Endrew F. Supreme Court Case: Strengthening The Voices Of Families At IEP Meetings

Many parents have had an experience similar to the one faced by Endrew F.’s parents, in which their child’s IEP goals don’t vary each year and there is lack of progress. BY DIANA AUTIN, MARIA DOCHERTY AND LAUREN AGORATUS, M.A. The recent Supreme Court case, Endrew F. vs. Douglas County School District, has implications for parents participating in the IEP (Individualized Education Program) development for their child. The decision clarifies the rights of children with […]

11 Tips For Selecting A School For Your Child With Special Needs

People will throw names of schools out to you and all sorts of ideas. But it comes down to your child and his or her needs — not what worked for someone else. BY AMI NEIBERGER-MILLER, APR, MA Selecting a school for your child who is coping with special needs can be a daunting task for any parent or guardian. In this article, we talk with the staff at the Episcopal Center for Children (the […]

Looking at School Placements from Both Sides of the Table

BY JOANNE DESIMONE As the outreach coordinator for the Alliance of Private Special Education Schools of North Jersey, I help parents and district case managers find appropriate placement options for their students. As a special educator and parent of two children with disabilities, I use the knowledge I’ve acquired, sitting on both sides of the table. When parents call me for placement options, I especially lean on the experience I had with my younger son […]

Calling All Innovators For The “CAREGIVERS SHARK TANK”

The National Caregivers Conference is inviting innovators, inventors, researchers and thought leaders to share their new ideas, products, technology’s, or therapeutic concepts that aim to transform the health and role of family caregivers. The National Caregivers Conference is returning to New Jersey since Superstorm Sandy forced its cancellation in October 2012. This annual conference is renowned for its National level speakers, workshops and exhibitors who address both individual and national issues facing the caregiver community. […]

NDSS Athlete Team to Run 250+ Miles for Down Syndrome Advocacy

The National Down Syndrome Society (NDSS), the leading human rights organization for all individuals with Down syndrome, proudly announces its official Athlete Team and Run Route for the Run for 3.21, a 250+ mile run from Washington D.C. to New York City. The run will serve as a major fundraiser for NDSS in 2018 and recognition of World Down Syndrome Day on March 21. This multi-day adventure kicked off at 6:00 a.m. on March 19 […]

Welcome To GiGi’s Playhouse

Nancy Gianni realized that she now had a mission – to change the way the world sees Down syndrome and promote acceptance for all, while providing opportunities and support for GiGi and others like her. When Nancy Gianni gave birth to her daughter, GiGi, 15 years ago, she thought she knew exactly what to expect of those early hours and days. She had already brought two babies into the world and was looking forward to […]

Starting ’em Young

Young Athletes engages families by highlighting the power of play. Young Athletes includes a series of structured physical activities, songs and games to teach basic motor development skills for children with and without intellectual disabilities, ages 2 to 7 years old. BY REBECCA RALSTON In a small community near Phitsanulok, Thailand, a young boy named Kongpob Yangkam lives with his grandparents and 17-year-old sister. Kong, as his family lovingly calls him, has intellectual disabilities and […]

The Sexual Assault Epidemic No One Talks About

Heard on All Things Considered Joseph Shapiro     Editor’s note: This report includes graphic and disturbing descriptions of assault. Pauline wants to tell her story — about that night in the basement, about the boys and about the abuse she wanted to stop. But she’s nervous. “Take a deep breath,” she says out loud to herself. She takes a deep and audible breath. And then she tells the story of what happened on the […]

Training First Responders To Respond Bettter

“The SNAP Program makes a vital contribution to the armamentarium of best practices addressing the unique needs of special populations and their ability to thrive and participate in the community. It will become a time-honored component in the first responders’ toolkit.” – Rick Rader, MD, Medical Liaison, SNAP Program BY BRUCE GARNER Even under the best of circumstances, it is challenging to be a good parent, but when your child has special needs, it gets […]

Transitions: Moving from pediatric care to adult care can be tricky. Here are eight questions to ask your doctor to facilitate the process.

Kritz, Fran Neurology Now: October/November 2017 – Volume 13 – Issue 5 – p 10–11 Many neurologic diseases, such as epilepsy, spinal muscular atrophy, muscular dystrophy, or Down syndrome, begin in childhood when patients are seen by pediatric neurologists. What happens when these patients age into adulthood? Do they stay with their pediatric specialist or switch to a neurologist who treats adults or both children and adults? The accepted wisdom is to transition to doctors […]