDS, MSCD, DHL (HON) “Persons with severe functional disabilities are the highest users of health care services. Care for the needs of this population represents a significant percentage of our national health care costs. A growing body of research has demonstrated […]

It Just Seems Normal

AMERICAN ACADEMY OF DEVELOPMENTAL MEDICINE & DENTISTRY BY H. BARRY WALDMAN DDS, MPH, PHD, STEVEN P. PERLMAN DDS, MSCD, DHL (HON) AND MATTHEW COOKE, DDS, MD, MPH AND CHARLES D. LARSEN, DMD, MS The 1990 Americans with Disabilities (ADA) legislation set the civil rights ground rules that prohibit discrimination against individuals with disabilities in all areas of public life, including jobs, schools, transportation, and all public and private places that are open to the general […]

Resources For Multi-Sensory Environments

BY JANICE K. RYAN, OTD, OTR/L Multi-sensory activities are suggested that are easy to locate, relatively inexpensive to buy, and will allow you to better understand how to create your child’s and family’s own personally-preferred home environment. The American Association of Multi-Sensory Environment (AAMSE) approach to treating people with special needs is an evolution of earlier ideas put forth by occupational therapists, neurophysiologists, educators, and the energy techniques used by complementary and integrative medicine (CIM) […]

Joining The Fight For Human Rights

Special Olympics has found that people with intellectual disabilities are being excluded from national laws and policies in countries around the world. BY JAVIER VASQUEZ To the rest of the world, human rights are assumed and not questioned. Special Olympics fights for people with intellectual disabilities (ID) to obtain the same human rights as everyone else. Human rights are defined as universal freedoms and entitlements all human beings share, whatever their race, nationality, place of […]

Including People With Disabilities In The Communities’ Public Health Initiatives To Eliminate Health Disparities

BY LAUREN AGORATUS, M.A. “By every measure, persons with disabilities disproportionately and inequitably experience morbidity and mortality associated with unmet healthcare needs in every sphere. Minorities with disabilities are doubly burdened by their minority status.” – “Assuring Health Equity for Minority Persons with Disabilities. A Statement of Principles and Recommendations.” A recommendation report from the HHS Advisory Committee on Minority Health. July 2011. People with disabilities are a recently recognized population1 affected by health disparities. […]

Are Refugees with Disabilities Overlooked in the General Multitude of Displaced Persons?

BY H. BARRY WALDMAN DDS, MPH, PHD, STEVEN P. PERLMAN DDS, MSCD, DHL (HON) AND MATTHEW COOKE, DDS, MD, MPH “As many as 7.7 million of the world’s 51 million people displaced by conflict have disabilities. People with disabilities are among the most hidden and neglected of all displaced people, excluded from or unable to access most aid programs because of physical and social barriers or because of negative attitudes and biases.” 1 Another report […]