LuMind RDS Foundation and IDSC Collaborate on a Research and Medical Care Facebook Group for Caregivers

BURLINGTON, Mass. January 18, 2019 – LuMind™ Research Down Syndrome Foundation (LuMind RDS) and International Down Syndrome Community (IDSC) are combining resources and expertise on a collaboration to create the IDSC LuMind RDS Facebook Group to better serve people with Down syndrome and their communities. “An important part of the LuMind RDS mission is connecting families with the progress of research,” says Hampus Hillerstrom, President and CEO of LuMind RDS, “By collaborating with IDSC on […]

Fire Safety for Your Special Needs Child

While every family should have a home fire safety plan, it’s even more critical if you have a family member with cognitive or physical disabilities. These individuals are 2.5 to 6.5 times more likely to die in a house fire. However, there are a number of safety precautions you can take to reduce the risk of injury for your loved ones. Identify exits Assess each room in your home and identify at least two exits, […]

Preventing Abuse of Your Special Needs Child

Here’s a somber statistic: Individuals with intellectual and developmental disabilities are far more likely to be abused by someone they know than a stranger. Abuse is any behavior that is unwanted, intentionally harmful, demeaning or insulting, or causes the victim to be afraid. This may include physical violence, sexual assault, bullying, emotional maltreatment or neglect. Sadly, because an individual with intellectual and developmental disability may be perceived as an “easy target,” the likelihood of abuse […]

Stranger Safety for Your Special Needs Child

When we envision a child with Down syndrome navigating the world without adult supervision, fears about encounters with strangers naturally surface. Many individuals with Down syndrome are friendly and trusting, by nature, and respond warmly to a new acquaintance, a trait that is generally celebrated by those who are privileged to meet them. But, this endearing quality creates a vulnerability that obligates parents to teach them to distinguish between acceptable, harmless exchanges with strangers and […]

2,000 Human Brains Yield Clues To How Genes Raise Risk For Mental Illnesses

Artificial intelligence model improves prediction six-fold It’s one thing to detect sites in the genome associated with mental disorders; it’s quite another to discover the biological mechanisms by which these changes in DNA work in the human brain to boost risk. In their first concerted effort to tackle the latter, 15 collaborating research teams of the National Institutes of Health-funded PsychENCODE Consortium (link is external) leveraged statistical power gained from a large sample of about […]

Down Syndrome competitor Lucas Barron to make Dakar Rally history

Lucas Barron will make history on Sunday when he lines up on the Dakar Rally starting line in Peru, becoming the first person with Down Syndrome to take part in the grueling race. The 25-year-old, who will be co-pilot for his father Jacques, will tackle the world’s most demanding rally: a 5,000-km, 10-day marathon, 70 percent of which will be raced over sand. “Our aim is to finish the race and achieve our goal,” a […]

Office of Community Support for Military Families With Special Needs

If your military family has a family member or child with special needs, there are numerous resources, services and programs available to help you. But where do you start? Here are some top resources. The Exceptional Family Member Program Sometimes half the battle of managing your family member’s care is knowing what resources and services are available and how to access them. The Exceptional Family Member Program, or EFMP, is a great place to begin. […]

Play and friendship for children with disability

Making friends, playing and getting along with other children are good for all children, including your child with disability. You can support your child as he learns how to play and have friendships. Why friendship and play are good for your child with disability Play and friendships help your child with disability learn all kinds of skills and abilities. After all, children are fantastic teachers of other children. And playing with other children is great […]

Down Syndrome Overview

Down syndrome is the most common and readily identifiable chromosomal condition associated with intellectual disabilities. It is caused by a chromosomal abnormality: for some unknown reason, an accident in cell development results in 47 instead of the usual 46 chromosomes. This extra chromosome changes the orderly development of the body and brain. In most cases, the diagnosis of Down syndrome is made according to results from a chromosome test administered shortly after birth. Just as […]

We are calling on the world to take action for inclusion

Inclusion International is the global network of people with intellectual disabilities and their families. For people with intellectual disabilities and their families the reality is that we are still being left behind and excluded from all areas of society. We work together to make inclusion happen. Today is International Day for Persons with Disabilities. This year the focus is on empowering persons with disabilities to make sure inclusion and equality are real. Today we ask […]