Caregiver Initiative For Individuals With Down Syndrome

NDSS has partnered with the Alzheimer’s Association and National Task Group on Intellectual Disabilities and Dementia Practices to author a guidebook specifically for those caring for an individual with Down syndrome diagnosed with Alzheimer’s disease. BY SARA HART WEIR For members of the Down syndrome and disability communities, caregivers play an important role in helping members of the community lead a healthy, productive and happy lives. It is not uncommon for caregivers to put the […]

Looking at School Placements from Both Sides of the Table

BY JOANNE DESIMONE As the outreach coordinator for the Alliance of Private Special Education Schools of North Jersey, I help parents and district case managers find appropriate placement options for their students. As a special educator and parent of two children with disabilities, I use the knowledge I’ve acquired, sitting on both sides of the table. When parents call me for placement options, I especially lean on the experience I had with my younger son […]

Calling All Innovators For The “CAREGIVERS SHARK TANK”

The National Caregivers Conference is inviting innovators, inventors, researchers and thought leaders to share their new ideas, products, technology’s, or therapeutic concepts that aim to transform the health and role of family caregivers. The National Caregivers Conference is returning to New Jersey since Superstorm Sandy forced its cancellation in October 2012. This annual conference is renowned for its National level speakers, workshops and exhibitors who address both individual and national issues facing the caregiver community. […]

Transitioning Into Summer Finding Camps for Children with Special Healthcare Needs

BY JEFFREY GIORGI AND AMELIA MULFORD Summer camp can be a profound and transformative experience for children of all ages. Camp challenges us to interact with people we don’t know, perform feats we didn’t think we were capable of, and develop a stronger sense of self-reliance. But when the very act of moving around is a labored chore, summer camp experience can become less carefree and more stress-inducing, as in the case of five-year-old James. […]

NDSS Athlete Team to Run 250+ Miles for Down Syndrome Advocacy

The National Down Syndrome Society (NDSS), the leading human rights organization for all individuals with Down syndrome, proudly announces its official Athlete Team and Run Route for the Run for 3.21, a 250+ mile run from Washington D.C. to New York City. The run will serve as a major fundraiser for NDSS in 2018 and recognition of World Down Syndrome Day on March 21. This multi-day adventure kicked off at 6:00 a.m. on March 19 […]

Welcome To GiGi’s Playhouse

Nancy Gianni realized that she now had a mission – to change the way the world sees Down syndrome and promote acceptance for all, while providing opportunities and support for GiGi and others like her. When Nancy Gianni gave birth to her daughter, GiGi, 15 years ago, she thought she knew exactly what to expect of those early hours and days. She had already brought two babies into the world and was looking forward to […]

Starting ’em Young

Young Athletes engages families by highlighting the power of play. Young Athletes includes a series of structured physical activities, songs and games to teach basic motor development skills for children with and without intellectual disabilities, ages 2 to 7 years old. BY REBECCA RALSTON In a small community near Phitsanulok, Thailand, a young boy named Kongpob Yangkam lives with his grandparents and 17-year-old sister. Kong, as his family lovingly calls him, has intellectual disabilities and […]

Sophie’s World

by Amy Silverman Raising a teenage daughter is hard. Raising a teenage daughter with Down syndrome is harder. It can be like bang your head against the wall screaming for mercy several times a day hard. Don’t get me wrong. I adore Sophie. At 14 and a half she is 4 feet, 5 inches of pure joy – until she’s not. And then the combination of an extra chromosome and a whole lot of hormones mixes […]

Training First Responders To Respond Bettter

“The SNAP Program makes a vital contribution to the armamentarium of best practices addressing the unique needs of special populations and their ability to thrive and participate in the community. It will become a time-honored component in the first responders’ toolkit.” – Rick Rader, MD, Medical Liaison, SNAP Program BY BRUCE GARNER Even under the best of circumstances, it is challenging to be a good parent, but when your child has special needs, it gets […]

National Down Syndrome Society Launches National Campaign Spotlighting Laws that Prevent Individuals with Down Syndrome from Seeking Careers

The National Down Syndrome Society (NDSS), a human rights organization for all individuals with Down syndrome, will soon bring together community leaders, self-advocates, parents and employers to launch their latest campaign – Law Syndrome. NDSS’ Law Syndrome campaign will help launch October as Down Syndrome Awareness Month and National Disability Employment Awareness Month. Law Syndrome directly addresses the challenges faced by people with Down syndrome who desire to fulfill career goals, get married and live […]