Down Syndrome Overview

Down syndrome is the most common and readily identifiable chromosomal condition associated with intellectual disabilities. It is caused by a chromosomal abnormality: for some unknown reason, an accident in cell development results in 47 instead of the usual 46 chromosomes. This extra chromosome changes the orderly development of the body and brain. In most cases, the diagnosis of Down syndrome is made according to results from a chromosome test administered shortly after birth. Just as […]

Holiday Travel Tips for People with Disabilities

The Transportation Security Administration has shared some important tips to help you better prepare for security screening at our Nation’s airport screening checkpoints for the 2018 holiday traveling season. In anticipation of increased wait times and long lines, we are providing the following TSA travel tips: • All travelers should arrive at least two hours early for domestic and three hours early for international flights, to allow plenty of time to get through security screening. […]

Cognitive Behavioral Therapy and Autism Spectrum Disorders

Connie Anderson, Ph.D. IAN Community Scientific Liaison Many behavioral therapies have been used to treat young children with autism spectrum disorders (ASD), including Applied Behavior Analysis and Pivotal Response Training. Older children, teens, and adults with ASD may benefit from another intervention with a behavioral component: Cognitive Behavioral Therapy (CBT). Beyond behavior Therapies based on the science of behavior have been effective for people of all ages, and are an essential item in any mental […]

Understanding Accessible Housing: The Fair Housing Act

An accessible home is one that allows its occupant to do what he or she wants and needs to do, as independently as possible. If you or someone in your family is disabled, your home may need specific modifications to make it accessible for daily living. You are protected under the Fair Housing Act, which stipulates property owners to make, or allow residents to make, a home accessible for those with specific or special needs. […]

Families Face Autism Stigma, Isolation

Marina Sarris Interactive Autism Network at Kennedy Krieger Institute Parents report that their child’s autistic behaviors, combined with social stigma and isolation, make their lives more challenging, according to a new study of the Simons Simplex Collection (SSC). In one of the largest studies of its kind, Ruth L. Fischbach PhD looked at how and why stigma affects families. Stigma occurs when people feel shamed, inferior and isolated because they are different from others.1 Her […]

Autism And The Importance Of Self-esteem

Self-esteem refers to an individual’s opinion of him or herself. People with healthy self-esteem trust their own instincts and abilities, believe that they are worthy of good things happening to them, and are confident that, with effort, they can accomplish any necessary or desired task. Unhealthy self-esteem can range from a dislike of oneself to an over-inflated self-opinion. Research has shown that an individual’s self-esteem strongly influences his or her interpersonal relationships, behavior, and learning. […]

Stress and the Autism Parent

Marina Sarris Interactive Autism Network at Kennedy Krieger Institute Most parents experience stress, but for those raising children with autism, everyday life often brings Stress with a capital S. They need to keep their child from running away, manage meltdowns, wrangle with teachers about special education needs, avoid sights or sounds that overload his senses, and drive to therapists or doctors. And that’s just what Monday looks like. They do all this while sleep-deprived. Many […]

Understanding Tourette Syndrome

The more people know, the better equipped they are to improve the lives of everyone living with Tourette. People living with Tourette syndrome (TS) often face challenges, such as co-occurring conditions including attention-deficit/hyperactivity disorder (ADHD), obsessive-compulsive disorder (OCD), discrimination, exhaustion, bullying, and uncertainty. Despite these challenges, many people with Tourette are high achievers, resilient, and lead rich and fulfilling lives. An accurate diagnosis, treatment, and support for individuals and their families are the key to […]

Building Confidence In Children And Teenagers With Autism Spectrum Disorder

When you recognize and build on the strengths, interests and talents of your child with autism spectrum disorder (ASD), you can develop and strengthen your child’s confidence and self-esteem. Everyday activities give you lots of opportunities to do this. Why confidence is important for children and teenagers Children and teenagers who are confident can cope better when things go wrong. They’re less likely to feel afraid in new or unexpected situations. But children and teenagers […]

Self-identity and self-esteem for teenagers with autism spectrum disorder

During adolescence, your child with autism spectrum disorder (ASD) is forming an independent identity. This is a normal and important part of becoming an adult, and you can do a lot to support your child and build his self-esteem along the way. Self-identity and self-esteem for teenagers with autism spectrum disorder: what to expect Teenagers with autism spectrum disorder (ASD) can find it harder than typically developing teenagers to work out who they are and […]