A support program for parents of teens who have epilepsy

You Are Not Alone Parent Toolkit A support program for parents of teens who have epilepsy Support programs can help Parents know that growing up is tough for any teen. But a teen with epilepsy may have more anxiety and confusion. When other people like teachers and other teens don’t understand epilepsy, they might treat that person differently. This can make the teen feel like they are alone. Parents play an important role in preventing […]

5 Things You Should Know About Epilepsy

Epilepsy is common, but how much do you know about it? Get the facts about this condition! Epilepsy is a brain disorder that causes repeated seizures. There are many different types of epilepsy and many different kinds of seizures. Epilepsy can get in the way of life, mostly when seizures keep happening. To control their seizures, people with epilepsy may take medicine, have surgery, or follow a special diet. Here’s what you need to know: […]

ABLE Accounts 2019: Top Questions

What are the ABLE savings limits for 2019? ABLE accounts are protected savings opportunities for people who have a significant disability with an onset prior to age 26. For 2019, friends and family can contribute up to $15,000 directly into an ABLE account. ABLE account owners who work, and do not have an employer- sponsored retirement account, may save up to $12,140 in additional savings from their earnings. Can I save income within ABLE to […]

Spread The Word INCLUSION

‌Save the Date! For our New 2019 Campaign Over the past several years, you have stepped up and helped us Spread the Word to End the R-Word, which started the conversation on respect. Now, to continue this important conversation, the Golisano Foundation, Special Olympics and Best Buddies are building on these efforts in a new campaign called, Spread the Word Inclusion, to stop all types of discrimination against people with intellectual disabilities. This year’s day […]

Loving Someone With Epilepsy

When Zayan first told me that he has epilepsy, I didn’t believe him.  “You mean seizures, right?”  I was embarrassed at how much I didn’t know. Epilepsy is a disorder of the brain that triggers recurrent seizures. It can be caused by different conditions that affect a person’s brain. A person is diagnosed with epilepsy when they have had two or more seizures that are not caused by another medical condition such as a high […]

Overview of Professionals in the School-Age Special Education System

Throughout your child’s academic career, he or she will come into contact with dozens of different professionals who are there for support. The list below provides an overview of some of these individuals and a description of the role they may have. Be aware that your child’s Individualized Education Program (IEP) will control who works directly with your child and what they do. Regular Education Teachers Depending on your child’s educational placement, your child may […]

Inclusion vs. Self-Contained Education for Children with ASD Diagnoses

The idea is not new. Including children with special needs in classrooms to learn alongside typical learners promotes the sense of a welcoming environment for all, where differences are valued and learning opportunities are accessible to all, in every classroom. Depending on where you live, the concept may be referred to as “mainstreaming,” “integration,” as well as “inclusion.” Long before the Individuals with Disabilities Education Act (IDEA), children with disabilities did not attend public school. […]

Placement Options for Preschool Students Receiving Special Education Services

There are a number of placement options to consider for your preschool child. The Individualized Educational Program (IEP) team – which includes you, the parent – will decide which placement or placements are appropriate. The placement decided upon by the IEP team will be paid for by the school district in which you live as part of your child’s Free and Appropriate Public Education (FAPE). When considering an educational placement, the IEP team must decide […]

Two Possible New Ways to Treat Silent Seizures in Children

By Julie Langelier As early as 3 months of age, infants with a severe form of epilepsy called Dravet syndrome start having convulsive seizures, during which their arms and legs jerk repeatedly. As they become toddlers, another type of seizure begins to appear. These seizures do not cause obvious convulsions, but disrupt consciousness and can occur more than 50 times every single day. A challenge to detect and difficult to treat, these non-convulsive seizures often […]

Epilepsy study points to promising new uses for existing drugs

Drug repositioning—taking known drugs and identifying new applications for them—is an attractive concept for speeding up the process of bringing drugs to human testing for unmet medical needs. In a new study, published online in Annals of Clinical and Translational Neurology, University of Iowa researchers led by Alexander Bassuk, MD, PhD, UI professor of pediatrics and neurology, use a multidisciplinary strategy that combines gene expression profiling and bioinformatics to identify a list of around 90 drugs, all of […]