Finding Their Voices

Camp Program Helps Kids Who Use Computers To Communicate  Every August, a caravan pulls up at Camp Chatterbox in New Jersey and when the car doors open, campers pile out to begin a fun-packed week of activities. Some are Chatterbox veterans, others are tentative newcomers, but all of them are excited to be there for an experience that puts them on a level playing field in more ways than one. The overnight program is sponsored by Children’s […]

Accomodating Two Wheelchair Users At Once

ACCOMMODATING TWO WHEELCHAIR USERS AT ONCE: MOBILITY VENTURES’ MV-1 The Mobility Venture’s MV-1 is in a class of its own as being recognized as the only American made, purpose built accessible vehicle that has the ability to accommodate two wheelchair users and has passed rigorous highway crash test standards to successfully demonstrate safe occupant protection. “For government fleets, taxicab and limousine operators, or families in general including those with one or multiple wheelchair users, this vehicle is all […]

The Save Babies Through Screening Foundation

Comprised of volunteers whose lives have been touched by newborn screening (NBS), Save Babies Through Screening Foundation is the only advocacy organization in the country dedicated to Newborn Screening. SBTS aims to educate parents, pediatric healthcare providers and policy makers about available comprehensive Newborn Screening, the importance of obtaining positive or other test results requiring follow-up actions within five days of birth and the importance of prompt confirmatory testing and treatment/management when required. The Foundation’s […]

Michele A. Lloyd-Puryear, M.D., PH.D Receives Award For Excellence In Newborn Health

Michele A. Lloyd-Puryear, M.D., Ph.D, medical advisor for the Save Babies Through Screening Foundation, was recently awarded the prestigious R. Rodney Howell Award, for Excellence in Newborn Health. The Newborn Foundation honors leaders in newborn health, technology, policy and advocacy at their yearly awards gala, held this year in Minneapolis. Dr. Lloyd-Puryear is an accomplished professional with decades of experience focused on critical issues involving genetics and rare diseases. Over the course of her distinguished […]