An Envelope Full of Kindness

by Tulika Prasad It was a routine end of the school and I was was checking my son’s backpack as I did everyday. There, in a corner of the back was a small white unassuming envelope that almost went unnoticed. I pulled it out not thinking much. It was a little crumpled and seemed like it had been waiting for it to be opened for a while. The front of the envelope read: from :Ricky […]

About Autism, A Little Boy, and Nobody’s Fault

by Tulika Prasad We were at an indoor water park a few weeks back and the pool we were in had a basketball hoop that a few other kids were playing at. My son was happy just watching the game and would keep jumping in , all excited . That’s when one of the kids asked him if he wanted to join them. He was kind and genuine. My son was incognizant. The kid waited […]

What Hope Looks Like

by Maria Spencer In my daughter Olivia’s sixteen years, I have seen many hope-filled days. I have seen her improve in areas at school that we never dreamed of, have seen her run track and always, always defy the odds that were given to her as a baby. But in the past several months, I have seen her do something that is beyond my wildest dreams or imaginations. Just when I think she has reached a […]

Forgetting Milestones and Learning to Measure Progress… a New Way of Thinking! #Reflection

By Mary Ellen Bogucki The start of 2019 had me reflecting on my daughter, Bree’s journey living with Autism. When I started writing these blogs a few years ago, my goal was to share our story in hopes that some of our experiences could inspire and help others. That is still my goal, that with each new experience Bree has, someone else can grow too. I am far from an expert, but I know how […]

Advocate like a Mother

by Kelly Kulzer-Reyes They started popping up around the Down syndrome community about a year ago, at least that’s when I first saw them. “Advocate like a Mother” t-shirts have hit the stage with gusto, and at first I loved them. Really. They are cute. I’d even like to own one. I really like the light burgundy one that debuted at the Down Syndrome Diagnosis Network (DSDN) Moms Retreat back in September. I’d have one […]

We Found Santa at the Pool!

by Tulika Prasad The holiday season is the season of cheer and miracles and the most likely of places to find miracles is in the least likely of places. So guess where we found Santa… At the pool !!! It was the weekly swimming lesson we were at. This was an indoor pool of a hotel on a weekday and like most weeks, we were not expecting anyone in there.We walked in and saw another […]

Forgetting Milestones and Learning to Measure Progress… a New Way of Thinking! #StandUpforInclusionNow!

By Mary Ellen Bogucki PART TWO Recently, while attending the Special Olympics World Tennis Invitational in Santo Domingo, I took notice of the theme on the back of many t-shirts–“Stand Up For Inclusion!” I realized how important the Inclusion Revolution movement truly is and I recognized the time is now to STAND UP for inclusion! I understood this because there was a video that went viral showing a 14-year old boy with cerebral palsy being […]

Forgetting Milestones and Learning to Measure Progress… a New Way of Thinking! #StandUpforInclusion-SantoDomingo

By Mary Ellen Bogucki PART ONE A few months ago, I wrote about the “Inclusion Revolution” and the Special Olympics 50th Anniversary celebration. While we were at the 50th celebration, my daughter Bree had the great honor of meeting Cándida Montilla de Medina, the First Lady of the Dominican Republic. We also had the privilege of hearing the First Lady, who is a psychologist, speak and describe all of the positive work she is doing […]

When a kid gave me hope for a better world for my son.

by Tulika Prasad We all know how difficult it is for a differently abled individual to navigate the world with its prejudices. There is much to be desired when it comes to acceptance and inclusions. It often makes me nervous thinking about what kind of a world will my son find himself in when he grows up and when I might not be around to be his eyes , ears, and voice. So, in the midst […]

On Time for Myself

by Carey Handley Several years ago, when I was in counseling for depression, my therapist asked when the last time was I went away with the girls for the weekend. My very clever response was to look at her blankly and say, “Uh…never. It’s never crossed my mind.” She returned the blank look and, speaking with disbelief, told me it was about time I did exactly that. Later that night, as I was contemplating why […]