Training First Responders To Respond Bettter

“The SNAP Program makes a vital contribution to the armamentarium of best practices addressing the unique needs of special populations and their ability to thrive and participate in the community. It will become a time-honored component in the first responders’ toolkit.” – Rick Rader, MD, Medical Liaison, SNAP Program BY BRUCE GARNER Even under the best of circumstances, it is challenging to be a good parent, but when your child has special needs, it gets […]

Transitions: Moving from pediatric care to adult care can be tricky. Here are eight questions to ask your doctor to facilitate the process.

Kritz, Fran Neurology Now: October/November 2017 – Volume 13 – Issue 5 – p 10–11 Many neurologic diseases, such as epilepsy, spinal muscular atrophy, muscular dystrophy, or Down syndrome, begin in childhood when patients are seen by pediatric neurologists. What happens when these patients age into adulthood? Do they stay with their pediatric specialist or switch to a neurologist who treats adults or both children and adults? The accepted wisdom is to transition to doctors […]

National Down Syndrome Society Launches National Campaign Spotlighting Laws that Prevent Individuals with Down Syndrome from Seeking Careers

The National Down Syndrome Society (NDSS), a human rights organization for all individuals with Down syndrome, will soon bring together community leaders, self-advocates, parents and employers to launch their latest campaign – Law Syndrome. NDSS’ Law Syndrome campaign will help launch October as Down Syndrome Awareness Month and National Disability Employment Awareness Month. Law Syndrome directly addresses the challenges faced by people with Down syndrome who desire to fulfill career goals, get married and live […]

Enhancing Lives Of People With Down Syndrome

BY SARA HART WEIR, MS The National Down Syndrome Society (NDSS) is the leading human rights organization for individuals with Down syndrome. NDSS envisions a world in which all people with Down syndrome have the opportunity to enhance their quality of life, realize their life aspirations and become valued members of welcoming communities. Down syndrome is the most commonly occurring chromosomal condition. One in every 691 babies in the United States is born with Down […]

Practice Without Pressure

Practice Without Pressure™ greatly reduces and, most times, eliminates the need for sedation and restraint. The PWP model includes the individual, the family/caregiver, and the clinican, and introduces the PWP practice specialist into the paradigm. BY DEBORAH JASTREBSKI THE NEED You wake up one morning and your tooth hurts. Although it’s not your favorite thing you call your dentist, make an appointment and go get it fixed. You’re nervous but you tell the dentist that, […]

A Holistic Guide For Families Who Have A Loved One With Special Needs

PUBLIC BENEFITS BY CALEB HARTY Many important benefits are outlined below, but not all. Also, effort has been made to point out important aspects of the programs, but outlining every detailed exception, rule, etc., is beyond the scope of this informational guide. For context, most of these programs are “means-tested,” which means they are usually not available until the child turns 18 because up until that point the parents’ assets and income are taken into […]

Where Do We Go from Here?

MAKING INFORMED DECISIONS ABOUT SPECIAL EDUCATION DISPUTE RESOLUTION BY WILLIAM BLACKWELL, ED.D. Planning special education services is a collaborative process involving parents, children, and school personnel. While the majority of individualized education programs (IEPs) are developed collaboratively, there are situations in which disagreements arise that are not easily resolved. Parents are sometimes left asking themselves, “Where do we go from here?” following an unsuccessful attempt at resolving differences with school personnel. Our federal special education […]

Transitioning From Pre-school To Elementary School, And Beyond:

STUDENTS WITH SPECIAL EDUCATION SERVICES BY DIANE WISCARSON, WISCARSON LAW As a parent of a child with special needs, you may be particularly anxious about sending your child to elementary school. After all, you want to make sure that your incoming kindergartner gets the full benefit of a public school education, and has a positive experience in the process. Prior to your differently-abled child reaching kindergarten age, they will have likely been getting services through […]

Helping Parents Help Their Kids Thrive In School

BY KATHERINE FIRESTONE School was hard for me. I felt like an imposter. I was in honors classes but I felt like I had to work so much harder than everyone else to get the same grades. I had to read to myself out loud so that I would understand what I was reading and not skip ahead. It took forever. Then I had to go back and highlight everything I had just read to […]

How Charter Schools & Vouchers Affect Special Education

Families should carefully weigh the pros and cons of charter schools and vouchers, and speak with their Parent Training and Information Center about their state laws, regulations, and policies regarding special education and charters or vouchers, before making a decision. BY MARIA DOCHERTY AND LAUREN AGORATUS, M.A. With the increased focus in the United States on charter schools and the use of vouchers to support student  attendance at private schools, more and more parents of […]