Forgetting Milestones and Learning to Measure Progress…a New Way of Thinking! #FindingYourVoice

  By Mary Ellen Bogucki When I became a parent, I learned I had strength I never knew existed and I found a voice that I hadn’t really heard before. I think that is common for most parents. When you are responsible for a life, whether you brought this life into the world or you chose to adopt them into your family, you have a commitment and a duty to love, protect and care for […]

Improving Health Worldwide To The Most Underserved

People with intellectual disabilities face health care providers who don’t have the knowledge or willingness to treat them. Despite severe need and higher health risks, people with ID are often denied health services. BY KRISTIN HUGHES SROUR, MBA If you want to help straighten her bones, dig a hole in the ground, have your daughter stand in it and then pack it with soil. Do this every day for six hours. This was the advice […]

Chapter 6: Progress is Progress

by Brandy Pavia My Bean is amazing!  I know I’m probably a bit biased, but seriously, to say that she’s made great progress would be a gross understatement.  Our measure of progress may differ from others, but progress is progress, no matter the speed, and we feel that it should always be acknowledged and celebrated.  It might sound funny, but in her short 10 years on this planet, she has been one of our greatest […]

How my son’s autism changed me

by Tulika Prasad The other day I was talking to a complete stranger at my son’s summer camp’s bus stop. We chatted like old friends meeting after years. There is something that bonds us all together…the experiences, the pain, the joy ,and the lessons. There is so much to share. We finally parted, promising a lunch date along with some spa time…knowing well, it was easier said than done 🙂 On my way back, I thought… […]

Keep Calm and Carry on Parenting

by Lynne Pearson I’ve been doing a little bit of reminiscing about the things that made my children happy when they were small. These would probably be Edward’s top 10 happy inducing activities in his early years: Watching Finding Nemo (every day) and Watching walking with dinosaurs (every day, once he’d finished with Nemo) The beach – playing for hours in the sea and sand. Watching Laurel and Hardy films – he’d literally run around […]