Healthcare Extension and Accessibility for Developmentally disabled and Underserved Population Act of 2018

The Healthcare Extension and Accessibility for Developmentally disabled and Under served Population Act of 2018, or HEADs UP Act, would designate people with Intellectual and Developmental Disabilities (I/DD) as a Medically Underserved Population (MUP) under the Health Services and Resources Administration (HRSA). People with I/DD experience poorer health, shortened life expectancies, and lack access to even the most basic forms of care when compared to the non-disabled population. A designation as a MUP would help […]

Health Disparities for Adults with IDD Make Inclusive Health a Worthy Goal

By Janet Shouse Did you know that people with intellectual and developmental disabilities die an average of 16 years earlier than typical Americans? And unlike other Americans, women with IDD die earlier than men with IDD. This is not information any of us really want to hear. So why is this happening? We know that people with intellectual and developmental disabilities have a higher rate of co-occurring physical disorders, such as epilepsy, chronic constipation, obesity, […]

Northeast Arc, Flutie Foundation and Accion Team Up to Launch New Opportunity Lending Program

Lending program will provide microloans to advance business goals and employment opportunities for individuals with intellectual disabilities and autism Boston, Mass. (July 16, 2018) – Northeast Arc, the Doug Flutie, Jr. Foundation for Autism and Accion announced today the launch of a new program, Opportunity Lending, which will provide microloans to enhance employment and business opportunities for individuals with intellectual disabilities and autism. Loans ranging from $1,000 to $250,000 will be available to individuals who wish […]

States Aim To Halt Sexual Abuse Of People With Intellectual Disabilities

Heard on All Things Considered Earlier this year, NPR reported that people with intellectual disabilities are victims of some of the highest rates of sexual assault. NPR found previously undisclosed government numbers showing that they’re assaulted at seven times the rate of people without disabilities. Now states, communities and advocates, citing NPR’s reporting, are making reforms aimed at improving those statistics. In Pennsylvania, legislation passed the state House of Representatives earlier this month that would […]

Employable Me has struck a chord but will it change employers’ attitudes to disability?

BY: Katie Sutherland Doctor of Creative Arts Candidate, Western Sydney University “I’m glad you can make use of my weapons grade autism”, laughs Jonathon in the ABC TV series Employable Me. He has landed a competitive paid internship, channelling his passion for accountancy. As well as a love of numbers, he has a wicked sense of humour and a way with words. And his sentiment is in line with the theme of the series, which […]

New Brain Development Disorder Identified

Summary: Researchers have identified a new neurodevelopmental disorder. The study reveals the inherited disorder can produce learning difficulties and increase seizure risks. The researchers have implicated a recessive mutation in CAMK2A in this new disorder. Source: eLife. Researchers have identified a new inherited neurodevelopmental disease that causes slow growth, seizures and learning difficulties in humans. Writing in the journal eLife, the team reveals that this disease is caused by a recessive mutation in CAMK2A – […]

Study Finds Facial Analysis Software Able to Identify Patients with Williams-Beuren Syndrome

A new study has shown that researchers have successfully used facial analysis technology and clinical information to successfully identify patients with Williams-Beuren syndrome, a rare condition that causes cardiovascular problems and intellectual disability. Though Williams-Beuren syndrome is a genetic condition, most case are not inherited. It affects about 1 in 7,500 to 10,000 people. People with the condition have distinctive facial features including puffiness around the eyes, a short nose with a broad tip, full […]

Children with special needs can be an asset to society – our cafe proves it

BY Lucy Beattie When I was approached about working in a special needs school my first thoughts were, I’m not sure I could do that, I’m not sure I want to work with unresponsive children, in an environment full of medical needs and where children dribble as they eat, in a school at the top of the hill that most local residents don’t even realise is there. Having now worked in Three Ways school for […]

Endrew F. Supreme Court Case: Strengthening The Voices Of Families At IEP Meetings

Many parents have had an experience similar to the one faced by Endrew F.’s parents, in which their child’s IEP goals don’t vary each year and there is lack of progress. BY DIANA AUTIN, MARIA DOCHERTY AND LAUREN AGORATUS, M.A. The recent Supreme Court case, Endrew F. vs. Douglas County School District, has implications for parents participating in the IEP (Individualized Education Program) development for their child. The decision clarifies the rights of children with […]

11 Tips For Selecting A School For Your Child With Special Needs

People will throw names of schools out to you and all sorts of ideas. But it comes down to your child and his or her needs — not what worked for someone else. BY AMI NEIBERGER-MILLER, APR, MA Selecting a school for your child who is coping with special needs can be a daunting task for any parent or guardian. In this article, we talk with the staff at the Episcopal Center for Children (the […]