What is the Newborn Screening Clearinghouse?

Baby’s First Test houses the nation’s newborn screening clearinghouse. The clearinghouse provides current educational and family support and services information, materials, and resources about newborn screening at the local, state, and national levels and serves as the Clearinghouse for newborn screening information. The clearinghouse is supported and funded as a result of the Newborn Screening Saves Lives Act passed in 2008. Continued support for the clearinghouse is possible under the Newborn Screening Saves Lives Reauthorization […]

A Financial Planning Guide for Parents of a Child with Special Needs

Raising a child with special needs can be one of the richest experiences life has to offer, but it is also one of the most costly. According to Autism Speaks, raising a child with autism costs on average $60,000 a year. Of course, this figure varies depending on the type and severity of your child’s condition. In some cases, it can cost even more. For new parents, such a drastic change in circumstances can be […]

Tax Planning for Families of Special Needs Children

The information in this article is educational in nature and is not to be considered tax advice. Please contact a qualified tax professional to discuss how these concepts may or may not apply to your personal situation. Summary of Tax Cuts and Jobs Act (TCJA) as it Relates to Families The Tax Cuts and Jobs Act of 2017 (TCJA) is the big tax reform bill that passed at the end of 2017.  In addition to […]

Wandering: Disability and Safety

Wandering, also called elopement, is an important safety issue that affects some people with disabilities, their families, and the community. There are steps that parents, teachers, healthcare providers, and others can take to help keep children safe. Wandering is when someone leaves a safe area or a responsible caregiver. This typically includes situations where the person may be injured or harmed as a result.1 Wandering goes beyond the brief time that a typical toddler might […]

Choosing Appropriate Gifts for Kids with Special Needs

Buying the perfect gift for kids and other loved ones can be challenging, and this can also be true when buying gifts for kids with autism. To help make your gift-giving easier, here are a few helpful tips to keep in mind when purchasing gifts for individuals with autism: Focus on the person’s interests and preferences Research shows that incorporating preferences into the learning and play environment of individuals with autism, can reduce behaviors and […]