Alzheimer’s, down syndrome vaccine trial his important milestones

AC Immune SA (NASDAQ:ACIU), a Swiss-based, clinical-stage biopharmaceutical company with a broad pipeline focused on neurodegenerative diseases, today announced two clinical milestone events related to ACI-24, its anti-Abeta vaccine against Alzheimer’s disease and Abeta-related cognitive decline in Down Syndrome, according to a release from NASDAQ. Prof. Andrea Pfeifer, CEO of AC Immune, said: “We are delighted with the progress of ACI-24, the anti-Abeta vaccine, derived from our proprietary SupraAntigenTM platform. In addition to the development in […]

Why Doctors Should Ask About the Use of Supplements in Patients with Down Syndrome

My wife is a pediatrician and in better health than I am. She is physically fit and obsessively exercises, which is more than I would claim about myself. She begins her day in a routine way, which includes drinking a foul-smelling concoction of green tea, herbs, and spices that are said to have anti-inflammatory qualities. She uses it to wash down fist-full of supplements, which are without solid scientific evidence of extending life or delivering […]

Parental Perspectives on Down Syndrome Research Webinar – July 31 – NTG notice

In our webinar series this year, participants have heard from researchers and me about the exciting research that is getting closer to clinical trials and the potential outcomes these promising interventions could have on individuals with Down syndrome. Today, I invite you to register for our July 31st webinar to hear about the priorities, expectations and concerns for Down syndrome research that families have. Parental Perspectives on Down Syndrome Research and 5 ways to families can […]

This woman is an exceptionally effective Capitol Hill lobbyist. She also has Down syndrome.

by Allison Klein There are thousands of lobbyists in Washington, legions of well-connected pros who are hired by special interest groups to vigorously advocate for issues. Perhaps nobody in those ranks is more committed to their cause than Kayla McKeon, the first registered Capitol Hill lobbyist with Down syndrome. “I make personal connections, tell personal stories,” said McKeon, 30, who works for the District-based National Down Syndrome Society. “It’s hard for them to say no.” […]

Caregiver Initiative For Individuals With Down Syndrome

NDSS has partnered with the Alzheimer’s Association and National Task Group on Intellectual Disabilities and Dementia Practices to author a guidebook specifically for those caring for an individual with Down syndrome diagnosed with Alzheimer’s disease. BY SARA HART WEIR For members of the Down syndrome and disability communities, caregivers play an important role in helping members of the community lead a healthy, productive and happy lives. It is not uncommon for caregivers to put the […]

Children with special needs can be an asset to society – our cafe proves it

BY Lucy Beattie When I was approached about working in a special needs school my first thoughts were, I’m not sure I could do that, I’m not sure I want to work with unresponsive children, in an environment full of medical needs and where children dribble as they eat, in a school at the top of the hill that most local residents don’t even realise is there. Having now worked in Three Ways school for […]

Endrew F. Supreme Court Case: Strengthening The Voices Of Families At IEP Meetings

Many parents have had an experience similar to the one faced by Endrew F.’s parents, in which their child’s IEP goals don’t vary each year and there is lack of progress. BY DIANA AUTIN, MARIA DOCHERTY AND LAUREN AGORATUS, M.A. The recent Supreme Court case, Endrew F. vs. Douglas County School District, has implications for parents participating in the IEP (Individualized Education Program) development for their child. The decision clarifies the rights of children with […]

11 Tips For Selecting A School For Your Child With Special Needs

People will throw names of schools out to you and all sorts of ideas. But it comes down to your child and his or her needs — not what worked for someone else. BY AMI NEIBERGER-MILLER, APR, MA Selecting a school for your child who is coping with special needs can be a daunting task for any parent or guardian. In this article, we talk with the staff at the Episcopal Center for Children (the […]

Looking at School Placements from Both Sides of the Table

BY JOANNE DESIMONE As the outreach coordinator for the Alliance of Private Special Education Schools of North Jersey, I help parents and district case managers find appropriate placement options for their students. As a special educator and parent of two children with disabilities, I use the knowledge I’ve acquired, sitting on both sides of the table. When parents call me for placement options, I especially lean on the experience I had with my younger son […]

Calling All Innovators For The “CAREGIVERS SHARK TANK”

The National Caregivers Conference is inviting innovators, inventors, researchers and thought leaders to share their new ideas, products, technology’s, or therapeutic concepts that aim to transform the health and role of family caregivers. The National Caregivers Conference is returning to New Jersey since Superstorm Sandy forced its cancellation in October 2012. This annual conference is renowned for its National level speakers, workshops and exhibitors who address both individual and national issues facing the caregiver community. […]