I lost my voice.

by Karen Warfle No, I didn’t have a cold or laryngitis. I didn’t suffer a traumatic accident. I lost my ability to speak up for myself. After 20 years of advocating for my son, I found I didn’t know how to advocate for me. When my son graduated from homeschool and my daughter graduated from college – in the same weekend – I was ready to be a “retired” homeschool mom. I imagined having all the […]

How I Stay Calm in the Midst of Turmoil While Raising a Child with a Disability:

by LisaMarie Bernardo We all know that siblings can fight, argue and irritate each other. It can make for a very chaotic household environment. I find this even more challenging especially because my son struggles with a disability. I have tried for years to get my kids to get along but have yet to succeed. However, I have now realized that I can do something within myself to change my reaction to all of the bickering […]

Drop the Clichés, Please

by Amanda Buck Motherhood is filled with cliché sayings. From the moment we reach a certain age and find ourselves in a steady long-term relationship, society suddenly decides that we have reached the mystical baby-making stage and immediately unhelpful hints, tips and “advice” come pouring in. All at once anyone and everyone, from our closest friends and family to the creepy neighbor down the street, have something to say. In the beginning there’s the benign “are […]

Monsters 

by Brandy Pavia Imagine having a child, a beautiful, perfect-in-your-eyes, child. A child that may not hit all of their developmental milestones at the suggested, “age-appropriate” time, but still, your perfect child, nonetheless. You start to notice as time goes by that your perfect child has a different way of viewing and navigating the world than other kids their age, and you make it your mission to provide the foundation for them to be the most […]

Forgetting Milestones and Learning to Measure Progress…a New Way of Thinking! #InsightIntoAutism

By Mary Ellen Bogucki Often times you hear the terms high functioning, low functioning, mild, moderate or severe when people talk about the degrees of severity with Autism. We too, have heard these terms used when describing our daughter, Bree. Unfortunately, these terms can cause even more misunderstanding of the disorder, as people tend to form their own opinion of what they think the term means. There was a time, Bree had no meaningful speech […]

My Son Has a Speech Disorder and it Rocks!

by: Colleen Berlingieri My son Geordi has a speech disorder that is annoying, heartbreaking and funny at the same time. My patience wears thin when I listen to him s-l-o-w-l-y work through what he is trying to say.  Other times, my heart goes out to him as he struggles to express his feelings.  But mostly he simply cracks me up with some of the stuff that comes out of his mouth. Slips of the Tongue […]

5 Reasons Why Raising a Child with a Medical Condition is Kind of Incredible

by Amanda Buck When someone learns for the first time that my 4-year-old daughter has a rare disease called cystinosis, their face will usually morph from happy and pleasant into one of concern and pity. While I appreciate their compassion and willingness to express their condolences, sometimes I find myself annoyed by their reaction. Particularly when they don’t know just how amazing she is. My little girl is full of spunk, laughter and courage and […]

How a Simple Visit to My Son’s Classroom Brought about a Series of Conflicting Emotions.

by Tulika Prasad I stood in the middle of my son’s classroom , watching all his classmates confident and excited, dressed as their favorite people from history. There were scientists, Presidents, Baseball players, Civil rights activists and many more. They waited at their seats until one of the parents “activated” them for them to start their speech. I then looked at my son – sitting in the farthest corner of the room, completely oblivious of what […]

Shake It ‘Til You Make It!

by Jim Turk Remember in the Empire Strikes Back when Luke decides to use his harpoon to tie up the legs of those evil walking robot things to slow them down? He didn’t “defeat” them but he DID save the rebel force. It was a real breakthrough. …And the other day I had one of my own. Now, I’m no Jedi Master (even though I sometimes think of myself as one – is that weird?), but […]

Who would we be without our sisters and brothers?

by Lynne Pearson When Leila was four years old she must have decided that one younger brother simply was not enough and so she confidently asked me to provide her with a set of twin siblings, a boy and a girl. I smiled at my young daughter in the knowledge that Nick and I were hoping to have a third child and said,  “I’ll see what I can do.”. A few short weeks later I […]