GENETIC ALLIANCE • EMPLOYMENT & TRANSITION ANNUAL ISSUE • BY SARAH ROTH CAREGIVERS WHOSE KIDS ARE TRANSITIONING INTO ADULTHOOD EXPRESS HIGH LEVELS OF STRESS. ONE EFFECTIVE TOOL FOR REDUCING STRESS IS THE CULTIVATION OF A MINDFULNESS PRACTICE. Guiding your young adult from pediatric to adult care is no simple task. The healthcare system is fragmented and difficult to navigate. Care is enmeshed in the world beyond the clinic or hospital. And resources for ongoing social […]
NATIONAL DISABILITY EMPLOYMENT AWARENESS MONTH, 2016 – – – – – – – BY THE PRESIDENT OF THE UNITED STATES OF AMERICA A PROCLAMATION Americans with disabilities are entitled to the same rights and freedoms as any other citizen — including the right to dignity and respect in the workplace. Too often in our Nation’s history, individuals with disabilities have been eager to work but could not find a job, facing red tape, discrimination, or […]
BY KAREN KABAKI-SISTO, M.S. CCC-SLP Playing games at home is a great way to have hours of fun on the weekends or when your family has some downtime. Games, like real life, pose unique challenges like making decisions, taking different points-of-view, using language, and achieving an objective. Children with special needs experience difficulty with some games’ rules or physical actions, leading to frustration and unwillingness to engage. Maximize your child’s enjoyment and connections with all […]
BY GAIL AND HARRY KOUJAIAN The Niemann Pick Type C (NPC) community is very fortunate and in an envious position. For being a rare disease, there are now several clinical trials in the pipeline with more on the way. Hayley’s childhood was mostly typical. She was a happy kid that participated in Karate, cheerleading, sports and met all her early milestones. Things however changed around 1st grade. She was clumsy and started to have issues […]
ANCORA IMPARO BY RICK RADER, MD ■ EDITOR-IN-CHIEF Unified Sports provides people with and without ID (intellectual disabilities) the opportunity to play on the same sports team, creating a space for friendships, physical activity and fun. The classic image of the young girl with Down syndrome running with determination across the finish line to the cheers of her families, friends and coaches has always done what it is intended to do—let you know of the […]
