It is very important for everyone to appreciate that the burden of care and the effects of the disease on the child necessitate adjustments in virtually all aspects of the lives of all family members. THE IMPACT OF LENNOX-GASTAUT SYNDROME ON FAMILIES Lennox-Gastaut syndrome (LGS) is a severe form of childhood epilepsy that not only has a major impact on the health-related quality of life (HRQoL) of the affected children, but on their caregivers as […]
BY H. Barry Waldman, DDS, MPH, PhD & Steven P. Perlman, DDS, MScD, DHL (Hon) These heroes are living proof of the saying, “It is better to try and fail, than to fail to try.” Hope is the feeling that what is wanted can be had or that events will turn out for the best.1 Aspiration is a strong desire, longing or ambition.1 Hope and aspirations are the twin pillars which maintain the drive of […]
GENETIC ALLIANCE BY MONICA KORTSHA Discussing an individualized healthcare plan (IHP) with your child’s school nurse is one way you can prepare for the school year and make sure their special needs are addressed accordingly. It’s back-to-school time again. And whether your child will be enrolled in a traditional classroom, inclusive classroom or special education, it is important to ensure that your child’s educational environment will be the best fit for their unique needs (having […]
