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Category: Down Syndrome
Going Solo
BY KIMBERLEE RUTAN MCCAFFERTY To the casual onlooker it was not a remarkable scene. A middle-aged mom trudging through the rain, huge beach bag slung precariously over her shoulder while clutching the hands of a ‘tween and a younger son, heading for the relative paradise of a movie theater overhang. If anyone had cared to look they would have viewed a grim determination in her eyes, a desire to reach her destination etched into the […]
Youth Participation In Transition Planning
BY VALERIE LEITER In 2004, Congress added new transition requirements to the Individuals with Disabilities Education Act (IDEA), striving to improve youth outcomes after high school. These new requirements say that the Individual Education Program (IEP) must include “appropriate measurable postsecondary goals” and the “transition services… needed to assist the child in reaching those goals.” They also give students the right to participate in planning once their IEP meetings focus on transition from school. It […]
Becoming An Adult
GENETIC ALLIANCE The world’s leading nonprofit health advocacy organization committed to transforming health through genetics and promoting an environment of openness centered on the health of individuals, families, and communities. It is important to think ahead and consider the needs your child will have so that you can make sure those needs are covered without unnecessary interruption. BECOMING AN ADULT NAVIGATING THE HEALTHCARE TRANSITION PROCESS Becoming an adult comes with lots of changes: new responsibilities, […]
Health Coverage Options for Children with Special Health Care Needs
BY LAUREN AGORATUS, M.A. WHAT HAPPENS WHEN THEY AGE OUT OF CHILDREN’S PLANS? Parents may not be aware of all the choices available for insurance coverage for their children with special needs as they become young adults. Options can include continuing dependent coverage, as well as public and private insurance. It is important to note that children with special health care needs may be eligible for more than one type of plan. Parents and their […]