BY ROB WRUBEL CFP®, AIF® A winning team needs to be established. thIs means finding a financial planner, a lawyer and an accountant each of whom understands the unique challenges and planning opportunities available to families like ours. A friend walked in to my office one day. He carried a leather briefcase. He put his heavy brown case on my desk then paused with his fingers over the brass clasps. He smiled and looked at […]
Many, but not all, people with Down syndrome develop Alzheimer’s disease when they get older. There are several ongoing research studies and clinical trials exploring the link between Down syndrome and Alzheimer’s disease. For Down Syndrome Awareness Month, learn more about research opportunities for people with Down syndrome by: Joining DS-Connect®, a voluntary, confidential, online registry from the Eunice Kennedy Shriver National Institute of Child Health and Human Development. You, your legally authorized representative, or your […]
LIVING WITH A DISABILITY BY JERRY LEVINSON Rep. Zeldin says Congress must now act again to ensure that a more permanent fix is granted. Congressman Lee Zeldin (R, NY-1) is spearheading an effort to protect people with disabilities by ensuring they have access to essential medical equipment, such as specialized power wheelchairs, seating systems, and other adaptive equipment (collectively called Complex Rehabilitation Technology or CRT). To this end, he has introduced legislation (H.R. 3229) that […]
AMERICAN ACADEMY OF DEVELOPMENTAL MEDICINE & DENTISTRY BY H. BARRY WALDMAN DDS, MPH, PHD, STEVEN P. PERLMAN DDS, MSCD, DHL (HON) AND MATTHEW COOKE, DDS, MD, MPH “Don’t ask taxpayers to support disabled children: When I was 10 years old, I chose to be child-free because I knew that I would not make a good parent, and at 38 I’m still content with my choice… Parenthood is a choice, not a divine right, and all […]
GENETIC ALLIANCE • EMPLOYMENT & TRANSITION ANNUAL ISSUE • BY SARAH ROTH CAREGIVERS WHOSE KIDS ARE TRANSITIONING INTO ADULTHOOD EXPRESS HIGH LEVELS OF STRESS. ONE EFFECTIVE TOOL FOR REDUCING STRESS IS THE CULTIVATION OF A MINDFULNESS PRACTICE. Guiding your young adult from pediatric to adult care is no simple task. The healthcare system is fragmented and difficult to navigate. Care is enmeshed in the world beyond the clinic or hospital. And resources for ongoing social […]
