Unique Summer Camp for Children Who Use Computers to Communicate

MOUNTAINSIDE, NJ: Camp Chatterbox, sponsored by Children’s Specialized Hospital, is a weeklong overnight camp for children and young adults, ages 5-22, who use synthesized Augmentative and Alternative Communication (AAC) devices. Chatterbox offers two unique programs – a Family Program for children ages 5-14 and an Independence and Self-Advocacy Program for teens and young adults ages 15-22. All campers must be able to participate in the program without requiring one-on-one behavioral support. All campers are involved […]

New mechanism discovered behind infant epilepsy

Scientists at Karolinska Institutet and Karolinska University Hospital in Sweden have discovered a new explanation for severe early infant epilepsy. Mutations in the gene encoding the protein KCC2 can cause the disease, hereby confirming an earlier theory. The findings are being published in the journal Nature Communications. Through large-scale genetic analyses of a family with two affected children at SciLifeLab in Stockholm, mutations were identified in the gene encoding the transport protein KCC2. In a […]

Antiepileptic Drugs (AED’S) Used In Those With Intellectual And Developmental Disabilities: For Better Or Worse? Part 3

EPILEPSY & SEIZURES SERIES • PART THREE BY BY SETH M. KELLER, MD How does one differentiate between all of these medications and choose which is best? How does the availability of generic AED’s impact upon these choices? How is an individual with IDD affected by AED’s? Adults and children with Intellectual and Developmental Disabilities (IDD) commonly have a number of chronic health conditions which can affect their quality of life and activities of daily […]

Medications Used In Epilepsy – Part 2

EPILEPSY & SEIZURES SERIES • PART TWO BY BY PATRICIA MCGOLDRICK, NP & STEVEN M. WOLF, MD The mainstay of treatment for epilepsy is medications. The goal of any therapy is to control seizures with minimal side effects and to achieve it by using as few medications as possible. When seizure control is not achieved, it is time to rethink the regimen and look at alternative treatments, including surgery and diet. Seizures occur when there […]

Sorting Out Seizures – Part 1

EPILEPSY & SEIZURES SERIES • PART ONE BY STEVEN M. WOLF, MD & PATRICIA MCGOLDRICK, RN It is important for the epilepsy team to be well informed about the semiology of the seizures. Semiology means what the seizure looks like – how it starts, how it progresses, whether the patient is alert or not. The word “seizure” strikes fear into the heart of parents. Nothing is more terrifying than watching your loved one suffer a […]