Office of Community Support for Military Families With Special Needs

If your military family has a family member or child with special needs, there are numerous resources, services and programs available to help you. But where do you start? Here are some top resources. The Exceptional Family Member Program Sometimes half the battle of managing your family member’s care is knowing what resources and services are available and how to access them. The Exceptional Family Member Program, or EFMP, is a great place to begin. […]

Play and friendship for children with disability

Making friends, playing and getting along with other children are good for all children, including your child with disability. You can support your child as he learns how to play and have friendships. Why friendship and play are good for your child with disability Play and friendships help your child with disability learn all kinds of skills and abilities. After all, children are fantastic teachers of other children. And playing with other children is great […]

Down Syndrome Overview

Down syndrome is the most common and readily identifiable chromosomal condition associated with intellectual disabilities. It is caused by a chromosomal abnormality: for some unknown reason, an accident in cell development results in 47 instead of the usual 46 chromosomes. This extra chromosome changes the orderly development of the body and brain. In most cases, the diagnosis of Down syndrome is made according to results from a chromosome test administered shortly after birth. Just as […]

We are calling on the world to take action for inclusion

Inclusion International is the global network of people with intellectual disabilities and their families. For people with intellectual disabilities and their families the reality is that we are still being left behind and excluded from all areas of society. We work together to make inclusion happen. Today is International Day for Persons with Disabilities. This year the focus is on empowering persons with disabilities to make sure inclusion and equality are real. Today we ask […]

Breast Cancer Screening for Women with Disabilities

According to the Centers for Disease Control and Prevention (CDC), breast cancer is the most common type of cancer among women in the United States, and the second leading cause of cancer-related deaths. Living with a disability does not make you immune. Women with disabilities are less likely to undergo breast cancer screening due to the inaccessibility of radiology and mammography equipment. Women using wheelchairs and other mobility equipment may be unable to position themselves […]

Sexual Health Education for Young People with Disabilities

Research and Resources for Parents/Guardians In recent years, important changes in public policies and attitudes have resulted in improved opportunities for people with physical and intellectual disabilities. Unfortunately, societal attitudes have changed less in regard to sexuality and disability. Even today, many people do not acknowledge that most people experience sexual feelings, needs, and desires, regardless of their abilities. As a result, many young people, including those with disabilities, receive little or no formal sexual […]

New supplemental awards boost NIH funding for research on Down syndrome

The National Institutes of Health has awarded $22.2 million in supplemental funding to bolster support for Down syndrome research ranging from basic to clinical. The investment is part of the INCLUDE (INvestigation of Co-occurring conditions across the Lifespan to Understand Down SyndromE) project, which was launched in June 2018 in response to a Congressional directive to develop a new trans-NIH initiative to investigate critical health and quality-of-life needs for individuals with Down syndrome. With these […]

Alzheimer’s, down syndrome vaccine trial his important milestones

AC Immune SA (NASDAQ:ACIU), a Swiss-based, clinical-stage biopharmaceutical company with a broad pipeline focused on neurodegenerative diseases, today announced two clinical milestone events related to ACI-24, its anti-Abeta vaccine against Alzheimer’s disease and Abeta-related cognitive decline in Down Syndrome, according to a release from NASDAQ. Prof. Andrea Pfeifer, CEO of AC Immune, said: “We are delighted with the progress of ACI-24, the anti-Abeta vaccine, derived from our proprietary SupraAntigenTM platform. In addition to the development in […]

Why Doctors Should Ask About the Use of Supplements in Patients with Down Syndrome

My wife is a pediatrician and in better health than I am. She is physically fit and obsessively exercises, which is more than I would claim about myself. She begins her day in a routine way, which includes drinking a foul-smelling concoction of green tea, herbs, and spices that are said to have anti-inflammatory qualities. She uses it to wash down fist-full of supplements, which are without solid scientific evidence of extending life or delivering […]

Parental Perspectives on Down Syndrome Research Webinar – July 31 – NTG notice

In our webinar series this year, participants have heard from researchers and me about the exciting research that is getting closer to clinical trials and the potential outcomes these promising interventions could have on individuals with Down syndrome. Today, I invite you to register for our July 31st webinar to hear about the priorities, expectations and concerns for Down syndrome research that families have. Parental Perspectives on Down Syndrome Research and 5 ways to families can […]