We Found Santa at the Pool!

by Tulika Prasad The holiday season is the season of cheer and miracles and the most likely of places to find miracles is in the least likely of places. So guess where we found Santa… At the pool !!! It was the weekly swimming lesson we were at. This was an indoor pool of a hotel on a weekday and like most weeks, we were not expecting anyone in there.We walked in and saw another […]

Forgetting Milestones and Learning to Measure Progress… a New Way of Thinking! #StandUpforInclusionNow!

By Mary Ellen Bogucki PART TWO Recently, while attending the Special Olympics World Tennis Invitational in Santo Domingo, I took notice of the theme on the back of many t-shirts–“Stand Up For Inclusion!” I realized how important the Inclusion Revolution movement truly is and I recognized the time is now to STAND UP for inclusion! I understood this because there was a video that went viral showing a 14-year old boy with cerebral palsy being […]

Forgetting Milestones and Learning to Measure Progress… a New Way of Thinking! #StandUpforInclusion-SantoDomingo

By Mary Ellen Bogucki PART ONE A few months ago, I wrote about the “Inclusion Revolution” and the Special Olympics 50th Anniversary celebration. While we were at the 50th celebration, my daughter Bree had the great honor of meeting Cándida Montilla de Medina, the First Lady of the Dominican Republic. We also had the privilege of hearing the First Lady, who is a psychologist, speak and describe all of the positive work she is doing […]

When a kid gave me hope for a better world for my son.

by Tulika Prasad We all know how difficult it is for a differently abled individual to navigate the world with its prejudices. There is much to be desired when it comes to acceptance and inclusions. It often makes me nervous thinking about what kind of a world will my son find himself in when he grows up and when I might not be around to be his eyes , ears, and voice. So, in the midst […]

On Time for Myself

by Carey Handley Several years ago, when I was in counseling for depression, my therapist asked when the last time was I went away with the girls for the weekend. My very clever response was to look at her blankly and say, “Uh…never. It’s never crossed my mind.” She returned the blank look and, speaking with disbelief, told me it was about time I did exactly that. Later that night, as I was contemplating why […]

What Do You See?

 by Carey Handley What do you see when you look at my daughter? I’ve sometimes wondered how other people see her. I wanted a daughter perhaps more than anything else in the world. So much so that I wished for her when I was at the Wishing Door in a mosque in Cairo, Egypt followed a few days later by a wish tucked into a crevice in the Western Wall in Israel. My wish was […]

Forgetting Milestones and Learning to Measure Progress…a New Way of Thinking! #TravelingWithAutism

By Mary Ellen Bogucki For a long time we didn’t travel or take vacations. From a very young age, my daughter, Bree hated car rides. The minute the car started moving, she would cry. It took us years before we learned she had Autism and sensory issues. Her vestibular sense was affected and movement was a problem for her. The biggest mistake we made was when we decided to stop at a waterpark on our […]

When PTSD is not PTSD and why I can’t wait to have it.

by Amanda Heller I know that sounds crazy, who in the world would want PTSD, Post Traumatic Stress Disorder, much less look forward to it? I am not making light of such a struggle. I learned first hand how bad living with PTSD was after significant trauma years ago. I actually thought I had it again when dealing with my daughter’s complex medical problems, but I realize I was wrong. PTSD is serious and debilitating but […]

But today I cry

by Tulika Prasad Those who know me think, as a mom of a child with autism, I’m generally positive in my outlook. I would like to believe that is true. However, in me hides a realist–not to be confused with a pessimist. The realist me rears its head every now and then and I kick it back in, hoping it will stay there defeated and quiet. But some days it bounces back with so much […]

Forgetting Milestones and Learning to Measure Progress…a New Way of Thinking! #FindingtheRightTherapy

  By Mary Ellen Bogucki I have found that the most important thing I could ever do for my daughter, Bree, was find her the right therapy. Before Bree was born I had never heard of sensory processing disorder. I knew of Autism, but my knowledge was very limited and sadly most of it came from what I saw in the movie “Rainman”. For the first five years of Bree’s life we were repeatedly told […]