Parents Know Best- Ask about baby’s physical delays

By Trisha Korioth- American Academy of Pediatrics Many parents keep track of their baby’s first moves, like rolling over, sitting, standing and walking. Early achievers delight their parents. But what if your baby seems to be taking her time to get moving? “Some kids develop a little more slowly than other kids, and that is OK. But it could be a sign that they have a medical problem,” said Dr. Garey H. Noritz, M.D., FAAP, an […]

Are you a parent or caregiver of a person 12-30 years of age living with a complex neurologic condition?

The Child Neurology Foundation (CNF) invites you to participate in the new Caregiver Perspectives on Transitions Project — to better understand parent/caregiver perspectives in key aspects of transition to adulthood for those living with complex neurologic conditions which often include intellectual and developmental disabilities. Through online focus groups and surveys, we will explore and highlight medical transitions, as well as transitions related to community-based supports, residential services, and social/recreational supports. To participate, please consider questions 1-3 below: Are you […]

Transitions: Moving from Pediatric Care to Adult Care can be Tricky. Here are 8 Questions to Ask Your Doctor to Facilitate the Process.

by Kritz, Fran Many neurologic diseases, such as epilepsy, spinal muscular atrophy, muscular dystrophy, or Down syndrome, begin in childhood when patients are seen by pediatric neurologists. What happens when these patients age into adulthood? Do they stay “with their pediatric specialist or switch to a neurologist who treats adults or both children and adults? The accepted wisdom is to transition to doctors who treat adults, says Bruce H. Cohen, MD, FAAN, professor of pediatrics […]